Archive
we just found out my dad has colon cancer and has gone to his liver so im looking for a good diet for the liver or good foods that would enrich the liver. they gave him 3-6 months so its really scary if anyone wants pen-pal get ahold of me or if you know any thing to do with liver tumors thank you peri
peri (lucky@2z.net)
nashwauk, mn USA - Monday, June 11, 2001 at 18:01:11 EDT
Hi people: I just finished 6 months of Chemo with 5FU
Had an operation for resection of the colon, and was told I had stage two cancer. It went thru the wall, but didnt get into the lymph modes. They say Im OK, but
cant help but wonder if it will happen again. Would like to hear from any one on this nightmare.
Everett M. Smith (esmith001@earthlink.net)
St Louis, Mo USA - Sunday, June 10, 2001 at 22:47:11 EDT
Last Oct discovered I had colon cancer, had a resection operation, and six months of Chemo. I was a stage two patient
it got thru the wall of the colon, but not into the lymph modes. I was wondering what my chances are to be a survivor.
Everett Smith (esmith001@earthlink.net)
St Louis, Mo USA - Saturday, June 09, 2001 at 21:39:07 EDT
My name is Nicole. My mother was diagnosed with primary peritoneal(cancer of the abdominal wall lining) I have not came in contact with anybody with the same.She is currently not having treatments,docs say it is terminal. She is 49 yrs old. Please email me with similar experience. God Bless everyone in their struggles.
Nicole Wright (nicole_wright30@hotmail.com)
Canada - Thursday, June 07, 2001 at 18:52:54 EDT
My daughter was diagnosed with osteosarcoma when she was 14 (July 1999). She had limb sparing surgery that was very successful and completed the entire protocol of chemotherapy in July 2000. After all of that she is a healthy and happy 16 year old. (God Bless). If anyone needs to talk about anything or is dealing with the horrible disease, please contact us. We'd love to give you encouragement.
Pam (BigSmile55@aol.com)
OH USA - Wednesday, June 06, 2001 at 23:15:05 EDT
Hello, I am a doctoral student in psychology at the University of Northern Colorado. My father died of cancer, my aunts died of breast cancer, my grandmother died of cancer; no heart disease in my family! I would like to hear stories of how you have used humor to cope with the disease. May I share one with you? I read about a support group for women with breast cancer who were taking a group swim in the community pool. One of the foam prosthesis slipped out of one bathing suit! Instead of being embarressed, the quick witted woman pointed to the floating foam and said, "Oh, look. It's doing the breast stroke!" I would love to collect similar stories. Much thanks. Gay
Gay Lemons (gaylemons@hotmail.com)
Greeley, CO USA - Friday, June 01, 2001 at 16:29:49 EDT
I found out today (5-30-01) that I have renal carsoma.
Please send any enfoe.
Pat McLain Jr. (mrpatmc@yahoo.com)
Fairhope, AL USA - Wednesday, May 30, 2001 at 18:29:48 EDT
I have created a website in my brothers memory who passed away from cancer this
past February. It's filled with excellent cancer information and therapies that
I hope you will find useful. Please visit! www.Right2Live.cjb.net
Gail (glhendricks@home.com)
Edmonton, Ab Canada - Sunday, May 27, 2001 at 17:16:55 EDT
Hi, My wife was diagnosed with Breast cancer about 4 years ago, she was 25
when she first found the lump. She has pretty muched beat it, but i guess noone
really ever beats cancer. She is going through some difficult times right now
and i came to this site hoping for some help. She's lost. She dont know why she
feels the way she does, she depressed, she wants changes in her life, which i
cant blame her for feeling, she needs to talk to someone who has gone through
something similar. Being her husband i can only understand so much,In a way i
will never truely understand. I believe unless you go through it yourself, you
cant possibly know. I hope this post doesnt sound too "off the subject". But we
both dont know where to turn anymore, any help would be greatly appreciated. Thank
you all
Mike (sreed@carolina.rr.com)
Kannapolis, NC USA - Friday, May 25, 2001 at 17:56:03 EDT
I have just finished my first round
of chemo. for small cell (oatcell)lung cancer. Pet scan showed it was not involved.
It could not be operated on because of location. I will begin a 6 week radiation
treatment which will be along with chemo. I am terrified of the radiation treatments.
My esophagus will become inflamed and a liquid diet will be necessary. It is very
unclear to me wheter it will be permenant. I am 62 year old female with a history
of smoking. Has anyone had similar experience they could share with me. Thank
you all. I pray daily for all of us.
Lea Learice Stegemann (billeaste@optonline.net)
Dix Hills, NY USA - Friday, May 25, 2001 at 09:09:29 EDT
I have had Myelofibrosis
since I was mid teen I am now 58 1/2 yrs. young Mom of 2 grown sons and to be
"Gramma" in Sept. I have been a survivor of Chemo Oral Drugs for 17 years. Would
like to know if anyone else has this disease that acts like a cancer, but isn't.
We live in NC Missouri and I have been going to the Ellis Fischel Cancer Hosp.
in Columbia,Mo. Also, have gone to Mayo Clinic and M.D. Anderson in Houston, Tx.
No Help. would love to hear from anyone with this disease. Thank you. Nanette
Mrs. Nanette Colliver (nbcolliver@missvalley.com)
Salisbury, Mo USA - Thursday, May 24, 2001 at 16:26:19 EDT
hi i am a 16 year old male
that was diagnosed with acute lymphomic leukemia and i was diagnosed when i was
13 years old and have had two bone marrow transplants.I have had major surgery
on my face because of a fungel infection that attacked my tissue and the septum
in my nose and had 5 surgerys in 3 weeks.I am now in remmision and am a sophmore
in high school.My donor donated to me those two times and her name is jennifer
lopez, yes thats really her name, she not the real jlo but thats ok because shes
like an older sister. The point is that iv seen alot of things at a young age
that i shouldnt be seeing.If anybody that would like to email me please do so
i really like talking to people and i love to play and talk with little kids.And
im single if any girls my age need someone lol
anthony flores (aflores84@yahoo.com)
Villa park, IL USA - Thursday, May 24, 2001 at 14:42:33 EDT
Hi there. I was diagnosed for having non hodgskin lymphoma stage 1a end of 1995. I had an operation & followed with radiotheraphy sessions early 1996. 3 days ago I went for my routine check up & was told that there is a lump at my neck which the Doctors feel that it is a recurrence. I'm suppose to go for a biopsy & CT scan to confirm it which will result in undergoing Chemo. I'm now 36 with a lovely wife & 4 beautiful daughters. Honestly I'm scared & worried. Pl. advice & Thanx for this wonderful website.
Regards, Sazli,
Sazli (sazliani@tm.net.my)
Kuala Lumpur, Malaysia - Thursday, May 24 2001 at 06:57:16 EDT
Followed your link from Shared Experience Cancer Support web site and am thrilled to have found you! My Father has Stage IV recurrent colon cancer with metastatis to his liver and abdomen. He started chemo again, one month ago: 5FU, CPT11, Leucovorin, Atropine, Anzemet. I have been hard at work researching and with each new realization I am gathering more hope. A friend told me; hope will give me the strength to fight and fighting will give me more hope. A wonderful circular force which is proving itself true! I use knowledge as a base to look forward, to help my Dad and give our family comfort. And everyday I remember to "Keep the Faith!"
Debra Lynn Pendilla (dpendilla@earthlink.net)
Walnut, CA USA - Tuesday, May 22, 2001 at 13:53:48 EDT
My mother in law has been diagnosed with Non Hodgkins Lymphomia. It is Large cell aggressive cancer. It is treatable but I would like to hear from anyone who has beat this. How long did it take? How are you doing now? What was the medication/treatment you used. Have you heard about the drug available in Canada called Proto cell? Does this make sense to you and could you give me some feedback? Thanks and God bless you with your fight.
Thad Tumbleson (ttumbles@ties.k12.mn.us)
Mahtomedi, mn USA - Tuesday, May 22, 2001 at 12:05:57 EDT
Hi, and the best to all of you . . .
I last posted in mid-Feb. whem my husband was diagnosed with Adenocarcinoma "consistent" with a pancreatic primary. We have now found that in the medical field "consistent with" mean they don't have a clue. After a lot of very invasive tests, it was found the the primary was the COLON, not the PANCREAS. My husband was given 3 weeks to live on 2/28/01. He is still alive. The doctors are not always right in their "predictions." Have faith, one and all. Investigate, INVESTIGATE, what your options might be . . .
and, if the doctors had done their job, my husband's cancer would hve been detected long ago before his wife, a right-brained, graphic designer decided he had hepatitis and FINALLY the doctors who kept saying he had "sleep apnea" decided that yes, the liver IS swollen. Talk about burying mistakes!
Bonnie Burroughs (ipinc@erols.com)
Fairfax, VA USA - Monday, May 21, 2001 at 23:05:37 EDT
Last summer I was diagnosed having bilateral inflammatory
breast cancer. This was a real shock, as I was just was 28.
I realy cried two days when my doctor told my I already have
distant metastasis, meaning my cancer was in stage 4. He gave
me 3 months to live, and I am still alive. Live is so beautiful.
But I know, the cancer has control over me. I need strong pain
medication. If you have breast cancer, you are confronted with
the situation the the cancer breaks through your body and is
growing to the outside. The cancer is not just inside me, I can
see it when ever I want or not. I dont know how long I am living,
but I hope to see this summer.
Kathrin (kathrin_mueller1976@yahoo.com)
USA - Monday, May 21, 2001 at 14:53:05 EDT
I have been privileged to access your site and to gain some insights about cancer survivors. Please be assured of our prayerful support for all that you do in your circle of relationships.
Rev. Derek & Margaret Nicholls (dereknicholls@sk.sympatico.ca)
ELBOW, Sk Canada - Sunday, May 20, 2001 at 22:50:16 EDT
My Mom was diagnosed with colon cancer with mets to the liver. She had surgery to remove the tumor from her colon two months ago. She started chemo three weeks ago, once a week (5FU/Lo/CPT-11?) Would really love to get the advise of someone who is either a Stage IV CRC survivor or caregiver of such a person. Please help if you can.
Andres Ibarra (cerros1@stis.net)
Weston, FL USA - Sunday, May 20, 2001 at 22:44:27 EDT
My mother(72) just passed the one year mark with her cancer(infiltrating lobelar carcinoma) and got a very good report.Her doctor is talking about spreading the visits out to 6 months apart.Her cancer meds appear to be the source of her hot flashes..anyone ever found a solution to this?
phillip barr (phillipcbarr@hotmail.com)
hobbs, nm USA - Sunday, May 20, 2001 at 12:06:29 EDT
My 29 year old sister was diagnosed with metastic renal cell carcinoma in February. Besides her kidneys it is in her liver, lungs, bones, rectum, and lymph nodes. She is in stage IV. She just continued her first set of treatment with Interleukin 2. It was unsuccessful. Her next step is a stem cell transplant in which I am the donor. I would just like to hear from one person who has survived this type of cancer. Everything I read is bad. I just need to hear one good thing. Even if it is not good I would like to know what exactly to expect from somone who has seen first hand what happens. Thank you so much and good luck to everyone who is fighting this terrible disease.
Christy (cnh31@hotmail.com)
pittsburgh, pa USA - Friday, May 18, 2001 at 22:58:25 EDT
I have a hard time swallowing.There is a place on the right side of my neck, that is very sore to the touch. It started about May 3rd, with a little sensitivity to the touch. Now it appears to be swollen some and feels like something in the way of my swallow. It's not a sore throat kind of feeling.Does anyone have any input on this. Thank-you.
Judy (mjustinbubbie@aol.com)
lake wales, fl USA - Friday, May 18, 2001 at 02:08:27 EDT
Meghan Wright I love you.
Lori Evans (appleeva@netscape.com)
Long Beach, Ca USA - Thursday, May 17, 2001 at 17:25:03 EDT
Esophageal cancer: Diag. May 30th 2000 - had chem and radiation, Nov 1 01 had surgery, May 14 01 had CT and the results were exceptional (clean). Willing to share any information anyone might want.
Jim Swagart (jswagart@fuse.net)
Cincinnati, OH USA - Thursday, May 17, 2001 at 10:13:21 EDT
hello
alex elliott (huh2005@yahoo.com)
henry, Il USA - Tuesday, May 15, 2001 at 17:18:53 EDT
Three weeks ago I was operated on for Ovarian Cancer. I am waiting for my body to heal before starting chemo. I am, to put it in a few words, "scared to death"...I would appreciate any support I can get from others that are going through the same thing. Thank you so much....
Judy Farris (jfarris@mindspring.com)
Roswell, Ga USA - Monday, May 14, 2001 at 10:25:53 EDT
Mother,age 57, was recently diagnosed with adenocarcinoma. Primary location lung, with met to spine. She is undergoing radiation for spine and about to begin chemo (taxo/clarit)next week. Anyone have candid feedback? Best wishes on your individual struggles, and all the strength.
Paul (freedomful@aol.com)
Delray Beach, FL USA - Sunday, May 13, 2001 at 20:15:43 EDT
I was diagnosed last October, 2000 with Invasive Malignant Melanoma under the thumbnail. I had my thumb amputated. The sentinel nodes biopsy proved negative. I'm 49 years old and life has been good. Last week they found a 2cm. spot on my liver. I go in Tuesday for a needle biopsy. Of course the concern is that it may have metastasis. Would LOVE to talk to someone that has gone threw something semilar...or survivers of liver cancer.
Linda (BTEG4@msn.com)
Yukon, OK USA - Sunday, May 13, 2001 at 18:12:36 EDT
Cosmetics and Breast Cancer. It is truly tragic that so many women have been and
continue to be victimized and devastated by breast cancer. Unknown to most women
is the fact that breast cancer is essentially a preventable disease even among
those women with a family history of this disease. Because of a gross lack of
knowledge or willful blindness, most women appear to be unaware of the fact that
many of their daily cosmetics contain a variety of carcinogens. Alcohol is one
of the known causes of invasive breast cancer. Alcohol is also the main ingredient
in perfumes, fragrances, hair sprays, astringents and many other personal care
products. These products are in widespread use by girls and women. When applied
to human skin, alcohol and many other cosmetic carcinogens are absorbed into the
bloodstream within seconds. In recognition of the fact that alcohol may pose a
potential health risk, even the cosmetic, fragrance and toiletry industries have
placed the use of alcohol in their products under a self-imposed review. A study
showed that chemical contaminants, including ingredients from perfumes, are present
in breast milk. Some of these contaminants are carcinogenic in humans. Breast-feeding
mothers pass on these carcinogens to their babies.
In what appears to be a clear
conflict of interest because of a profit motive, many cancer treatment facilities
in many parts of world routinely distribute or facilitate the distribution of
free cosmetics to breast cancer patients. Reportedly, some of the breast cancer
patients accept and consume these gifts in defiance of the age-old axiom, "there
are no free lunches." Women should take control of their lives and stop leaving
the primary prevention of breast cancer to profiteering breast health advocates.
NOTE: The medical information summarized herein was taken from mainstream medical
journals that are in the public domain or the Web site of the cosmetic industry.
For more related information and supporting medical references, please visit our
web site at www.CancerResearchAmerica.org
Dr. James Coleman (Dr.Coleman@CancerResearchAmerica.org)
Louisville, KY USA - Saturday, May 12, 2001 at 22:40:52 EDT
I lost my younger sister to cancer in January of this year. She had fought a six year battle with Non Hodgkins Lymphoma compounded with a secondary leukemia. We found out in April that my mother has breast cancer. Diagnosis is adenoid cystic carcinoma. Found this site while looking for information on this type cancer. Many of the entries are inspiring. Would appreciate any info on ACC.
Susan Newberry (susan_dgcc@hotmail.com)
GA USA - Tuesday, May 08, 2001 at 23:30:47 EDT
I am not a cancer suvivor, but my best friend (Franco) is and might be afflicted again. He is a brother I never had. He has been and done for me (and my wife) like no one in my family has. Nevertheless, I am very worried about him and I don't know what to do. He is a great provider and has a loving wife and three incredible kids and it hurts me to think if...??? What can I do?
DARIO (Anuak@lycos.com)
Miami Beach, FL USA - Monday, May 07, 2001 at 23:41:14 EDT
Hello- thanks for being here! My very active 78 year old mother, Barb, was recently diagnosed with ADENOCARCINOMA OF UNKNOWN PRIMARY. The trigger to diagnosis was pleural effusion. She ended up having a pleuridisis to remove all fluid and close up the pleural area so fluid cannot accumulate there (hopefully) again.
Previous tests of the fluid as well as more recent tests of the fluid confirmed adenocarcinoma. Many tests were done, CT, Bonescan, MRI of head, tumor markers etc, and lots for breast cancer as she is a 34 year survivor of a breast cancer radical. They totally ruled out breast cancer this time.
Tumor markers showed slight elevation in a few places but the most significant is a CA19-9 marker for pancreas of 699, with 35 being normal. The doc does not feel that is high enough to warrant diagnosis of pancreatic primary.
Upon doing the pleuradisis the lung doctor said there was lots of radiation scar tissue from the radical 34 years ago. Her lung will always be a bit less in capicity as well as recovery from the pleuradisis causes some lessened capacity, so she, Barbara, gets winded easily but seems to be slowly getting back to normal. She is very tiny (lost 30 lb this year- and she was not overweight before!) and appetite has been a problem, plus she was diagnosed with diabetes in the middle of all this!
The "prognosis" meeting told us that until there is a firm diagnosis, chemo would probably only make her sicker. For now we wait til it shows up somewhere else, which by then (he said most likely within 6 mos) it would require very agressive chemo, which most likely would be too invasive for her weakened state.
We did question the possibility of additional tests and hope to go to MD ANderson -- wondering if there are any recommendations as to specific doctors for ACUP there -- and hope to go there in early June.
We are trying to use this somewhat symptom-free time to organize her affairs and see loved ones. I'm trying to let go of the frustration of "know nothing, do nothing". I'll look forward to hearing from others who can relate.
I'm looking for recommendations on sites I should see and ways to quickly regain her weight before the cancer shows up again. Thanks much, Bonnie in SC re Barb in NC.
Bonnie Fenton (BonFenton@aol.com)
Greenville, SC USA - Monday, May 07, 2001 at 09:17:19 EDT
If anyone knows about PEMPHIGUS VULGARIS , please inform me at the address given below. My wife has it and I would like to know what treatment was used. please contact me with the Email address that given below.
Thank you, Jahangir
jahangir modavan (jmodavan@yahoo.com)
Tehran , IRAN - Monday, May 07, 2001 at 02:08:46 EDT
I was diagnoised with cervical cancer 2 years ago. and Have have had a couple surgeries. I had regular pap test and my results went from 1 to 5 in 11 months. I am doing ok right now but get checked regularly. The cancer was out of bounds for any laser surgeries. I have done great for 2 years.
Terri (Zahahra@Yahoo.com)
Springfield, Mo USA - Saturday, May 05, 2001 at 02:48:48 EDT
I am a 23 year old. I have survied Hodgskins Disease so far. I was diagnosed when I was 20 and went through 6 months of chemo. I was a trooper, no side effects, no emotional breakdowns, nothing. But now it is catching up with me. I need some feedback from other cancer survivors. I have a lot of friends getting married and having children. I am scared to death to do any of those. What happens when I get in one of those situations and it comes back. If any one has delt with this please email me. I am having guiltly feelings about surviving and what to do with my life personally.
Congradulations to everyone that is on the road to beating this!!
Kristie Foust (froggie395@aol.com)
Knoxville, TN USA - Wednesday, May 02, 2001 at 22:40:29 EDT
We now know the source was the Colon. In 2 weeks the cancer spread to both lobes of the lungs. On Ash Wednesday (Feb. 28th) he was given 3 weeks to live. It has been 9 weeks since that time, he is still alive and he is fighting for his life, is in his 3rd round of 5-FU chemo, and I am falling apart watching the decline. ANY MIRACLES OUT THERE?
Bonnie Burroughs (ipinc@erols.com)
Fairfax, VS USA - Wednesday, May 02, 2001 at 22:05:04 EDT
I WAS DIAGNOSED WITH STAGE IIB CERVCAL CANCER IN SEPT. 2000 HAD SURGERY IN OCT. BUT HAVE NOT STARTED TREATMENT DUE TO LACK OF INSURANCE AND INCOME. AM LOOKING FOR INFO REGARDING CLININCAL STUDIES BEING DONE OR DRS. WILLING TO START TREATMENT WITH NO MONEY UPFRONT. I WAS DENIED BY SSA FOR DISABILITY THO I AM APPEALING . I AM 48 AND HAVE WORKED ALL MY LIFE . ITS BEEN SEVEN MONTHS SINCE MY SURGERY AND I AM SACRED TO DEATH. ANY HELP WOULD GREATLY BE APPRIECIATED THANK YOU & GOD BLESS YOU ALL.
CELIA OHR (samceceb@aol.com)
LAS VEGAS, NV USA - Tuesday, May 01, 2001 at 14:07:31 EDT
Hi everyone! First off let me say that these survivor web sites are the greatest source of information. I have a friend, 44 year-old male that lives in Iowa that was diagnosed with Non-Hodgkin's Lymphoma Stage 4 Low Grade in January 99. He went through several regiments of different chemo & was in remission for 6 months. He started out with night sweats & swelling in his abdomen & neck. 5% cancer was also found in his bone marrow. During this chemo he was sick, lost all hair & was very fatiqued. In July, 2000 the cancer came back but changed to Non-Hodgkin's Lymphoma High Grade the fast growing kind. More chemo regiments, had to stop working, went on SSI, was very sick & mostly confined to house. Had fluid build-up in his right lung lining & fluid in his abdomen. Had to go to the hospital to have this drained many times. Went to MAYO Clinic in Rochester, MN in April 2000. Doctor there said if he got rid of the fluid & the tumors were shrunk he might be eligible for!
a new drug called Bexxar. They have had remarkable success rate with this drug. He changed the chemo & put him on the chemo drug Gemzar & the steriod, Solu-medrol. The tumors shrank instantly, but he was real irratable, did not sleep much but was able to get up and around again. Went into the hospital & underwent an operation where they drain the fluid from the lung lining & then inject a talc powder into the lining so that it could not fill up again. This also worked no more fluid. Went back to Rochester, his blood levels were still low so we were sent home to see if they would go back up. We go back in a few weeks for a ct, biopsty & spinal tap to see how much cancer is in his bone marrow. If all goes well then he should get the dose of Bexxar. We are sure praying that everything will be OK so that he can. All of my research says only great things about this drug.
I would love to hear from other people that also have NHL so that I could find out what they have gone through. I feel that we need to find out as much as we can on our own & not just depend on the doctor's. If anyone would like more info on all of my research or would like to share their story please email me at Anet1125@aol.com.
Annette (Anet1125@aol.com)
Raymond, IA USA - Tuesday, May 01, 2001 at 03:49:57 EDT
i am a lung and uterine cancer survivor of 4 yrs
betty race (raceland7@hotmail.com)
omaha, ne USA - Monday, April 30, 2001 at 19:46:29 EDT
Well, Here goes. Five years ago at the age of 37 and single I was on a cruise with a few friends and I started losing my voice but I didn't think it was anything because I happen to be a person who uses his voice alot because I am in sales and I am also a Magician. So after the trip I went to an Ear Nose & Throat doctor at NYU Medical Canter in New York City and he put a camera in my nose and into my throat and saw a polyp on my right vocal cord. He thought it was nothing until the byopsy came back that I had Squamous Cell Carcenoma (The Big "C"). They told me that since it was stage 1 with 30 radiation treatments I would be cancer free. All I remember was sitting every day crying and counting down the days because in throat cancer radiation you have tremendous swallowing problems. All I remember my doctor saying is the pain is going to get worse before getting better. Not having a choice I made it through and was told to go for regular check ups every 3 months for the first 5!
years which is the critical part. Well, after 4 1/2 years later at the age of 41 in June of 2000 my doctor saw another tumor on my right vocal cord and again thought it was nothing until the biopsy came back to everyone suprise it was the "Big C" again. I and my family was shocked. The doctor at NYU Medical Center told me that the tumor was from being radiated which led to this secondary tumor. I had to have a Partial Laryngectomy which is the removal of one vocal cord and half my voice box. Since I already had radiation it wouldn't work again. I ended up in the greatest doctors hands at Sloan Kettering Hospital by the name of Dr.Jatin Shah. I was there for the surgery July 10, 2000 for 9 days. Boy was it hell. I had a feeding tube in my nose to my stomach but the hardest thing to get through was having a trach tube to breathe. All I remember was having to suction out my trach so I wouldn't get an infection in my lungs every 15 minutes for the first 3 days and not sleeping a !
wink. All I kept asking is "WHY ME". Well, I made it thanks to my mother being there every waking moment until it was time to sleep which was very little. I now have a low raspy hoarse Mafia voice which I have to live with. But at least I am O.K. for now. MY PRAYERS ARE OUT HERE FOR EVERYONE BECAUSE NO ONE KNOWS HOW IT FEELS UNLESS YOU ARE A SURVIVOR.
Scott (ImMrNagic@aol.com)
Bayside, NY USA - Sunday, April 29, 2001 at 18:57:49 EDT
I am the survivor of colon cancer I had my op 5 years ago and there is no sign of it returning I am now in good health and living a happy life There is life after cancer anyone who wants to contact me can do so at: Despina09@home.com
peter woodland (despina09@home.com)
livermore, CA United States - Saturday, April 28, 2001 at 18:54:36 EDT
Somebody write me, I am a cancer survivor I had two brain tumors. I am a Jesus freak and I want to talk
God bless, ED
ED Clearwater (edclear@mcleodusa.net)
Cowden, il USA - Friday, April 27, 2001 at 22:37:11 EDT
important list to check out
luisa barbato (xvisage@email.msn.com)
kirkland, WA USA - Friday, April 27, 2001 at 15:07:25 EDT
I am a 22 year old leukemia survivor (ALL) and have been in remission for 8 years!! Everything has been going great in terms of physical health except one thing- about 3 years ago my hair started really thinning a lot and is gradually getting worse. I underwent 3 years of chemo and 10 sessions of preventative radiation to my brain, and believe that it has to do with a combination of after effects from treatment and stress. If anyone else has experienced similar problems I'd love to hear from you!
Karen Williamson (karenwilliamson01@hotmail.com)
Whitby, On Canada - Saturday, April 21, 2001 at 20:19:08 EDT
My name is Ed Clearwater and I am 32 years old. In May 1996 I was diagnosed with a brain tumor called meguloblastoma, a brain tumor that normally young children get. I had surgery and radiation therapy over that summer. In May of 2000, it came back. This time I had a procedure called Gamma-Knife surgery and then 3 months of chemotherapy. I am currently waiting for results of my MRI to see if it has come back for a 3rd time.
This is very unusual for a man of my age, and the reoccurance even rarer. Please pray for me. I believe prayer works!
This is a neat site!
Ed Clearwater (edclear@mcleodusa.net)
Cowden, Il USA - Friday, April 20, 2001 at 19:46:30 EDT
any information regarding urinary tract infections will be appreciated. i understand that the only way you can get a true reading is get sample directly thru stoma, is that correct?
john (putterjack@hotmail.com)
crestview, fl USA - Friday, April 20, 2001 at 18:28:59 EDT
My mom will be 48 this may. she has 5 children, a beautiful 11 mo. grandaughter, a wonder family and fabulous friends. March 20th she got results back from an MRI she had done of her neck and back that showed hot spots in one of her lymph nodes and her T3 & T4. Coinsidently, on March 19th she found a lump in her breast. To make a long story short, we found out that she has 2 primaries, Non-small cell lung cancer and breast cancer. The breast is minor compared to what the lung cancer has done. It has spread to her bones, a lymph node in her neck and her liver to date. The primary site in her lung is about 3 1/2 - 4 inches deep. She is currently going thru radiation and will start chemo on April 30th. The doctor will be using Taxol & Carboplatin once every three weeks.
If anyone has any experiences or stories similar, please e-mail me. We hope and pray everyday that she will survive this, so if you are a survivor of this type of wide spread adenocarcinoma, please, i'd love to hear from you.
I'm very thankful to find site and excited to get my mom on line so that she can read your stories. I've found them very uplifting and positive. My prayers and thanks go out to all of you.
Erin Durbin (edurbin@aol.com)
Hamilton, NJ USA - Friday, April 20, 2001 at 09:23:42 EDT
Hi all,
I am not a cancer surviver, But i ahve had alot of relitives that have passed away from cancer. I am basically writing this on here because i need some help right away!!!! I am trying to educate people on colon cancer and i am trying to write a report on the diet of colon cancer survivers..........So if anyone here has had or does have colon cancer will you please email me on the way you eat, how your diet has affected your life, and what you physical health is like as of this point.........Thank you very, very much!!!! Like i said , people need to find out about this subject...Also i am a 16 yr. old male in 10th grade. and i need to know about this to ..........thank you all and god bless!!
Angelo Caputo (Ang970@hotmail.com)
Pittsburgh, Pa USA - Wednesday, April 18, 2001 at 13:57:08 EDT
I am a 2 time breast cancer survivor. My first bout was in 1986 when I was
28 years old,2 primary tumors with 6 positives nodes. That year I underwent double
mascetomys and a year of Chemo. I was on tamoxfin for 10 years when the MD took
me off (studies showed it caused other forms of cancer). In 1997 I had a reoccurance
on the chest wall muscle with 1 postive node and a spot on my spine. In 1998 I
underwent more chemo- a stem cell transplant ,radiation treatments to the chest,neck,and
spine. My last scans were great.I am writing to tell others dont ever give up..
My doctor gave me 5 years in 1986 (my son was 7 and my daughter was 5 ) I told
my MD death is NOT an option- do something!!!! I am blessed with a wierd since
of humor and I'm able to laugh at myself and the predicuments I get my self into
(like when I went swimming for the first time with my faultseys- and dove off
the board-- Had to do an underwater ballet while I tried to retreve my boobs from
my stomach area- Thank God I didnt jump in feet first they might have popped right
out of my suit.) My philosophy has always been "I may die from cancer-but I wont
let it KILL me" In the past 5 months I have started a new job(grocery clerk)-started
an online business(selling a puppy training leash that I designed and patented
while undergoing chemo (www.jumpnomore.com)
bought and fiqured out how to operate this computer.. So If I can do it SO CAN
YOU!!!THINK POSITIVE THOUGHTS, love to all Janet
Janet Keever (janet@gorge.net)
The Dalles, Or USA - Tuesday, April 17, 2001 at 02:09:05 EDT
I am not really a survivor but I am writting on behalf of Coast to coast for the cure. It is a run that was started by PJ Tannian and he is running 2700 miles from Key West FL to the Mackinac Bridge in Michigan. He is running to raise money and awareness for cancer research. PJ would love any support that he can get along the way. It would be great to have some company on a day run or to visit any cancer hospitals to talk with those who are fighting thier own battle. If you would like to know more about this run please e-mail me or look at the website www.coast2coast4cure.org Thank you for your support. Ann Walsh
Ann Walsh (ann.walsh@coast2coast4cure.org)
Grosse Point, MI USA - Monday, April 16, 2001 at 15:08:40 EDT
I was diagnosed with a rare cancer, Merkel Cell Carcinoma. I also had two lymp nodes remove in my groin area. I would appreciate any information and treatment of my disease. Mahalo.
Leo (LT_0446@yahoo.com)
Honolulu, HI USA - Friday, April 13, 2001 at 15:41:28 EDT
my mother has had a breast removed and she also has lung cancer and a spot on 1 rib that is cancerous.my husband myself and our daughter are taking care of my mother it is very hard on us also what ever we do she finds fault with ecpecially with what i do.i'am looking for a support group for us to help us deal with this a little bit better and so we won't get mad at her very often.also i need good recipes to make for her any advice will be gladley needed i will answer all email coming to me thank you very much
miracle dunkleberger (tazeslady@hotmail.com)
mtn view, mo USA - Thursday, April 12, 2001 at 14:59:42 EDT
I have an unusual request. My natural mother, at 71 yrs old has just had most of her bowel removed due to cancer. She is at home and it does not look good. I am wondering if readers would be willing to drop her a get well card by regular mail to encourage and uplift her. I have done this when my sister-inlaw was gravely ill and she recieved cards from all over the world. She was not only comforted...but gained hope! My natural mother's name is Kay Deslaurier and her address is 5253 Ontario Ave, Niagara Falls, Ontario Canada L2E 3R7 Thank you, Geri.
Geri Klingbile (gklingbile@home.com)<br>
Windsor, On Canada - Thursday, April 12, 2001 at 01:46:39 EDT
Survived Synovial Sarcoma (Bone Cancer) - recurrence 6x's. In remission since 1989!!
Nancy Arias (nancyarias@gci.net)
Anchorage, AK USA - Wednesday, April 11, 2001 at 22:57:19 EDT
I had a hysterectomy in Jan. of 2000. I was diagnosed with carcenomia insitu of the cervix the day before Thanksgiving of 99. I was lucky enough to have a great doctor. As soon as the pap came back abnormal he immediatley did a biopsy instead of a 2nd pap so it was caught early. I have had 2 paps since and both have been normal. I am thankful everyday that I survived. My Grandmother and her mother both died from cervical cancer. My prayers are with all of you.
PAULA S. JACKSON (rjalj@juno.com)
NORMAN, OK United States - Wednesday, April 11, 2001 at 15:07:20 EDT
Hi There, it's Lorraine "Lori" Robb again, that very lucky and happy lady from Edmonton, Canada.
Well, I have exceeded my 5 year remission from colon cancer and continue to do well. I am still on IV (broviac) and will probably have to be this way for the rest of my life, but we adapt to challenges, right? Of course we do. I just move a little slower than I did when healthy, but I've been back to feeling my same old happy self for ages.
I had the opportunity to participate in a dissertation with Kristine Davison Allcroft, MA who is with the Fielding Institute and a Doctoral Candidate. Her dissertation is on people who have survived or been in remission for five years or more from Dukes'B/Stage II or Dukes'C/Stage III advanced colon cancer.
She has sent out an invitation for advanced colon cancer patients who are in this category. I volunteered. I can assure you it is very painless, Kris is very easy to get along with, and will do whatever she can to put you at your ease. She will send you a package to complete which will explain things to you, and you answer some questions. She will then have two phone interviews with you and, well as I said, she made me feel so comfortable it was like talking to a friend.
If there are any of you out there who have survived advanced colon cancer please contact her, and the fastest way is through email at k.davisonallcroft@worldnet.att.net. Please consider this, as I feel anything we can do to make it easier for others in our position should be done. This will all be done very confidentially, so you needn't worry about any cranks trying to contact you or receiving any spam mail. If we help her, maybe what we do will help others down the road.
I originally submitted my info to Cancer-Survivors Guestbook either June or July 1998 and have sent in maybe one or 2 blurbs on how i was progressing. My doctors gave me the thumbs up on being a survivor December 15, 2000.
So I'll close off by saying once more --- A Very Lucky and Happy Lady in Canada.
As Ever!
Lori Robb
Lorraine M. Robb (lorrrobb@yahoo.com)
Edmonton, AB Canada - Monday, April 09, 2001 at 20:11:29 EDT
Just looking at this sight has given me a breath of fresh air. Saturday my husband was given a death sentence - that's right we're really mad. He was told he had tonsil cancer T3 and a 30% chance of living for 5 years. Today we received the results from the biopsy and things have changed. It's now adenocarconoma. We have no idea what that is. What that means. Is it better - is it worse - nothing. He's scared to death - our 4 year anniversary is this month and if anyone could tell us anything and some good news we could get through this not only for us but the family and our 4 year old son too - who just adores his dad and my husband needs something to fight this...he wants to see Dallas grow up to be a young man. any help - God bless everybody who is on this site and keep fighting....
Tara Doyle (tdoyle@sunrivertelecom.com)
La Pine, OR USA - Monday, April 09, 2001 at 19:46:33 EDT
As a doctoral candidate in clinical psychology at the Fielding Institute of Santa Barbara, California, I am conducting my dissertation investigating the personal constructs of people who have experienced remission from Dukes' B /Stage II, Dukes' C /Stage III and Dukes' D /Stage IV colon cancer for five years or more. For the purposes of this study, I am defining remission as being free of cancer and metastasis. Duke's B or Stage II colon cancer describes cancer of the colon that has spread to surrounding tissues, but has not spread to local lymph nodes and has not spread to any distant organs. Dukes' C or Stage III colon cancer describes colon cancer that goes through the colon tissue and surrounding muscle and directly invades other organs or lymph nodes close to the colon, but has not metastasized to distal areas of the body. Dukes' D or Stage IV colon cancer describes colon cancer that has metastasized to distal organs.
I would welcome participation by anyone who meets one of the above definitions and who is at least 18 years of age. If you or someone you know is willing to participate in this project, please forward your contacting information to me (name, address, email address, phone#) and I will send you an information packet.
Thank you in advance for your help. If you have any questions, please feel free to contact me at (609) 239-1497.
Warmly,
Kristine Allcroft, MA
Ph.D. Candidate
Joan Read, Ph.D., Dissertation Supervisor
The Fielding Institute
2112 Santa Barbara Street
Santa Barbara, CA 93105
(404) 364-0893
Kristine Allcroft, MA
PO Box 158
Beverly, NJ 08010
(609) 239-1497
Kristine Allcroft, MA (k.davisonallcroft@worldnet.att.net)
Beverly, NJ USA - Monday, April 09, 2001 at 18:14:16 EDT
I was Diagnosed with breast cancer (Infiltrating ductal carcinoma-Stage2) in Sept 98 at the age of 38. My whole world came to a sudden stop....I was affaid....shocked....clueless about the disease and felt alone. As I began reading up on breast cancer I became more aware of what I was about to face and I felt like I was somewhat in control. Therapy was difficult....now I support people going through treatment and realize that this was my calling. Breast cancer has changed me for the better and I thank God for giving me another chance at life. Would love to hear from other survivors. Regards, Sandra
Sandra (Sandradee31@hotmail.com)
Montreal, Canada - Sunday, April 08, 2001 at 19:01:47 EDT
Non Hodgkins Lymphoma, Eight months in remission!
J Kortko (2sweet@sympatico.ca)
Toronto, on Canada - Friday, April 06, 2001 at 23:42:58 EDT
My best friend was told this week by the doctors of the Academic University Hospital that he has pancrias cancer and that there is no operation, chemo or ohter treatment possible
Please if anyone how reads this does have any idea, please inform me on my Email. I am gratefull for every suggestion.
thank you in advance.
Hans Heideveld (heidenstan@planet.nl)
Groningen, Holland - Friday, April 06, 2001 at 11:07:01 EDT
Has key scientific evidence to document carcinogens in cosmetics and other everyday carcinogens as one of the major causes of breast cancer and fatal breast cancer.
Information gained from our studies will be used to help girls and women make informed choices. Our 501(c)(3) nonprofit organization is seeking people of goodwill to raise funds to help fund these studies.
Dr. James Coleman (Dr.Coleman@CancerResearchAmerica.org)
Louisville, KY USA - Friday, April 06, 2001 at 00:16:24 EDT
I was diagnosed on 12/2/01 with Filicula Lymphoma, have had one cycle of chemo and started 2nd yesterday. have a wonderful specialist and also Day Unit Staff, and importantly family. not curable today but who knows, I am surrounded by angels at the moment.
Evalyn (evcrathern1@austarnet.com.au)
Townsville, Ql Australia - Thursday, April 05, 2001 at 04:46:33 EDT
My daughter is a 7 year survivor of ALL. She relapsed within her first year of treatment and had to do radation and intense chemo. Because of the treatments she has learning disabilities, I was wondering if anyon has gone through something similiar?
Dawna Borthwick (utopiamonster@hotmail.com)
Utopia, NB Canada - Wednesday, April 04, 2001 at 23:19:17 EDT
Diagnosed w/bc 2/00, had rad 3 sessions then mas. 6/00, with rad again for 4 sessions.- last one in 12/00. Check ups all clear as of 4/01. God and my angels are watching over me.
Anne H. Juhasz (JuhaszFamily@aol.com)
Lorain, Oh USA - Wednesday, April 04, 2001 at 22:23:36 EDT
i am 36 yrs old and am a breast cancer surviver.i amhaving problems from the chemo, would like to speak to other survivors. thank you tania shands.
tania d shandsnone (sumrall@bootheel.net)
kennett, mo USA - Wednesday, April 04, 2001 at 13:03:16 EDT
I would like to communicate with survivors of breast cancer and cancer-free women about finding the causes of this ravaging disease. I am about teaching women how to prevent a
recurrence or a first occurrence of this disease. Never in medical history has a disease ever been eradicated without finding the causes first. Please e-mail me.
Dr. James Coleman (Dr.Coleman@CancerResearchAmerica.org)
Louisville, KY USA - Wednesday, April 04, 2001 at 00:39:15 EDT
I need Information on Urostomy pouch alternatives
Gene Seddon (Gene@PBC-Online.com)
rancho cucamonga, ca USA - Tuesday, April 03, 2001 at 14:48:23 EDT
breast cancer survivor so far!
Teresa Puett (xavier@ccrtc.com)
greencastle, In USA - Monday, April 02, 2001 at 23:11:43 EDT
I was recently diagnosed with adenocarcinoma of the soft palate. A biopsy was done that originally showed noncancerous, but after the growth was removed it was found to be cancerous. The doctor wants to do surgery to remove the tumor and follow up with radiation. I am concerned with side effects of the surgery and do not plan on having the radiation. I would love to hear from anyone else who has had this surgery. Please email me at tlhorve@home.com
Linda (tlhorve@home.com)
Flagstaff, az USA - Monday, April 02, 2001 at 16:44:15 EDT
my cancer wasn't that bad, but for a 16 year old (well 15 at the time) it was scary!! i had thyroid cancer and i had to have surgery to remove it.
Shel (shel_frogs@hotmail.com)
Fond du Lac, WI USA - Monday, April 02, 2001 at 15:20:46 EDT
My sister-Mary Jo Meineker just lost her life (March 24, 2001)not to cancer but the cure itself. She was diagnosed with hodgkins-Lpyhomia in september 2000 and underwent chemo for almost 6 months. She was always one to jump before looking and therefore trusted in her doctor's to do the right thing. She had a bad reaction to one of the chemo drugs - bleomycin. This drug destroyed the tissue in her lungs and therefore was put on a resporator for 3 weeks until finally her body could not fight any longer and she past away. I just want to warn everyone of you out there KNOW WHAT YOU ARE DOING AND TAKING WHEN IT COMES TO YOUR TREATMENT!!! Be sure to mention any side effects to your doctor and if you do not feel right about something it is probably a sign that you should stop using that type of treatment. I hope no one ever has to suffer the way my sister did and I hope by posting this I can save someone else's life. May God bless you all as you or a family member go through t!
his terrible disease and maybe one day we may all live without the fear of cancer.
Kelly Smith (sqkclean@aol.com)
Lilburn, Ga USA - Monday, April 02, 2001 at 13:29:24 EDT
My husband 54, and I were both diagnosed with Cancer on Valentines Day 2001. This is not a joke! I had just turned 50. (see what happens???). Our test were completed three weeks apart, it just happened they came in a few hours apart on Feb 14th. Strange, but true! Hubby had a fast growing Mole (Melanoma) on his arm, and had it removed, the pathology report led to surgery two days after one of my surgeries, on 28 Mar w/two lymph nodes traced and removed (testing negative). He is part of a trial/protocol and will be tracked for life. They were going to put him on Interfiron, but have now changed their mind. He has a large incision on his arm, quite a large area of tissue/tumor was removed. I was diagnosed with Invasive Ductal Carcinoma in one breast, had surgeries on 2nd and 26th of March, with 14 lymph nodes removed, 5 positive, 1 node an inch in circumference(Two nodes were actually tumors). They were unable to get a clear margin with the first surgery, so had to do a!
repeat. I have met my Oncologist and start Chemo on Apr 6th. I am a Stage IIB. I feel like I've been to hell and back already, but know there is more of that to come. I'm glad I found your site. I feel like I've just enrolled in Cancer 101!
I would love to hear from anyone! God Bless! ...Fawn
Fawn (Fawnatdawn_2000@yahoo.com)
North Pointe, USA - Sunday, April 01, 2001 at 06:30:35 EDT
HI, my name is Cheryl Grace. I was diagnosed with adenocarcenoma of the esophagus and stomach in Oct. of 2000. In November, I has surgery to remove my esophagus, part of my stomach, and my gall bladder. In December I started chemo, taking 5FU, once a month. In February I had 5 weeks of radiation. Right now I have 1 week of chemo left. The operation wasn't too bad, neither was the radiation. But the chemo has really gotten me down. I am 49 years old, and would love to hear from anyone else who's gone through this. God Bless you all.
Cheryl Grace (clgrlg80@aol.com)
Dillsburg, PA USA - Saturday, March 31, 2001 at 14:03:54 EST
My mother was diagnosed with adenocarcenoma of the left lung nine months ago. We are looking for treatment options. Surgery and ratiation are not an option. She is finishing her first treatment of chemotherapy. Any ideas?
Lynn (lynn.mclaughlin@sympatico.ca)
Windsor, On Canada - Friday, March 30, 2001 at 20:57:42 EST
My husband is still recooperating from throat cancer surgery of 7/99. This was his 2nd bout with throat cancer. His first taste of cancer was melanoma which was a mole on his arm which required skin grafting. Since 7/99 he's still unable to eat due to swallowing/choking difficulties. He's 46 yrs. old & still on a feeding tube. We're seeking swallowing difficulty research/info. to aid in his ability to eat again. This was his 2nd throat cancer surgery with skin grafts to rebuild the back of his throat with partial bk. of tongue removal. He's still unable to return to work. Through it all God has and still is so good amid this long and unexpected journey. We're forging ahead Asking, Seeking, Knocking for a possible cure for his eating restoration. We're thankful that he is able to talk again - though it's a challenge to understand him at times...and thank goodness no more "trach"! We look forward to hearing from your responses...Blessing to All who cancer touches.
Crackerjack (dstahl@wmvv.com)
Jackson, Ga USA - Friday, March 30, 2001 at 18:27:23 EST
If anyone you know has survived NON SMALL CELL LUNG CANCER, please inform me at the address given below. My husband has it and I would like to know what treatment
was used. Please forward to everyone on your contact list. From the bottom of my heart I thank you.
Thank you,
Divya Singh
Inform here :
SIEMENS
Siemens Information System Limited
#84, Keonics Electronics City
Hosur Road, Bangalore - 561 229
INDIA
Pradeep (pradeep@hotmail.com)
india - Friday, March 30, 2001 at 09:58:56 EST
I'm not really a survivor-Yet- I just found out I have esopagus cancer this afternoon 3/26/01.I checked in here to get some information.
Bob Le Clair (Tyronesbud@webtv.net)
Highland Park, Il USA - Thursday, March 29, 2001 at 22:57:19 EST
Hodgkin's Disease survivor! Still in remission.
Guille Parilla (ParvelMed@worldnet.att.net)
San Juan, PR Puerto Rico - Wednesday, March 28, 2001 at 19:47:59 EST
I looked thru the members bios and found it interesting. I was looking for someone who had esophageal cancer. I had it last May, had my esophagus removed and had to have about 20 dilatations to keep my throat open, so I could eat again. I am finally able to eat, but avoid meat, since it is very hard to eat. I lost 90 lbs in 4 months after my surgery and have kept it off but I want to lose more, but I eat a lot of dairy to compensate for the meat I don't get and it keeps me at the same weight. I want to email to someone like me. Is there anyone else out there that wants to write to me?
Linda M. Johnson (linda.johnson2@att.net)
Crystal, MN USA - Tuesday, March 27, 2001 at 21:38:11 EST
hi, my mom was diagnosed with pancreatic cancer a year ago. She is a fighter, but she is having problems, and no dr. will help with answers they play musical chairs with her. i was hoping someone may help who has gone threw this or is going threw this. she has swelling in left leg and left foot. can someone please help answer qustions.
kim robinson (smurfeet@naxs.net)
elizabethton, tn USA - Sunday, March 25, 2001 at 20:22:58 EST
My 2-year old niece, Kaitlyn,was diagnosed March 2001 with ALVEOLAR RHABDOMYOSARCOMA STAGE 4. It is predicted she will have chemo for 1 year. She has just had her 1st round. It has been difficult to find others who have gone through this. If anyone has had a similiar experience or any success stories please respond. We desperately need our spirits raised with a little hope from somebody!
Cathy (kreiselc@nttc.org)
Chicago, IL USA - Saturday, March 24, 2001 at 21:15:44 EST
Hello fellow survivors, my name is Sandra, I was diagnosed with infiltrating ductal carcinoma Stage 2 (no node involvement) Still worried it will sneak up on me again one day. I love to talk to people with same experiences. e-mail me or you can get me on ICQ#101071391
Regards, Sandra
Sandra (sandradee31@hotmail.com)
Montreal, CANADA - Saturday, March 24, 2001 at 00:27:44 EST
I was diagnosed (after many X-Rays, Upper GI X-Rays, Colin & Stomach Scopes) in Oct 2000, surgery (resection of the small intestine and lymph nodes removed (2 out of 3 where positive for Adenocarcinoma)) was Nov 2000, chemo started 11 Dec has had four (4) (Dec, Jan, Feb, Mar) sets so far (F5U & Leucovoin for five days each set). I got a copy of the pathology report (T-3, N-1, M-1 stage IV positive for Adenocarcinoma). I am 52,married (22 years), over all "Fair" health bad Knees & R wrist (Medical retirement 45% / VA 65% disability) height 6’ weigh 307lb. I work at Holloman AFB NM 88330 and live in Alamogordo NM 88310. Please e-mail with any information about Small Intestine Adenocarcinoma. I have read the PDQ, not much help.
Thomas Byers (thomas.byers@46tg.af.mil)
Holloman AFB, NM USA - Friday, March 23, 2001 at 10:56:50 EST
Mother, diagnosed, adeno-carcenoma 1995, DOD 1/16/97. Currently researching any exposure-related
causes. She was a non-smoker. No cancer history noted.
Randy Hood (rjhood@indy.net)
Trafalgar, IN USA - Tuesday, March 20, 2001 at 19:49:41 EST
I had what is called a whelms tumor. I was at stage 3 on the line of stage 4. I am a survivor of 14 years. I was two when diagnosed. I would Just like you to answer me this Question "wHY CAN'T I GIVE BLOOD BECAUSE I HAD CHEMOTHERAPY?" iF YOU KNOW jUST eMAIL ME.
Kyle Collins (Kyle_collins23@hotmail.com)
Amherst, WI USA - Tuesday, March 20, 2001 at 16:44:19 EST
Do you have any experience with using the marihuana to slow the symptoms of Hodgkin´s desease? I did find somewhere that it really helps. Thanks for your comments
Petr Jack (jezisek@post.cz)
Praha, Czech Rep. - Tuesday, March 20, 2001 at 14:40:57 EST
OK We've all been there, done that. Want to start accumulating data for a common ground. Open to questions, you would answer. No recorded data beyond questions. Age, disease, prior existense in family, areas lived in, dietary consumption, etc. . Please submit what you feel are valid questions. Also, please submit questions which are pertinent to surgery, chemo and radiation, so I can make-up a questionaire.
Caedwala (Caedwala@tampabay.rr.com)
Lutz, FL USA - Sunday, March 18, 2001 at 05:17:17 EST
I am a survivor of adrenal cortical carcinoma. I was stage one and did not need surgery. I would love to speak with someone who has had this type of cancer. I am cancer free for four years and celebrate life each day. My sister is an ovarian cancer survivor for the past two years. Good luck and good health to eveyone.
Karin Hess (ddaleone@aol.com)
University Heights, Oh USA - Saturday, March 17, 2001 at 17:23:50 EST
My father was diagnosed with stage IV lung cancer in September last year. He underwent five cemotherapy of gemcitabine and cisplatin. He recovered progressively, with the primary tumor reducing by about 75 per cent. However, over the past two weeks, after a blood tranfusion, his situation worsened. I am very worried and scared. I wish God will help him out for I love him so much.
Antoine So
USA - Saturday, March 17, 2001 at 12:05:40 EST
Well, it's me again. Although my father's illness of lung cancer is no easy hurdle in his life, I want to tell whoever reading this website that he's a great fighter and he has hopes all the time. For this strong will of his, I think God will have mercy of him and save him. He's a good man all his life and this is just a small test for him. He will get through it. I hope all of you who may have the tough diease or whose relatives may have it, will live your lives with optimism and hopes. It's strong will and hope that one requires to battle a tricky thing like lung cancer. There's always hope in this world.
antoine so
Hong Kong - Saturday, March 17, 2001 at 12:15:22 EST
My Mom has stomach (adenocarcinoma)cancer. In Nov. '99 she had most of her stomach removed and received aggressive chemotherapy for her condition.
Currently we found out that the cancer has come back and has spread to her colon, intestine and bowel. Is there any "last hope" trials,drugs etc. that anyone knows of that may help her condition. (She is vomiting quite a bit and is constantly hugry but can't keep food down).The doctors said that she is incurable and have sent her to palliative care. What can I do? We have not lost hope.
George Kroupa (george@terra-form.net)
Winnipeg, MB Canada - Saturday, March 17, 2001 at 08:25:30 EST
I was diagnosed with Cervical Cancer this week. I am waiting for my biopsy report. The Dr said I am beyond surgery. I will be starting radiation, possibly chemo therapy as soon as I get my report. I am terrified. I would love to hear from anyone who is a survivor or a current sufferer of Cervical Cancer. My heart goes out to you all. Positive thoughts and prayers.
- Nicole
Nicole (slystardust@hotmail.com)
Canada - Saturday, March 17, 2001 at 04:34:02 EST
My 13 y.o. daughter was diagnosed with acute lymphocytic leukemia in 1994, age 6. Did well after completing chemo of 2+ yrs,until 8 mo. after chemo was complete. Relapsed in the CNS (blood work a month prior was fine) in Jan 1997. Chemo again, with addition of radiation to the head and spine. She is still cancer free. I'm nterested in hearing from anyone with a similar story to find what possible long term effects you are having or suspect. Never give up and don't worry when on some days you get very scared or depressed. Just know that these days don't last forever. God doesn't give us more than we can handle but we do sometimes wonder why he trusts us so much!! Keep the faith. Linda, mother of Hillary
Linda Hansen (ldhansen@conpoint.com)
Norfolk, NE USA - Saturday, March 17, 2001 at 00:07:47 EST
My husband was diagnosed with Stage 4 cancer of the tongue which has mestasized into the lymph nodes. He had over 300 hours of chemo and 38 treatments of radiation. It will be a year on March 22. So far the doctors say it is a miracle that he is doing so well, but he complains of constant 24 hour back and upper chest pain. Is anyone familiar with this type of cancer that has gone through the radiation. somehow I feel that his pain is all related or is the cancer spreading. The doctor won't tell us much and won't comment on the back pain. At this point it puts us both under a lot of stress and wondering what is really going on. Let me know if you have any comments. Thanks so much.
Mary Terry (mlopez@trinity.edu)
San Antonio, TX USA - Friday, March 16, 2001 at 11:29:06 EST
I have mantle cell lymphoma..all of 2000 starting in march I have been under treatment..with abone marrow transplant from my brother in aug of 2000. I am currently in remission but my donor cells are falling. Doctors at Duke really do not know what that means yet. they just want to keep a close eye at this stage... it is now march 2001...have a few side effects. anyone with mantle cell please give me a shout....i pray for us all and our family.....
Gary Shaw (Laidlaw2@aol.com)
Raleigh, NC USA - Thursday, March 15, 2001 at 11:08:00 EST
just looking into this as resource. Was referred by an individual at support group who finds it to be of great solice. I am not sure how well I will be able to use this system but expect to learn alot. Keep open the lines of communication
barb (barbara.elias@cancer.org)
iowa city, ia USA - Thursday, March 15, 2001 at 10:25:15 EST
Christina is a bone cancer survivor of 7 years. Back in 1993 she was diaganosed with a rare form of bone cancer called leimyosarcoma. A tumor the size of a golf ball was removed from inside her left femur. Most of the bone in her left leg was replaced with a prothesis. A disease like devastates a family and for about 2 years Chrissy was recluse, very depressed and very alone. she lives in pain every day but living she is. For therapy she atated singing and well one thing lead to another and before we knew it she released a CD single " Whenever Angels Sing ". Combining her public speaking, singing performance and Cd sales she was able to raise $10 000.00(thats in Canadian funds eh! ). All funds raised went to cancer research. she continues her fundraising ways with a second CD " I wouln't Change a Single Day " with a portion of the sales going to cancer research.
For more info check her out at www.christinadoyle.com
christina doyle (gerry.doyle5@sympatico.ca)
richmond hill, on canada - Thursday, March 15, 2001 at 05:17:03 EST
I was diagnosed with non small cell lung cancer in june 2000.
john martin
USA - Wednesday, March 14, 2001 at 15:02:21 EST
a friend of mind is going though the fight on cancer he can't talk anymore except though the computer,he hasn't hasn't contacted any support groups, and is trying to do this on his own.He is really getting down.He really needs to hear for someone who is going though this !!!!!His e-mail address is keirick@hotmail.com His name is Rick Please help> Thanks
Rick ward (stormey45@hotmail.com)
springfield, Mo USA - Wednesday, March 14, 2001 at 13:39:17 EST
My husband was diagnosed in December, 2000 with chronic lymphocytic leukemia and low grade lymphoma. We would like to find anyone with similar diagnoses and anyone who is being treated with chemotherapy in pill form of Leukeron or Alkeran. Other names are Chlorambucil and Melphalan. He has a very high white count but after 2 months a CT scan showed the lymph nodes to be reducing in size. Our doctor said treatment is usually 6-12 months with pill form.
Windle Grigg (wegrigg@yahoo.com)
Paris, AR USA - Tuesday, March 13, 2001 at 23:17:05 EST
Hi, my brother just turned 49 and was just diagnosed with cancer of the esophegus last month. He is taking chemo (Taxol) and radiation too. he has 3 more weeks of this then they will do the surgery on him after 5 weeks...Anyone that has done this please contact me, I would really like to talk to you...His name is Dave and he's my very best friend.
Danny Samford (danny_samford@goodyear.com)
Houston, TX USA - Monday, March 12, 2001 at 12:13:40 EST
I really need some hope. My husband was diagnosed with colon cancer in March 2000. He under went surgery to remove a large cancerous tumor that had grown through the bowl. Nine lymph nodes were taken out and cancer was found in three of them. There was no metastisis to any other organs. He underwent 6 months of chemo therapy - 5-FU and leucovorin which ended in December. His CEA before surgery was 3.1, after surgery it was 5.0. During his chemo, the CEA fluctuated between 3.4 and 4.8. His CT scans were clean. During his last month of chemo his CEA was back up to 4.7. The doctor waited until the end of January '01 to do another CEA and at that time it had gone up to 16. I was terrified. We went to another doctor last week and my husband started on a chemo again, this time with CPT-11 added to the standard regime. At the same time, the oncologist did a PSA for prostate cancer and it came back with 5.2. We went to a urologist and he found a lump in the prostate and now we are wai!
ting for the biopsy reports. It doesn't sound good. This is has been an absolutely horrible year and I would appreciate it if there is any one out there who has some good news, some hope. I would love to hear from you. Thanks!
CVezza (tikitoo@hotmail.com)
NJ USA - Monday, March 12, 2001 at 14:30:38 EST
I have recently been diagnosed with adenocarcinoma of unknown primary. no tests have found the primary. Will begin chemotherapy using carboplatin and taxol. I hope for the best.
Marilee Cramer (mc67871@hotmail.com)
Scott City, KS USA - Monday, March 12, 2001 at 13:20:46 EST
I just discovered this web site and was inspired and moved by the courageous stories. I am a breast cancer survivor; diagnosed in 1989 and had a partial mastectomy. When I retired last year I decided I wanted to do something special in thanks for my health and also to celebrate my 60th birthday this April. I needed a challenge and I found one...registered to walk in the 60 mile Avon 3-Day Breast Cancer walk to be held in Seattle August 10-12. I'm training now...up to walking 7-8 miles at a clip. In order to take part in the actual walk I must raise at least $2000 in pledges by early July. My hope is that some of you who are cancer survivors or are fighting cancer right now might be willing to help sponsor my walk. Pledges are tax deductible and help to provide low cost mammograms, support for breast cancer patients and subsidized treatment. I understand that grants are also available to provide wigs to chemotherapy patients. who cannot afford them. If you are able to make a pledge, please e-mail me at sigold@att.net and I will send you a pledge form which you can complete and return directly to the sponsoring organization. More information about the walk is on the pledge form. I am very excited about this experience and have already met many other women whose lives have been touched by breast cancer. Thanks for listening and thanks in advance for your support.
Sheila Goldberg (sigold@att.net)
Seattle, WA USA - Sunday, March 11, 2001 at 14:58:53 EST
Hi, My mother was diagnosed with ovarian cancer two years ago. She has been in remission in 1 1/2 year. Now, her lymph nodes near her aorta have started to grow. They did a biopsi and she must start treatment again. I would like to give her some encouraging stories. You who have, please write here or send me an E-mail so I can show my mother. That would mean a lot. Thankyou.
Paulina (sendpaulina@hotmail.com)
- Sunday, March 11, 2001 at 04:56:00 EST
I love the website-just found it.I was diagnosed a year ago with small cell lung cancer.Cancer survivors NEED support from others who are going through the same problems.
Bettina (bettinafletcher@msn.com)
Eudora, AR USA - Saturday, March 10, 2001 at 21:58:46 EST
I decide to check this site out. My mom was just diagnosis with esophgeal cancer. So I was curious about the signs. I have learned alot of interesting things about esophgeal cancer, and she had all the warning signs. I guess I did not want to believe that she has esophgeal cancer. She is currently taking radiation treatment now.I don't know if the doctors are going to do chemo after the radiation.Well for one thing I am not giving up hope yet. I love my mom very much. I have seen a lot of terminally ill people, because thats my job. I take care of patients who are terminally ill, and I do get very attach to them. I don't want them to pass away. I have been doing this job for five years, its my calling to help take care of the terminally ill, because I'm there with them till the end. I know I will be visiting this site again. So if theres anybody out there that wants to talk, please let me know. Cause I know what you are going thru. Its very hard to learn that your loved one is terminally ill. All you can do is to be there for them, and help in any way that you can.
Martha (martha42@webtv.net)
Mound ity, Il USA - Friday, March 09, 2001 at 22:37:59 EST
My brother has adenocarsinoma of the esopogial that has metas to the liver. Looking for someone who has been thru this or is going thru it.
Maureen Durbin (jhdurbin@webtv.net)
LaGrange, Ky USA - Friday, March 09, 2001 at 18:24:35 EST
Hello, I came across this web page while researching information on primary central nervous system lymphomia. My grandmother was just diagnosed last week. My whole family is in shock. She was taken to the emergency room with signs of a stroke. The next thing we know she is having surgery to remove one of two brain tumors. The surgeon led us to believe that this was treatable. Now we are not so sure. I need any information on this disease and treatments. We want to help her make a very educated decision about her treatments. anything would be greatly appreciated.
Angie Stadinger (stadinger@centurytel.net)
Adamsville, TN USA - Friday, March 09, 2001 at 17:47:00 EST
Wrote a few years back. I am now a 5 year cervical cancer survivor! Life is great!
Tracey
Sydney, NS Australia - Friday, March 09, 2001 at 07:26:35 EST
I just found this site & wish everyone well.
As of July 2000 I became a survivor of Hodgkins Disease. In July of '95, at age 44, I was diagnosed at Stage 2a. I had 12 chemos every other week that took almost 6 months. After a rest I had 20 days of radiation. My family & friends were my strength. They celebrated with me as I counted how my chemos or days of radiation I had left. As a survivor I try to remember to celebrate each day. I often hear people who dread getting older, but I just celebrated my 50th birthday. I'm glad to be alive, even with my aches & pains! Best wishes to all those going through treatments & to those who take care of them!
Judy B (ecj2@home.com)
NJ USA - Thursday, March 08, 2001 at 23:02:36 EST
Hello! My husband has stomach cancer and has had is stomach removed. I am so pleased to have found this page. I know that this is the place for us to find information and support. Please pass along any information that you think we may need. This is such a new part of our lives that I know we do not even know the right questions to ask. Thank you!
renee smith (renee-s@mindspring.com)
Jackson, al USA - Thursday, March 08, 2001 at 19:15:21 EST
I am a 22 year old male that was diagnosed with non-hodgkins type large cell lymphoma in October of 1996. Upon diagnosis my physician at the time gave me 6 months to live, provided I follow through with chemo and intense radiation treatments. When I informed him that I had no desire to destroy my immune system any further by subjecting my body to these toxic "treatments", he called me ignorant and suggested I visit a sperm bank if I wanted to carry on my family name because I was going to die very soon. It was at that moment that I lost faith in american medicine (regarding cancer treatment). My outlook has always been that I would rather live 20 years happily and completely fulfilled than live 80 miserable years because I had to change my lifestyle, so I accepted death. While I accepted this unfortunate fate, my mother refused to. She dedicated every free moment she had to finding an alternative, a happy medium so to speak, and it paid off. In January of 1997 I began an alternative, natural treatment that is located outside of the U.S. Prior to making this trip I consulted many american doctors who STRONGLY urged me not to follow through with this treatment, but somehow I felt it (alternative treatment) was right. I arrived in Mexico early January With 5 malignant tumors located on the back of my neck. I was scheduled for roughly 28 treatments, so with a little faith, determination and hope, I dove into this, well, for lack of a better word, miracle. 23 days into my treatment ALL of my existing tumors were gone. Not only that but I felt 10 times healthier than I ever had. No loss of hair, no weakened immune system and most of all no toxic painful treatments. MIRACLE! Please don't let these american doctors lead you to believe something that is entirely untrue, that there is no alternative, because there is, and it is easier than you have ever imagined. I'm not trying to knock our country's medical organizations, for some, chemo and radiation have resulted in complete remission, but for most pain, misery and eventually death. We must look at this situation from american medicine's point of view, that being "there is no money in a cure", they want to heal us just enough to insure we have to keep coming back to pay for treatment until our bodies eventually give in to the poisons they have administered. This is your life, don't be forced into a situation that you may be unsure of due to lack of knowledge or misleading information. If you have any questions regarding this treatment, or if I can help in any way please feel free to drop me an e-mail at lteach@futureone.com . I would also appreciate any info regarding treatments of cancer, and opinions of my point of view on this situation, good or bad. Good luck and God bless.
Larry1620 (lteach@futureone.com)
Prescott, AZ USA - Thursday, March 08, 2001 at 18:26:13 EST
this is a really neat site!
Tiffani Cookey (tiffanicooksey@hotmail.com)
Mt Pleasant, TX USA - Thursday, March 08, 2001 at 15:32:15 EST
My mother, Patrena Lenora Graham passed away on Jan. 27, 2001. The cause of death was of inanition, for the last month that she was living, and metastatic squamous cell cascinoma of cervix. She had that for the past six months. She was 39 yeard of age. I have two reasons for posting this up: 1) to find out what kind of cancer she had (an explanation of the cancer), and 2) to inform you all of our tragedy here. I would appreciate it if someone please respond to my mesage; my email address is at the bottom of this page. I appreciate your interest for both reading this, and also helping me to understand the kind of cancer that she had.
SINCERELY, ANTONIO L. GRAHAM
Antonio L. Graham (alg1314@triad.rr.com)
GREENSBORO, NC USA - Thursday, March 08, 2001 at 02:57:03 EST
Today, I completed chemo-radiation for esophageal and stomach cancer. Because there seem to be few survivors of this type of cancer, I assume the survival rate is not red hot. I will be having the operation on the esphagus and stomach in 5-6 weeks, so would appreciate any information from those having experienced this. Also, how does one drink 3-4 quarts of liquid daily to prevent kidney damage? Thanks, Delmer
Delmer (careshare@onemain.com)
Gridley, CA USA - Tuesday, March 06, 2001 at 01:33:44 EST
Looking for treatment information and best doctors/hospitals for treating metasticized endometrial adeno papillary carcinoma. Friend just received diagnosis of return of cancer on 3/1/01 now located in the lung area.
Thanks for any help you can provide.
Connie Chance (connie.chance@sweetwater.tstc.edu)
Sweetwater, TX USA - Sunday, March 04, 2001 at 16:55:50 EST
i am free of cancer 5 years now had blader, colon. overin cancernow i am in remisson i am still fighting other battles every day thank you god for being i my life.
wanda gardner (gwg@pe.net)
banning, ca USA - Saturday, March 03, 2001 at 01:12:25 EST
I am a survivor of Osteogenic Sarcoma. I was diagnosed in July 1983 at teh age of 13. I had a metastasis to my right lung in February 1986. I had a year of chemotherapy from September 1983 to September 1984. I would love to correspond with anyone who now has or has had this type of cancer. I have been cancer free since March 1986.
Diane E. Smith (dsmith191@hotmail.com)
Gordon, Pa USA - Friday, March 02, 2001 at 13:43:04 EST
Anyone heard of or know someone with nasalpharengeal carsenoma email me with resources and information.
tracie norman (tracie_norman@hotmail.com)
chicago, IL USA - Thursday, March 01, 2001 at 13:51:09 EST
Hello,
Three weeks ago my sister was diagnosed with Renal Cell Carcinoma. Since her diagnosis she has received radiation treatment and is receiving other medications to help with the pain and other side affects. I don't know too much about this form of cancer or any other cancer however the cancer has metasisized to other parts of her body.
They found it along her spine, her right leg, a few spots on her lung, and liver. She will be released from the hospital today and wants my family and I to sit with her and discuss her treatment. She is very selective about what she says as I believe she is trying make it easier for us to handle. From my reading, I believe she is in stage 4 but I have not had this confirmed.
I work during the day and most of the times the doctors are not around. When I am around and the doctors are in as well, she gets upset when I or any other family member asks questions. My sister is only 34 and has always been a very active person. At this point I really don't know what's going on, or what to do. The doctors took a biospy. I believe they are trying to determine what caused the cancer.
My sister is a smoker. However, they took samples to determine if she has the Von Hippel Landau disease which would also increase her risk of cancer. If she does have this disease then myself, my other sister and family members will be advised to get screenings. I really don't know what to do. I feel helpless. I try to be positive but its scary especially when you have any answers. I really want answers but its hard
especially when my sister gets upset when we ask questions. Please email me if you have any form of advice, whether treatment options, informative websites, or even for support. Please pray for my sister and my family!!! Thank you and God Bless..
Yvette
Yvette Burgess (Divavette1@aol.com)
Philadelphia, PA USA - Thursday, March 01, 2001 at 12:52:44 EST
My mother was just diagnosed with breast cancer with lymph node involovement. She says she wants to have the breast removed but the doctor said with chemo and radiation she has just as good a chance of getting rid of the cancer but we are afraid of the cancer recurring in the breast if it's not removed. He said these days they try to save the breast, but if she has the breast removed she won't have to go through radiation just chemo. I would like to hear opinions from people that have had breast cancer and what their choice would be, to remove the breast (which mom has pretty much decided she wants to do) and just do chemo or leave the breast and do radiation and chemo. Oh by the way my mother is 57, so appearance isn't an issue with her. please e-mail me.
Marie (Sleeplessnrkfd@cs.com)
Rockford, Il USA - Wednesday, February 28, 2001 at 17:30:36 EST
I just found your web site and was reading some of the articles left here and sounds to be some great sucess stories. My mother was diagonased with bone marrow, lymphomia cancer and brain cancer on 1/15/2000. Since being diagonased she has had 21 treatments of radiation and 6 treatments of chemo. The doctors have told me that she has 3 months to a year. I have no come to deals with it myself yet as I am sure she has not. If anyone has had the experience with these types cancer please let me have your views of recovery.
Sherri Whited (swhited@cafes.net)
Manchester, TN USA - Wednesday, February 28, 2001 at 00:59:19 EST
Hello, I had surgery on Aug. 14, what was to be for ovarian cancer and a biopsy of the adrenal gland. After many test was told i had adenocarcinoma stage IV. would like to know if there is anyone with the same type of cancer who has survived this type of cancer. thank you
Licet Medina (Medina_L@Konica.com)
Oceanside, NY USA - Tuesday, February 27, 2001 at 17:18:01 EST
Searching for information and referrals for Adenoid Cystic Carcinoma cancer.
Diana (kimhieb@daktel.com)
ND USA - Tuesday, February 27, 2001 at 15:00:56 EST
22 year Ewings Sarcoma survivor
Therese Markiewicz (jalapeppa@hotmail.com)
milwaukee, wi USA - Sunday, February 25, 2001 at 01:44:02 EST
Hello, last week my Mother was diagnosed with Endometrial Carcinoma and they told her it was a serous carcinoma. If there are any survivors who could email her with POSITIVE NEWS then please send her an email at Landi@webtv.net
Robert (robertw183@home.com)
Phila, PA USA - Saturday, February 24, 2001 at 12:21:25 EST
She was a 28 Year Survivor
Ann Pawelski had been seen by Reading Hospital oncologists(Berks Hemotology-Oncology) since 1990 because of previous cancers in 1972(Ovarian) and 1984(Rectal). She had no problems with her previous diseases because of the fine medical help she received in San Diego, CA. However, it was our family doctor, William Santoro that found her first metastatic occurrance to her lung in 1996(not the oncologists at Reading Hospital). That cancer was surgically resected by Dr. Carolyn Dreissler at Fox Chase Cancer Center with amazing success. Dr. Dreissler stated that she was 100% successful and felt Ann did not need any treatment with chemo-therapy. She left us with the knowledge that the second place that an ovarian metastasis could occur would be the brain and/or the spine. We let a Dr. Norman Rosenblum, a Gynecologic Oncologist at Reading Hospital convince us that Ann needed Chemotherapy. It was the hit fast, hit hard type of therapy of Taxol and Cisplatin(numerous neuroligical complications may result from these novel chemotherapeutic drugs). Ann almost didn't make it through. She could only receive five of the six intended treatments. We met many other patients that didn't make it. It was our family doctor, William Santoro that found her second metastatic occurrance to her cerebellum in 1998(not the oncologists at Reading Hospital). During the eight years Ann was seeing the oncologists at Reading Hospital, just what were they doing? One noticable procedure that Berks Hemotology-Oncology had with seeing their patients was that the patient got to see a different oncologist on each visit to the office(musical doctors like musical chairs?). I never understood why?
In July, 1998 when we found out that Ann had a 3.5cm tumor(via unhanced MRI), I called the office of Berks Hemotology-Oncology to tell them Ann had a tumor in her cerebellum. The office said,"what do you want us to to about it"? I said,"excuse me, you are oncologists"! They said,"we are not that kind of oncologists, we are involved with giving patients chemo-therapy". I was speechless! Dr. Santoro's office managed to get an appointment with neuro-surgeon Dr. Truex at Reading Hospital. It wasn't for four weeks. A Dr. Druzak, a diagnostic radiologist at Reading Hospital that performed an angiogram on Ann(to see how her vascular system was in her brain) told us that the tumor looked to be a very fast grower and to do something about it as soon as possible. With Ann's appointment not for four weeks, I contacted Hershey Medical Center.
The tumor was resected from Ann's brain the following Friday, July 17, 1998 by a neuro-surgeon Dr. Ralph Lehman at Hershey Medical Center. The surgery was a remarkable success. Ann was discharge from Hershey Medical Center on July 22, 1998 with instructions to go to Reading Hospital and receive radiation therapy to the local tumor bed. At the same time, she should receive an MRI of the spine because of suspicions of either another tumor, on her spine or a herniated disc, causing her leg problems.
Because Dr. Lehman's medical associates left no script, instructions or referral, Dr. Albert Yuen, a radiation oncologist at Reading Hospital took it upon himself to give Ann 5 fractions (at 20gy per) of focal radiation to the local tumor bed, PLUS 20 fractions (at 20gy per) of Whole Brain Radiation over a 35 day period(inclusive dates of radiation were July 29, 1998 through September 1, 1998). Whole Brain Radiation induces neurological deterioration, dementia or both. Patients develop progressive dementia, ataxia and urinary incontinence after Whole Brain Radiation. Local radiation to the tumor bed has been applied to patients to avoid these complications. The treatment method recommended for brain metastases of large solitary tumors exceeding 2cm in diameter is surgical resection followed by 5 fractions of local radiation to the tumor bed.
During radiation treatment, Ann received an Unenhanced MRI to the spine that showed a 1cm lesion. Instead of performing an Enhanced MRI to the spine to further evaluate, Reading Hospital performed a Bone Scan that showed normal bone imaging. Enhanced(contrast) agents increase the sensitivity, conspicuity and accuracy of an exam. The agent most commonly used is Gadolinium. The proper medical protocol for all Brain and Spinal MRI's is Enhanced(contrast). An Enhanced MRI was not performed. Dr. Yuen told us the lesion was nothing and not to worry about it. Dr. Yuen also ignored my complaints about Ann having seizures during radiation therapy.
Nine months later, Ann was admitted to the Reading Hospital during the Memorial Day Weekend of 1999, for a week of testing and evaluation for unexplained falls and light-headiness. Dr. Theresa Mecurio, a medical oncologist who admitted Ann said that Ann was supposed to be seen by an Internist(for her blood pressure) and a Neurologist(for a spinal tap). At the end of that week, a Dr. Nick Leasure, another medical oncologist(remember musical doctors?) calls me on Friday, June 4, 1999 to tell me Ann DID NOT HAVE CANCER and he'll let her go home the next day. Ann went home the next day in time to fall and break her hip in four places.
After waiting two days to be operated on, they finally repaired her hip by a Dr. Latman, an orthropedic surgeon. After surgery, when physical therapy was to be performed immediately, Ann did not become coherent, she was lethargic(undiagnosed leptomeningeal carcinomatous in patients receiving anesthesia has resulted in some documented brain death). For two days, I tried to track down the neurologist, Dr. Clifford Reed who was supposed to do the spinal tap the week before. When I found him to ask about the previous week's spinal tap, he told me he DID NOT PERFORM A SPINAL TAP on Ann. I asked him why not, he said, "after he and Dr. Leasure had a little chat, decided not to give it to her; he had seen this many times before, no need to do a spinal tap". I forced him to perform a spinal tap on Ann, then and there. Afterwards, tests results showed Adenocarcinoma nodules in the spinal fluid(still, no one knew why?). After the Pathologist did not want to sign off on his diagnosis, I yanked Ann out of Reading Hospital by ambulance and took her to Hershey Medical for proper medical treatment on Saturday, June 19, 1999.
At Hershey Medical Center, we found out by Dr. Harold Harvy, a medical onocologist that not only Ann had Adenocarcinoma nodules in the spinal fluid but also Leptomeningeal Carcinomatous(remember the undiagnose tumor of nine months prior, not further evaluated?). An Enhanced MRI showed now three (3) metastatic tumors on her spine. Spinal metastases can grow into adjacent structures, such as into the meninges from the spine. The largest of these tumors grew into the meninges on the spine into the spinal fluid(hence adenocarcinoma nodules in the spinal fluid). Drs. Leasure and Reed FAILED TO DIAGNOSE CANCER in Ann.
The first time I came across the idea of Radiation Necrosis was at this time. The doctors at Hershey showed me the Enhanced Brain MRI from the previous year's cerebellum resection and the one done presently. The scans showed the progressive deteriation of her white matter(white matter disease). Late delayed effects, occuring several months to many years later, are classified into diffuse white-matter injury, radiation-induced arteriopathy & stroke, and late delayed Radiation Necrosis. Late delayed Radiation Necrosis is often irreversible and progressive, leading to severe disability or death! Radiation injury to the brain by Whole Brain Radiation has a progressive (2-3 years) insidious course. Radiation Necrosis is part of a series of clinical syndromes related to central nervous system complications of radiation. It generally occurs 6 months to 2 years after radiation therapy. Radiation Necrosis can be fatal! It causes pathological changes that impair vascular integrity. It causes cerebral infarctions(strokes). Ann suffered a stroke to the left basal ganlia area around the New Year 2000.
As if Ann's complications with Radiation Necrosis, brought on by Whole Brain Radiation and Cisplatin(chemo-therapy receive with Taxol in the Spring of 1997), weren't enough, she was subjected to improper medical protocal for Brain and Spinal MRI's(Unehanced instead of Enchanced-Contrast), which left an undiagnosed tumor on her spine in 1998. While admitted to the Reading Hospital in June 1999 for testing and evaluation for unexplained falls and light-headiness, the doctors there, failed to perform a Spinal Tap or/and Enhanced MRI and failed to diagnose three spinal mets. They let her go home to fall and break her hip in four places(the mortality rate for those over 60 years of age for large broken bones is 25%).
With the damage already done to her at Reading Hospital, the doctors at Hershey Medical(in order to save her life or at least give her some time) had to administer Intrathecal Methotrexate along with systemic radiation to the spine(Admitted June 19,1999) When both therapies are performed at the same time it doubles the theraputic dosages of each therapy(increasing the neuro-toxic effects on the brain). Dr. Harold Harvey, the medical oncologist began two treatments of Intrathecal Methotrexate. Dr. Stryker, a radiation oncologist at Hershey began performing seven fractions(at 20gy per) of radiation to the spine. Ann was transferred from Hershey to Reading Hospital's rehabilitation unit after she was reclassified(under medicare) as an Outpatient(July 3, 1999).
Dr. Yuen, a radiation oncologist at Reading Hospital, finished the next eight radiation treatments. After Dr. Yuen was explicitly told that Ann needed only a total of 15 fractions(at 20gy per) of radiation to the spine, he wanted to give her 5 more fractions, AT A HIGHER DOSE! I asked him,"why?" He said,"we do things a little differently here, we are a lot more aggressive!" I stopped the radiation treatments at 15, called Dr. Stryker at Hershey to explain what happened and he told me I made the right decision and would back me up.
On the last day of Ann's spinal radiation treatments(July 15, 1999), Dr. Lusch, a medical oncologist gave Ann her fourth and final methotrexate treatment. He said her white blood cell count was not up enough, yet gave her the methotrexate treatment anyway.
Dr. Mercurio, a medical oncologist at Reading Hospital, on a follow-up appointment after hospital release(Thursday, August 5, 1999), I asked her, "why Ann didn't receive the Spinal Tap that she said Ann was supposed to receive"? She said, "I don't know?" I asked her, "why did your associate, Dr. Leasure tell me Ann did not have cancer"? She said, "I don't know?"
Dr. Cescon, a medical oncologist at Reading Hospital, on another follow-up appointment after hospital release(Thursday, August 26, 1999), to withdraw spinal fluid samples from her reservoir, wanted to give Ann another dose of methotrexate, without doing any prior blood work. I did not allow it. Since the second methotrexate treatment at Hershey, all her spinal taps were Negative.
Ann EEG performed at Hershey Medical Center in December 1999, MRI's performed in January 2000 and May 2000 at Hershey Medical and a Pet Scan performed at University of Pennsylvania in August 2000, all showed even more diffuse white-matter injury(Radiation Necrosis).
A recurrence of the cerebral metastasis was very likely to happen in the future. It did, observed via that Enhanced MRI of May 2000 at Hershey Medical and that Pet Scan of August 2000 at University of Pennsylvania. Four, mm-sized metastatic tumors were found in and around the previously resected cerebeller tumor and because of Ann's weakened condition, Gamma-Knife would be the only best medical course of success. She received successful Gamma-Knife treatment at University of Maryland Medical Center by a Dr. Larry Chin on September 12, 2000. During the whole time of her admission at the hospital, the doctors kept referring to her continued diffuse white-matter injury(Radiation Necrosis), as if she may too far advanced in that injury to survive much longer. Ann(Lory)Pawelski died Thursday, September 21, 2000 at the age of 68 from Cardio-Pulmonary Failure. Minutes before she expired, her temperature was normal, her blood pressure was normal but her pulse was 150(tachycardia). Her
heart was racing to keep up with the lack of brain function and finally quit. The white matter disease that Ann experienced and caused her death was a result of Whole Brain irradiation and Chemotherapy.
Hence the saying, "cancer medicine has been driven by external forces into dark corners, such as what amounts to generating more of an advertisement sent directly to a patient, than patient information and more disturbingly on TV and other media". There's this multi-billion dollar cottage industry called chemo-radiation therapy just waiting for an excuse to fullfil your cancer treatment needs. Until Ann Pawelski met the infamous cancer doctors at Reading Hospital, she was a twenty-six year survivor of cancer. Look up in any dictionary for the word "Hero" and there is a picture of Ann (Lory) Pawelski.
Gregory D. Pawelski(husband)
Gregory D. Pawelski (gdpawel@attglobal.net)
Wernersville, PA USA - Friday, February 23, 2001 at 01:32:43 EST
Dear fellow cancer victims, my father was diagnosed with small cell lung cancer 1/01. 5mm spot on lung, 2 mets to the brain.
He can barely walk and stay awake after 3 weeks of radiation. oncologist said he is too weak for chemo. we would not have
allowed him to be a chemo guinea pig anyway. we are now trying Protocel, alternative med my mom calls our snake oil. very sad situation. the more I read the worse the news gets. I am very angry. Can anyone share a hopeful message or a little bit of good news to help.?? I will respond to anyone to writes. Thanks!!!
shelley (dsturtz@starpower.com)
westminster, md USA - Monday, February 19, 2001 at 14:47:26 EST
I was dianosed with a Ewings Sarcoma in My left hip at the age of 17.I was given 3 months to live without treatment, with treatment my survival rate went up abit. I was treated with chemo,a radical hip resection, followed by more chemo and radiation.Treatment was terminated becouse by body no longer could take it.I was down to 76 lbs and facing months of physical therapy to learn to walk again. I happy to say that I'm about to celebrate my 39th birthday, I'm 138 lbs. and have been working the past 15 yrs as a Rural Letter Carrier for the USPS. I beat the statistics, and survived. I have had no cancer reoccurences. Please know that no matter how grave of a diagnoses you or a loved one has been given, that miracles do happen.God listened to my young prayers. I pray that he will hear yours.
Darlene(Dolly) Miconi (Dollo3399@aol.com)
Madison, Ct USA - Sunday, February 18, 2001 at 20:45:22 EST
Ewings Sarcoma Survivor. Dx in 1978 at age 13. Cancer free since after 3 years of treatment at NIH in Maryland. Never pursued survivors before. This site is amazing. Will share if helpful to anyone. Keep believing!
Terri (jalapeppa@hotmail.com)
milwaukee, wi USA - Sunday, February 18, 2001 at 04:41:53 EST
I am presently fighting recurrent papillary serous endometrial cancer. First diagnosed in May of 1996, full hysterectomy, course of pelvic radiation, and three chemo treatments of cisplatin and adreomiacin. It seemed to be in remission. Then, in April of 1999, a recurrence. Was told I had about three weeks. We tried chemo again, this time carboplatin and taxol. Four treatments, then a break of seven months, then five more treatments. Then another break of three months. I just completed five more treatments, and am presently off because the CA125 is going up, the chemo doesn't seem to be working. Does anyone have any ideas? Would appreciate any input.
Yvonne Sanchez (yvochez@aol.com)
Hollister, CA USA - Saturday, February 17, 2001 at 15:40:22 EST
WONDERFUL NEWS !!! Tom my father in law who had bile duct tumor removed- via/whipple procedure/ has finished his chemo and radiation the cat scan and other test show no cancer in liver or bile duct he is feeling better gaining weight eating good energy level coming up.. gettn better everyday. Thank you all for your emails and support we have posted several notes here on the channel to let you all know what was happening with Tom we thought we were going to lose him but he didnt give up and neither did we .the whipple proc. 2 rounds of 5 fu chemo and radiation to kill the cancer now let the healing begin . Best wishes to all who read this ...... Shawn and Connie PS D.J. in california if you see this let us know how you are doing !
Shawn (sljccj@netzero.net)
indpls, in USA - Friday, February 16, 2001 at 22:52:40 EST
I was in the army,back in june of 95.I was diganois, with Hodgkins Lpyhomia that was in the 4th stage. I took high doses of chemo at that time,then i went into remission for about six months.After the cancer returned it returned in left side of my neck.So when that happen the doctors though that a Bone Marrow Transplant was in order.This was in 96of july. After the trasplant i was very sick, because my platelet count wouldn't come back up to normal, and that made me animeic for 6months are so.I'm still battleing cancer, and it is the year 2001.To the people that stuggle with cancer every day, I salute them, because they seem to be the ones with a lot of faith. Remember don't give up,place it in the hands of god. And you will be o.k. All survivers, is in my prays. It might be hard, but God didn't say life would be easy.
julian stelly (julianstellyhotmail.com)
Houston, tx USA - Thursday, February 15, 2001 at 18:01:10 EST
My name is Braden Cleveland. I am an associate producer at 60 Minutes/CBS News. I am researching a story about compassionate use of experimental cancer drugs, and I'd be interested in having a background conversation with anyone who is currently trying to get compassionate use of an experimental drug and would feel comfortable sharing this experience.
I can be reached by phone at 212/975-1768 (please feel free to call collect) or by email at bcc@cbsnews.com.
Thank you very much.
Braden Cleveland (bcc@cbsnews.com)
New York, NY USA - Thursday, February 15, 2001 at 13:04:43 EST
My Mom was diagnosed with colon cancer with mets to the liver. She had surgery to remove the tumor from her colon 1/10. To date 2/15 she has not started chemo. First there was a two weeek delay with the hopes that they could remove the mets with surgery. Then the doctors changed there mines.We were given the opportunity to select chemo option. We selecte HAI and now have a date so far out we think its best to go with the first line of treatment (5FU/Lo/CPT-11?) Would would love to get the advise of someone who is either a Stage IV CRC survivor or caregiver of such a person. Please help if you can.
Cheryl Josephs (cyjosephs@aol.com)
Sunnyvale, CA USA - Thursday, February 15, 2001 at 05:15:55 EST
We, Eun-Ok Im, School of Nursing, University of Wisconsin-Milwaukee and Wonshik Chee, School of Engineering and Applied Science, UWM are conducting a research entitled "A Pilot Study on Cancer Pain: Internet Survey and Mail Survey." The overall goal of the study is to develop and validate computer software that will assist nurses' decision making about cancer pain. We definitely need your help.
If you agree to participate, you will be contacted again and asked to (a) fill out an Internet survey questionnaire loaded on our Web-site or (b) fill out and send back a mail questionnaire. Also, you will be invited to participate in additional e-mail group discussions.
If you are interested in the research, please respond to us by e-mail. We will contact you within 1 week. If you have further question and/or concerns, please do not hesitate to contact us. Thank you very much!
**********************************************
Wen-Jiuan Yen
Doctoral Student, Project Assistant
School of Nursing,
University of Wisconsin-Milwaukee, USA
***********************************************
Wen-Jiuan Yen (wyen@uwm.edu)
Milwaukee, WI USA - Wednesday, February 14, 2001 at 11:07:41 EST
Hi! I coordinate Cancer Support Services at a non-profit hospital in Phoenix. I moderate a new cancer support bulletin board at http://www.accessarizona.com/health/Banner/cancer_board.html. As a certified family therapist I attempt to help visitors cope with the incredible challenges of cancer. Stop by!
Patrice Al-Shatti, CMSW (patrice.al-shatti@bannerhealth.com)
Glendale, AZ USA - Monday, February 12, 2001 at 15:29:58 EST
My husband, who just turned 53, was diagnosed with pancreatic cancer which has moved to the liver. Actually, on the CAT scan only cancer was detected in the liver but the biopsy said it was Adenocarcinoma which is a type of pancreatic cancer. We cannot find much hopeful information. DOES ANYONE HAVE ANY?
Bonnie Burroughs
Bonnie (ipinc@erols.com)
Fairfax, VA USA - Friday, February 09, 2001 at 23:36:38 EST
My father was diagnosed w/stomach cancer (Adenoma Carcenoma) in November 2000, just before Thanksgiving he had surgery
his entire stomach was removed and also his gallbladder, the doctors created a pouch from his intestine, to act as a stomach.
He had his first Chemo treatment at the end of Dec. The doctors said he would have to have 5 days of chemo a month for sixth months. He has lost 60 lbs. and can hardly eat. He has a cat scan which reveled he has mets to the liver and again in the stomach that they created for him. Dr.'say he is too weak for chemo, he says that he is feeling fine, but the doctors are not optimistic. Please email if you have had or know of someone, who has survived this. Thanks & God Bless
Lillie Leyva (lillie6171@yahoo.com)
Burbank, ca USA - Thursday, February 08, 2001 at 12:12:52 EST
I was reading over your guest book and I like what I see, I myself am going through cancer rite now, I have it in my lungs and rib area. 3 years ago January,15 I lost my youngest brother to brain cancer, He was 21 and so full of life, even to the end he tried so hard to keep possitive and with that same feeling I also want to keep positive. My brother James had the brain cancer when he was 2 and with surgery and treatments we thought it was gone and at 18 we found out it was back and again he had brain surgery and treatments. It was the hardest time my family ever had and to this day I miss him so he was my brother and best friend. But in so many ways I still fill him with me as I go through all that I'm going through.If one thing cancer has tought me is to love with all my being and to grasp everyday with joy and love always smile and beleive that there is hope for everyone...Thank you for your pages of hope Annie
Annie Vincent (Hawwgsduely@aol.com)
Dandridge, TN USA - Monday, February 05, 2001 at 13:04:08 EST
Searching for anyone who is experiencing CARCINOID SYNDROME on the outside of the small intestine, and questionable liver nodules. I am currently on monthly injections of SANDOSTATIN. Would appreciate any insite.
Donald Baxter (Drusty11@aol.com)
Flushing, Mi USA - Sunday, February 04, 2001 at 19:40:58 EST
My grandfather has cancer and a tumour which he has had for almost 10years? now. I am doing a science project on natural treatments for cancer. For the info, the main thing is eat lots of veggies and some berries. veggies FIGHT cancer and berries protect DNA. Also eat 10 almonds a day. Do NOT EAT ANY REFINED FOODS. and as little sugar as possible. Look up Doctor Hans Napier, a physician, he has a very successful treatment. the main thing in it is carrot juice and fresh, raw cabbage juice.
Anominous
Canada - Saturday, February 03, 2001 at 19:19:25 EST
First of all to all of you with cancer or who know some with it, I just want to say there is hope. My husband is a 3 years colon(stage 3)cancer survivor. For the past 2 & 1/2 years, after he finished his surgery, radiation and chemo treatments, he has been using a vacine of antigens (cancer antibodies) to prevent any metasticies from happening. This treatment was developed in Germany in 1970 and the US is just in the last year looking into it and doing test trails. His doctor in Tiajuana, Mexico learned this technique in Germany. If anyone wants to know more information you can sent me e-mail requests. This treatment is good for many form of cancer, not just colon. My husband visit his Mexican doctor every six months and possible has another 3 years of treatments. I hope this information is helpful and hopeful to those of you who are out there struggling with this devastating news.
Penny Koerner (azbadpenny@hotmail.com)
Dewey, AZ USA - Saturday, February 03, 2001 at 16:34:08 EST
Hi, my mother has just been diagnosed with adenocarcenomo of the lung. I believe it is non-small cell. She is a non smoker, but owns a hair salon. The method of treatment has not yet been determined. Fluid in the tumor is currently being drained. Any suggestions or information pertaining to this type of cancer would be greatly appreciated! Thank You.
J M (discountchips@aol.com)
Ft. Lauderdale, FL USA - Saturday, February 03, 2001 at 15:29:29 EST
Dear Members,
I am a professor of nursing at the Medical University of South Carolina and I am writing a book about survivors of cancer. If you are interested in knowing more about the possibility of the inclusion of your experiences, please contact me at Benedics@musc.edu.
Many thanks,
Susan Benedict
Susan Benedict (Benedics@musc.edu)
Charleston, SC USA - Tuesday, January 30, 2001 at 14:08:09 EST
Hi, My Name is Donna, I was diagnois with Metastatic Adencarcinoma Unknown primary. They first discover this Aug 1999. After finding lump on my left neck and having surgery to remove the lyphnode. I have had every test known from xrays to cat sans and the pet scan. they still have not found the primary. I also went for a second opion I was not to please about. I have had two abouts with chemo of taxol and carboplatin. With a 50/50% either way. I have had radition of 5days week for 5weeks. I need to talk to someone who has as they call it CUP( carcinoma unknown Primary) or anyone that can give me other options I can use.
Donna Bowman (numbronemamma@aol.com)
Carson City, NV USA - Sunday, January 28, 2001 at 01:45:53 EST
I am a testicular cancer survivor, as a result of high dose chemotherapy, and can talk to others with the same cancer or
anyone about to get high dose, its been 4 years with minimal complications!
nick tatomer (nick tatomer@hotmail.com)
santa barbara, ca USA - Thursday, January 25, 2001 at 02:08:16 EST
Hi my name is Dennis and was just diagnoised with tounge cancer stage 3, 2.5 cientimenters. Would like to hear survivors whp have had this type of cancer. My prayer's are with all of you!
Dennis Krowel (dkrowel@yahoo.com)
Downey, ca USA - Thursday, January 25, 2001 at 00:28:45 EST
I just found out that my dad has small cell carsonoma. He has a tumor the shape of a honeycomb, right between his windpipe and left lung. they took a biopsy, (they had to cut him open and get a piece to see what kind it was.)They said it was malignant and inoperable and incurable. I am scared that he will die and he can't decide whether or not to take treatments, His doc said try for a time of 4 months and if it doesn't quit growing or gets worse, then stop the treatments. He says it has not penetrated his lung or windpipe,or esophagus, but can't get it out because a lot of arteries (ONe to his heart) are surrounding it. Please send me any advice, or information. Prayers will be appreciated. Love Winona
Winona (ginger@onecallinc.com)
Randolph, MS USA - Tuesday, January 23, 2001 at 18:29:32 EST
Hi everyone out there!
I really need some info on anaplastic carcinoma, treatment, and success stories. Please write me a line! Arna
Arna Arnardottir (s0aaarna@titan.vcu.edu)
Reykjavik, Iceland - Tuesday, January 23, 2001 at 07:51:15 EST
Hello! from Puerto Rico I'm 32years and I was diagnosed with Hodgskin's Lymphoma in july 1999. Thank to God, my doctors and my friends I'm in remission since May 2000. What I really want to say to people with cancer is that we can beat this disease if we use all our energy and friends together.
Guillermo Parrilla (ParvelMed@worldnet.att.net)
San Juan, PR USA - Monday, January 22, 2001 at 09:33:12 EST
Brain tumor from metastatic testicular cancer. Interested in the effects of delayed radiation to the brain. Some side effects we have had: headaches, paralysis, confusion and seizures. Seizures were so bad we had to induce a coma to stop them.
Delila woodruff (woodrufflr@cs.com)
greenfield, In USA - Sunday, January 21, 2001 at 19:52:13 EST
Hey will i found out a week are two ago that my granddad had lung cancer well okay well the next day my uncle did of cancer i been going thought this cancer thing for about a year are two between my uncle jim boe and the my uncle harraway well then my granddad well about 3 are 4 days ago we found out that he has it in his brain and all the other organs in his body and we went to see if it was in his liver and we have not got the test back yet but every time we go to the doctor they always have a diff time that he has and yet he just lookes better everytime i see him but hopefully he will be okay and the bad thing is that his son had a baby boy the day he went in the hosptail
britney (britbrat@pdol.com)
sc USA - Sunday, January 21, 2001 at 17:58:11 EST
Hi- I'm a 25yo Male in Queens NY. My mom was diagnosed with stage 3 ovarian cancer in september 2000. She is still going through chemotherapy. It's been very scary and rough.. I'm trying so hard to keep my mom in good spirits but it's very difficult. She isn't as positive as i would like her to be which worries me. If there is anyone out there who is battling ovarian cancer or knows about survival stories.. i would really love to hear about it. Reading about ovarian cancer is very depressing and i need to hear more positive things. Thank you so much.
Anthony (QnsMale75@aol.com)
Queens, ny USA - Sunday, January 21, 2001 at 14:12:05 EST
I am an ovarian cancer survivor...1 1/2 yrs. so far. Had 6 treatments of carboplatin & taxol in 99 am in remission.
It is great to talk to people who have been through all this. I didn't like the chat room through Yahoo...too much advertising and weird stuff along with all the people trying to talk. This is much better.
Living in the shadow of a possible recurrence is something that no one but a survivor can understand. Thanks for your support. This is a beautiful web site and I appreciate the opportunity to visit. God bless you.
Dee Ann Toms
Wrightwood, CA USA - Sunday, January 21, 2001 at 01:33:47 EST
Hello to All, I am in remission from "Peritoneal Adenocarinoma In-Sito". This is a rare cancer, and I have had to undergo two surgeries. And I have been doing research on many different types of cancers. I wanted to share some information with you all. I have found that John's Hopkins University is a well renowed advocate on cancer. To learn more on any types of cancer's just log on to it will give you a list of many types of cancer. You just need to click on that particular type it will give you alot of information, and the doctors you can contact. They also provide information on different studies they are undergoing. And how one can apply to be apart of there studies. I have done a great deal of research, and I have learned that John's Hopkins is at the top of Cancer Research. There facility is technologically advanced, and the physicians truly care about there patients. Many states are still in the dark ages, and behind in many treatments that are available to all of us. So please, feel free to review there site, and I wish you all well in your endeavors for getting the proper care. Sincerely, Wendy
Wendy Garan (brwneagle@hotmail.com)
Indianapolis, IN USA - Saturday, January 20, 2001 at 23:27:54 EST
Hy everybody !
First of all I wish you sincerely all the best, don`t give up, there`s always a hope, trusting in God or just in yourselves!
I`m 31 yr old and I survived testicular cancer, august 2000. Went through surgery, chemo, radiations and all.
I am a graphic designer, live in Bucharest/Romania, want to move in Hungary/Budapest next month.
I love life, now, that I`m cancer free, more than ever, learned a lot from this experience, like nothing is “by chance”. I learned that death is just a part of our life, and I think I`ll never get bored again, not in this life.
Don`t know what future is going to give me, but whatever it is, I know is for me. Is my life and I want to live it all, goods and bads, to make it as beautiful as possible. I try to find a way to leave some good and beautiful things behind me, a sign I was here, for other PPL to feel happy about that, whenever it would happen me to die. It was not easy at all to have so peaceful thoughts about death, about MY death.
I graduated art academy four years ago, photography, video and computer processed image, I love motorcycling, photography, travel, friends, and not at last, my girlfriend who was near me in al this mess.
I had a rock band when I was a student, as a drummer, long hair, (cut it three years ago), even recorded an LP album five years ago.
Tried several times to quit smoking, never could. Not even cancer made me to quit. Radiations did. I was so sick that I couldn`t smell not even the food, so I didn`t smoke for about a month and a half. After that I realized that I`ve just quit smoking. Now I don`t need it anymore. Is better without cigarettes, though I have a lot of nostalgic thoughts about that sometimes.
I feel now closer to anybody that got through this, I feel we got a lot in common, though we might not have at first sight, never talked to someone else that had testicular cancer and want to make friends.
So tell me about you if you want.
Wish you the best and hope all of you are or will be ok!
Not just like in some polite Christmas cards, but knowing what that means, I`m near you all !
DRAGOS (dragosh72@hotmail.com)
Bucharest, Romania - Thursday, January 18, 2001 at 13:59:32 EST
My father was diagnosed today with Squamous Cell Carcenoma. (i hope I spelled it right) I never thought this would happen to a man so incredibly healthy, a man that is my father. I have decided to be the "strong" supporter(or at least try)for my Mom, Stepmom, sister, and step siblings. I pray that by reading all of your stories I will be able to maintain a positive outlook and remain calm when seeing him. The doctor who removed the mass seems optomistic and has sent him to one of the best doctors in the state for Chemo. This has never hit home so hard and I would love to hear from anyone that has gone through this or if you have any words of wisdom for me, a young woman with a lot on her shoulders now. I have come to find out that I too will need support through this. I will pray for all of you. Jennifer
Jennifer Berdis (jenniferberdis@msnhealth.com)
Boca Raton, FL USA - Wednesday, January 17, 2001 at 17:54:25 EST
Hi, I was diagnosised w/breast cancer 18 months ago. I went through radiation therapy and I am now taking tomaxifin for the next 5 years. I would like to talk to other women on tomaxifin.
Terri Maier (maiert@sparky5.elmbrook.k12.wi.us)
Brookfield, wi USA - Tuesday, January 16, 2001 at 15:10:34 EST
I am a survivor of mediastinal germinoma (germ cell tumor in the lung/heart area). It was collapsing my lung and pushing my heart over. The doctors preferred I undergo 3 courses of chemotherapy and 1 of radiation and I would not want anyone to go through it.
I don’t want to tell you it will be easy but it may be possible over come any obstacle. As I
I reflect over the last 9 years I believe that a strong will to survive, not giving up on hope and having a strong belief system with the ability to persevere you can be a survivor. I like to believe in a saying that states, “all things are possible, and that the impossible only takes a little longer”. I have been through many heart aches and life’s pains: loss of a wife in an accident and then raising a son with Down’s who passed away last year at the age of 22. But I love the sunlight in a clear blue sky, or tackling a new project or adventure. I like going on trips to see new places and scenery. I always try to do the things I love.
I don’t know the reason to a lot of life’s obstacles placed in front of one but I go on hoping that one day things will be better - that’s my human nature. I wish and hope the best for all that must go through life’s misfortunes. But having a support system of people, ideas, or resources (both physical and mental) is the best remedy I can recommend to those caregivers wishing to help those in need and just maybe we can all survive.
Garth (mcconl@mb.sympatico.ca)
Winnipeg, MB Canada - Tuesday, January 16, 2001 at 14:31:27 EST
I just want to "listen" right now.
Tootsie
USA - Tuesday, January 09, 2001 at 19:48:39 EST
As a 42 year old single mom I was not ready for cancer. But with 2 sisters already diagnosed, as well as our mother and 2 aunts, I knew my time might come. Diagnosed with stage 2 breast cancer last Christmas, I thought, 'This next year is going to be a real pain!' and of course it was. When my oncologist pronounced me ready to go on with my life in late October I told him he had just come in under the wire... I had only been willing to dedicate one year of my life to this nonsense. I shoulda knocked on wood. This year my christmas present is metastasis to my lung, which makes me a stage 4. My biggest fear is someone is going to use the term 'inoperable'. I figure as long as they can keep whittling the bad parts away, I'll be okay. When I'm not mired in self pity or checking out that bright yellow streak down my back, I lead a life of quiet contemplation. Contemplating that chocolate cake, that bagal with cream cheese, that crab-stuffed lobster-tail. Just kidding, I'm a shy qui!
et type, love to read, and when my health co-operates, ride my bike down to the beach to watch the waves come in. I try not to resent the cancer.. It's just something that happened. I'll fight the fight, because I sure as heck am not ready to give up, but I figure anger won't get me anywhere. As long as I can still find beauty in the world I'll keep going.
Linda Black (elf.lass@mindspring.com)
Fort Lauderdale, FL USA - Monday, January 08, 2001 at 21:12:23 EST
In January 2000, I underwent a chest X-ray and 2 weeks later a CAT SCAN to then be diagnosed with Lung Cancer. On 6 February 2000, I went to surgery and had the tumor removed. Three days later, when the pathology reports came in I was told that the tissue surrounding the tumor were pre-cancerous and that I would now have to undergo an upper lobectomy. The trauma associated with surgery one week apart was quite horrendous and it was thought that I may not make it through the second operation. However, I did and then required home nursing for 4 months. At this point I am clear of cancer and hope that it will stay clear. Of course there are many other problems associated with the illness: such as frequent chest infections, constipation (due to the drugs), depression and shortage of breath. Now have also asthma. I am so happy to be alive as I have a wonderful 11 year old son who needs me to be here for him.
Adele (cmericm@one.net.au)
Melbourne, Vi Australia - Sunday, January 07, 2001 at 04:44:53 EST
My name is Vicky, On Oct 23rd 2000 I had Adenocarcinoma removed from the roof of my mouth (soft palate)it has changed my life forever. I would like to talk to other's who have had the same thing. God Bless anyone who has had to deal with cancer.
Vicky (Emmettlady@aol.com)
San Bernardino, Ca USA - Sunday, January 07, 2001 at 01:44:05 EST
Hi,the first time I left a message here was on November 27 2000. I spoke about the people it has effect in my life and how I feel that i am a survior as well. I spoke about my husbands 1st wife being diagnosed with with Hodgkin's that week and just losing her mother on the 20th of November 2000.
Diane Street Born: September 21 1950 lost her battle of cancer on January 01, 2001. I want every one to know that she was a very warm and loving, kind hearted person. I tried to visit her on a weekly bases at home and the hospital, sending her little cards of encouragement and hope as well as little gifts. I loved and feel I got to know her more the past 3 months then I have in the last 19 year being married to her ex-husband. We all love and miss you Diane. From the surviors that cared for you.
Lisa J Schuler (LJSOhio@aol.com)
Cincinnati, Oh USA - Saturday, January 06, 2001 at 23:53:59 EST
My dad was diagnosed with metastic stage 4 colon cancer (in his liver)at the end of September. He was diagnosed with colon cancer and had resection in October of 98. With in a few days the news went from bad to awful...a spot on the liver, several spots and the final diagnoses was 7 tumors considered to be inoperable because of the location of one tumor (in the crotch of a vein that is the main blood supply to the liver). He was refered to the Mayo clinic in Rochester early in the testing process. This is important - he'd been having regular blood tests accompanied by occasional CT scans since the original cancer, but as recently as June (even though the cancer was well developed at that point) he appeared to be clean. It didn't show up in the blood test, yet many still consider that to be a reliable method for early detection of recurring cancer. My dad was at high risk for recurrence because his tumor had invaded the wall of his colon and it was present (barely so)in 2 lymph nodes. He had no symptoms and felt great. Our Mayo oncologist told us of an experimental chemo program along with other options, and that is what we chose. It is very aggressive (50 straight hours every 2 weeks, most administered via pump and internal port) and it appears to have worked. After 3 treatments, we were amazed to see that the tumors had shrunk or dissolved to the point where they weren't visable on the CT scan. We got this wonderful news 2 days before Christmas. We, well he (my siblings and I have joined or accompanied our parents on all but one of the trips to Rochester)had an appointment yesterday for a chest x-ray and routine tests and is now scheduled to have approx 50% of his liver removed(the right side, a little of the left side and his gall bladder because the blood is supplied to the gall bladder by the vessels in the right side of the liver)removed Wenesday morning. The liver will regenerate to the same size and same number of cells as before. He is expected to make a full recovery, and be cancer free. We know, because of his history that he'll always be at risk, and the next logical place for his cancer is lungs but this is so much better than what we had a few short weeks ago, more than we thought we could hope for. The experimental drug is Oxcilly Platin (spell?), given along with 5FU and Leukovoren (spell?). We're convinced that this treatment and the Mayo clinic saved his life. This treatment is approved in Europe, though I don't know for how long. It is used to shrink tumors to make them operable. Because it is so aggressive and strong, it is questionable how long a person could tolerate it, and they may work up a resistance, allowing the tumors to start to grow again after a time. I don't know if it's used for cancers in locations other than the liver. We are all so thankful that we don't have to figure out how to say good bye just yet....I hope this helps someone. Good luck and thanks for sharing, this site as given me comfort during the past weeks.
Sally Heidmann (sallybellamy@yahoo.com)
Nisswa, MN USA - Saturday, January 06, 2001 at 15:32:47 EST
Just happened across this site and glad I did. In 1989 I was diagnosed with breat cancer at 36 yrs. old. Had a lumpectomy with chemo & radiation. Three years later it returned in the same breast and I opted for a mastectomy. Went for 10 years and in Nov. 1999 colon cancer was found. Had a colon resection and underwent chemo/radiation again.
In Oct. 2000 we discovered that it had metastisized to the liver and evidently the 5FU/Leukovoran had not been effective. Am presently on Camptosar (have had 2 rounds)and will know in a couple months whether or not it is working. I'm looking into and examining alternative therapies. Ultimately I know that God is in control and my life is in His hands. I commit my situation to Him daily and trust Him for the outcome. I'd very much like to talk with someone with a similar situation to find out what has and has not worked for them. God's blessing, strength and mercy be on all of us who fight this battle. It can be won through HIM!
Debbie Nester (coltden@aol.com)
Charlotte, NC USA - Saturday, January 06, 2001 at 11:38:43 EST
MY WIFE CHRISTINE,HAS CERVICAL CANCER. WE WERE RECENTLY DIAGNOSED AND WOULD LIKE INFORMATION.
CHRISTINE GIBSON (gibsonjus1999@aol.com)
BLOOMINGTON, MN USA - Saturday, January 06, 2001 at 11:00:54 EST
My mother got a hysterectomy about 3 years ago for a large fibroid. When they looked at the uterus, the doctor said that it was a good thing they took it out because they found a low grade endometrial stromal sarcoma inside. Usually this is not discovered until it has spread beyond the uterus. About 2years ago, by mother found a small lump on the scar from the incision. They did surgery and removed it. Turns out to be the same cancer. Apparently a few cells must have gotten free during the original surgery. 5 months ago, she felt 2 lumps in her abdomen. When they did surgery to remove them, they ended up going deeper into her abdominal cavity and found multiple small tumors inside of her including one on her appendix. The surgeon removed all that he "could find". Turns out to be the same cancer, again "low grade". Saturday, my mother started feeling pain in her abdomen and felt a lump. On Sunday, she went for a CT scan and they noted a tumor in that area, a few others in the abdomen and several nodules in the lower lungs. Tomorrow, she goes for a CT scan of her lungs. My mother is only 58 years old and she is and has always been so vital. Why is this cancer growing so quickly if it's supposed to be "low grade"? My whole family are Born Again Christians and we are just praying for a miracle. I have faith that God can heal her, I just don't know if that is His perfect will. I have felt peace that God is going to heal her and then I talk to someone and I start doubting this. Is this just another form of denial? I just wish we had answers. If you have any success stories or encouraging words to offer, I would appreciate it. Please pray for healing for my mom and that God's Perfect will is done in this situation.
Thank-you.
Danielle (danielle723@sprynet.com)
Dumont, NJ USA - Thursday, January 04, 2001 at 22:08:46 EST
Gidday. What a truly amazing web site filled with such touching stories. My heart and best wishes goes out to each and everyone of you. Yesterday, my 58 year hushand was diagnosed with breast cancer and advised to have the operation as soon as he can. There have been two choices offered. Either a modified radical mastectomy where dye will be inserted into the lymph modes or the wide local incision where part of the lymph modes will be removed and rado therapy will follow for the next six weeks. Any information on either operations would be gratefully appreciated. Thank you.
Sandy Hegg (gshegg@hotmail.com)
Tucson, AZ USA - Thursday, January 04, 2001 at 15:22:55 EST
Hi. I was diagnosed with Stage 4 Large Anaplastic T-Cell Non-Hodgkins lymphoma in late 1998. about 95% of my lymphnodes and my lungs were infected. Since then i've gone through 8 cycles of CHOP therapy and an autologus stem cell transplant. So far, docs haven't seen anything yet. If anyone is going through any of these and has questions, please feel free to email me. I am always looking for someone to talk to about this. Being where I was, it was always good to talk to someone. Even just seeing a smile on someone's face or a positive word made it so much easier to go through.
Bob Hester (bhester@noble.cioe.com)
Albion, IN USA - Thursday, January 04, 2001 at 09:41:38 EST
My mother (59 years old) was just diagnosed with adenocarcinoma - stage IV. Recently, after mammograms and CT scans the doctors seem to be thinking it is breast cancer. There is a meeting with the oncologist on Friday. What can be done? My prayers go out to everyone - this is such a terrible disease. I would like some hope - is there someone out there who has "survived" metastatic breast cancer. Please email. Thank you and God Bless.
Chris Kemock (chriskemock@recplex.com)
Strongsville, OH USA - Tuesday, January 02, 2001 at 16:18:00 EST
My grandson just put together a webpage about my hit with Bladder Cancer please have a look at it. http://survivorofcancer.homestead.com
Vincent Sussman (vinsuss@aol.com)
Hamden, CT USA - Tuesday, January 02, 2001 at 13:34:44 EST
i would just like to talk to other people that has cancer or that is i in remison.
cookieo (gwg@pe.net)
banning, ca USA - Monday, January 01, 2001 at 23:25:14 EST
Live, and live well, follow your heart and Love, love, love. My Mother was diagnosed March 2000 with a Glioblastoma Multiform in the left frontal lobe of the brain. She had surgery, radiation, and many rough times. Prognosis has not been good. But she stuns the doctors. She has put up a fight. She lives healthier and has learned to laugh. By this, I want to tell everyone. Life is not forever. Live each day to the fullest. Look this in the eye and don't let it get you! Don't let it win that way. Laugh at it, if you will. My mother is excells in health because she sees life through different eyes. No matter what this brings us we will not let it take our spirit. We are better through this and will never let it get the best of us!
Take from this, my friends; don't let it take from you. May your love grow in more ways than with out it and may you teach others to grow.
God Bless YOU All.
Sam Stellhorn (stella@htc.net)
Red Bud, Il USA - Monday, January 01, 2001 at 22:50:48 EST
Hello!
My husband Tom was recently removed from the liver transplant list in Miami. He has had hepatitis B for 13 years now. He was recently (after a year and a half battle) added to the transplant list in Miami. My husband's situation has changed dramatically in the last 48 hours. Miami informed us Friday that the small tumor in Tom's liver has grown to 10 cm <= (its not a typo) and he is no longer eligible for transplant. We need to find someone (obviously a success story) of someone with a similar situation that might know what we need to do next. I have contacted Pittsburgh and the surgeons in Miami are consulting their colleagues in Japan. They aren't even sure if he is going to make it through the laproscopy to see if it is for sure cancer. (Dr. Kato says there is only a one percent chance that its not) His liver is too weak and they are afraid that he won't make it through that surgery. Please - I need help...I know that all of this rest in the hands of God. I am
hoping to find someone-anyone that can help us. This thing doubled in size in less than 15 days. We had already received one phone call on Christmas Eve to come and get a liver but it was too damaged when they went to harvest. We were so close....I am having a hard time thinking that if it had been a good liver that they still would not have transplanted him. They say he would not have made it through the surgery. Please pass this along to anyone you can. Maybe they will know of someone out there that can help. Thank you so much for anything you can do to help.
Sincerely-
Patricia Galese
941-925-0384 e-mail MMTMGJR@aol.com
You can call collect if neccessary
Trish Galese (MMTMGJR@aol.com)
Sarasota, FL USA - Sunday, December 31, 2000 at 14:57:42 EST
My oldest son was diagnosed with Burketts Lymphoma in Nov. of 96. We knew from the beginning that God Almighty was in control. I will not lie, I got on my knees just about every momemt and prayed to the Father for my son to be allowed to be healed here in this world. My son was only 8 years old, but told me that he had spoken with God and told him that whatever he wanted to do with him it would be o.k. My son never gave up faith even though the mass of cancer was located in his pancreas. Today (PRAISE GOD) he is celebrating his 13 birthday (December 31,2000) He is active, running and playing baseball, striaght A student and by looking at him, you would never have guessed that he had been through so much! His scar where his hickman line was in his chest has healed in the shape of a heart! I praise our Father for allowing the healing to be done here. All I can tell anyone who is going through this or who has a child or loved one going through this, is to pray, pray, pray. Read t!
he bible and go to God for your every need. No matter what, he will sustain you. I do believe that God has the final say as far as what happens, but I also know that he expects us to ask and pray. I heard that heaven moves when a Godly mother cries out unto the Lord.I will be praying for all in this guest book because I have prayer every morning. If my prayers or services can help anyone, please do not hesitate to contact me. I fall to my knees every morning that I wake up and every night that I go to bed Praising God because I know he still heals!!!!! in Christian love Helen
Helen (Suthebelle @aol.com)
Ft. Worth, Tx USA - Sunday, December 31, 2000 at 13:19:37 EST
My brother-in-law was diagnosed with testicular cancer in 1986 and underwent chemo treatments for about 3 months. He
has been cancer-free for about 10 years now. He is thankful
for his diagnosis but is concerned for his current health.
As is true for anyone who has gone through such an ordeal,he thinks that every illness or unknown symtom may be related either to his cancer and fear the return or that
there may be long-term side affects related to the chemotherepy. I have been unable to locate any medical research that may help him to answer any questions. If anyone has been cancer-free and went through chemo treatments as he did, I would greatly appreciate any information you could give. My prayers are with everyone on this site who are currently going through cancer treatment.
I pray that each of you will seek your strength through a God who can strengthen through all adversities.
Kathy Johnson (meatchicatsal@hotmail.com)
Pulaki, Tn USA - Saturday, December 30, 2000 at 22:40:32 EST
My wife was recently diagnosed with non small cell lung cancer that has metastisised to her bones (stage IV). She has just started radiation and chemo treatments. We are desperatly seeking stories of any survivors of this advanced stage of lung cancer. Please email if you can help. Thanks, Roger Boyd
Roger Boyd (rogerboyd@hotmail.com)
USA - Saturday, December 30, 2000 at 03:32:57 EST
Have colon cancer - I have had surgery and am undergoing chemotherapy.
Jo Ellerbee (jodon@alltel.net)
Thomaston, GA USA - Thursday, December 28, 2000 at 20:16:08 EST
Hello.This is the first time that I have been on this site.My mother was d/x with esophagel cancer 3 months ago. She underwent surgery 7 weeks ago but, unfortunaly they were not able to remove the esophagus(after 7 hours of surgery). She just started her chemo/radation teatment yesterday. I was just wondering if anyone has any information that would help our family. I want everyone to know that I think this site is wonderful. Thank you all so much. God Bless all of the survivors and caretakers.
Joanne (JMD524@aol.com)
Coral Springs, FL USA - Thursday, December 28, 2000 at 00:49:09 EST
Hi. I was diagnosed with Malignant Melanoma about 18 months ago. I had a lesion between my shoulder blades that was removed with extensive surgery. I also had a positive lymph node which required that I undergo a modified radical neck disection. I had daily chemo with Inferon for 30 days followed by home self injections for a year. I finished theraphy in August of this year. To date I am cancer free--but one never knows with melanoma what the future may hold. It was a difficult year and a half...and chemo was no fun. I was fortunate in that side effects were few. The most significant side effect was the constant total fatigue. It was much worse in the final 2 months of treatment. Life changes for you when you are a survivor...Some positive things as well as negative. Regardless of your faith do not underestimate the power of prayer, ask friends to put you on their prayer lists. Keep your chin up and have courage! The alternatives only add to the progression of the disease, an enemy worthy of all you have to fight with. Send me mail if you would like to discuss things, we are all members of the club now!
Ron Audette (R0363@aol.com)
Lincoln, RI USA - Wednesday, December 27, 2000 at 09:26:16 EST
My mom was just diagnosed with ADENOCARCINOMA of the STOMACH, the diffuse kind, and they're advising her to do PRE-SURGERY chemotherapy. Apparently, it's a relatively new treatment. We don't know anyone who's had pre-surgery chemo. She would have to wait for the actual operation for about two months, all the while undergoing chemo. Does anybody have any information on the subject?
Thank you,
please contact me at polarbear@burningmail.com
helen (polarbear@burningmail.com)
brooklyn, ny USA - Tuesday, December 26, 2000 at 23:21:47 EST
Hello to all:
My grandmother (68 years) was diagnosed with lung cancer (small cell) nearly 4 years ago. She has been recently taken off of chemo and given 6 months to live as the cells have spread to her liver. I would love to talk to anyone who can share in my situation with ways that we can make things easier for her. We have a hospice team in effect, but I am sure that there is someone out there who can tell me what they would have done differently in a similar situation to make things as comfortable as possible. Thanks in advance,
Darren Wilson (dwiii@mail.com)
San Francisco, CA USA - Tuesday, December 26, 2000 at 15:06:09 EST
I am 45 years old and last year at this time was looking very bleak. I have rectal cancer withe mets to the liver. All I know is that you have to have faith and believe, I had a rectal resection on 10/01/99 which at that tine was to be agressive treatment for recourrence but after the second round of chemo the blood work was elavated the doc ordered cat scans ans the mets to the liver in the locations were at that time inoperable left and right sided and one deeply embedded very close to an atery between the breast bone. Talked to a liver surgeron who felt if we could keep things at bay for 6 months that he didn't think this would be immpossible but very complacatied. The campostar chemo treatment stabled it for a short time after 4 sessions it was found not to be working so this was also stopped. In March we had started talking to a liver surgeron at Mass General who really took his time reviewing things and after MRI and carful research decided we would go for it he wasn't sure if he could resect the deeply one they were going to have a second sergeron use what they RFAto burn that one out, he was able to remove it surgially he nicked an artery but he also saved my life, he risked his life to safe my life when he was told to clear and would not let go of the hold he had on the artery. He also implanted an intra hepactic pump to deliver chemo directly to the liver at this time.
As of today the chemo has been stopped due to clear ct scans and normal blood work I have some fluid on the pelvis area that will be removed this week.
All I can say is believe in the power of prayer .
I thank God for my wonderful family, The wonderful doctors who care for me. And the people who pray for me.
God Bless you all
Nancy
Dx 091399
resection 10/01/99
chemo 10/26/00 to 11/25/00 failed
chemo 12/15/00 to 02/15/00 failed
liver resection 04/23/00
chemo via intra hepatic pump 06/08/00 to 09/22/00
Nancy (nbbarry@aol.com)
Brockton, Ma USA - Saturday, December 23, 2000 at 07:02:55 EST
My 66 year old mother was diagnoised with mantle cell lymphomia, I am sure I spelled that wrong, Could some one please send me an address for a web sight where I can find out about this. what to expect, I just found out last night 12/20/00 and I am still in shock. Please help me.
Ray Rice (rayrice2@aol.com)
indianapolis, in USA - Thursday, December 21, 2000 at 07:56:39 EST
First of all, I HOPE ALL OF YOU AND YOUR FAMILIES HAVE A HAPPY HOLIDAY, remember to take the time and spend with your family and especially your children.
I'm glad Joe is responding to treatment, that is great! Hang in there, it is a long long road and I will not lie to you about that. I have been by my sons side now almost for a year and he too is responding to treatment and we are looking for remission possibly, I would prefer a cure but I know that is way to much to ask for. My son is 17 and has ALVEOLAR RHABDOMYOSARCOMA STAGE 4, not a great diagnosis but he has responded very well for a disease with mets. I am very proud of him and how he has handled this entire year, I cannot say I could have been as strong. Defeating this disease or any of these 'C' is a challenge but IT CAN BE DONE, stay positive and don't let it consume your lives. My son says he lives for everyday and he is very happy and smiles alot now sometimes I forget he is even sick he is so happy. Tell Joe to keep his chin up and his attitude strong. Have very nice holiday.
Tracy
Tracy Baumgardner (Tracy.Baumgardner@CapBlueCross.com)
Enola, PA USA - Wednesday, December 20, 2000 at 14:31:25 EST
The following website is the best help you will find for all the pancreatic cancer patients, survivors, also a marvelous site for Bereavement. I found it almost as soon as my late husband was diagnosed 5/98 and researched questions, support from so many marvelous people walking in my shoes and continues even now after 5/2000 when my strong, valiant fighter of a husband lost his battle with this horrendous disease! Please, please, log on to:
http://www.path.jhu.edu/PANCREAS CHAT/ It was begun and still is sponsored by Johns Hopkins Hospital, Baltimore, MD. Wonderful doctors in the research for early detection and cure of pancreatic cancer. Please do not hesitate to e-mail me if you're not sure of this site. It is a most wonderful help. Also, our PanCan organizatiion in California has wealth of information. E-mail Pam at pacosta@pancan.org
Florence Bretan (flerman@bretan.com)
Atlantis, Fl USA - Wednesday, December 20, 2000 at 12:55:03 EST
My mother was just recently told that she has Cancer again. This time it is a different kind it is called ADENOCARCINOMA BREAST CANCER. she is going through KIMO. I'm glad she is doing some much better than she was. She would like anyone who has experienced this type of Cancer to please e-mail me and give me the # so that she can speak to you and get through this with someone who actually knows how it feels. I am also speaking on behalf of my Aunts Linda and Vicki. Please keep them in prayer for they too have breast Cancer. GOD BLESS
Marlyssa (pashun4uit@aol.com)
Bloominton, CA USA - Tuesday, December 19, 2000 at 19:44:56 EST
Hello from someone with great news! On October 31, 2000, I learned I had Renal Cell Carcenoma, with a 2" x 3" malignant tumor in my right kidney. On November 21, 2000, the kidney and tumor were removed. It was totally encapsulated and no treatment is necessary. I refused to "own" the tumor. I went into this by saying I did not have cancer, but my kidney did. I am so fortunate, to be sure. I send my warmest wishes and sincere prayers to all of you, for better health and a joyous holiday season. May the new year bring rich blessings to all of you.
Sändra Butz Woolcott (snowbunny@nvsn.com)
Elgin, IL USA - Monday, December 18, 2000 at 10:57:19 EST
It will be 2-years in april since Iwas diagnosed with glioblastoma multiforme grade IV.I would like to correspond with anyone who knows or has this disease.
mitchell Cho (chom001@hawaii.rr.com)
Honolulu, HI USA - Thursday, December 14, 2000 at 15:19:52 EST
My father was just diagnosed with adenocarcenoma. It started in his pancreas and met. to his liver. They say surgery is not an option. Does anyone know of any success stories similar to this scenario? Treatments that might work? Please respond. He is 48 years old, and I am 26. I am far from ready to lose my father. Any hope that someone can give would be greatly appreciated.
Ryan Wilson (rywilson@rhythms.net)
Arvada, CO USA - Wednesday, December 13, 2000 at 15:13:00 EST
I'm 24 years old and have acute lymphocytic leukemia. Whenever I need a little "pick me up" I read Isaiah 40:30-31. That verse, along with God, some great doctors, and a strong family is helping me cope and beat this disease. I enjoy talking with people about cancer. If you wanna talk drop me a line at dfickbohm@yahoo.com
dustin fickbohm (dfickbohm@yahoo.com)
Brookings, SD USA - Monday, December 11, 2000 at 20:33:54 EST
Hello Everyone,
Latest update on thing is... I have gone thru the surgerys and everything is going well. As it turns out there was no cancer founr in my lymphnodes and wil not be going thru chemo as of yet( only if it returns ) so now i just go see my friendly neighborhood oncologist every 6 weeks and hope for the best the next few years. I thank all of you for your support and e-mails.
Sincerley,
Allen Stovall (Peacefull)
Allen Stovall (electronjunkie@yahoo.com)
Salina, Ks USA - Monday, December 11, 2000 at 09:52:04 EST
My beloved Joe has been told his pancreatic cancer has decreased in size. He has started his second round of treatment. He seems to be in better spirits, although he remains angry at me for what reason I don't know. I am hurting for this rejection. He refuses to talk about anything with me. No way to reach out to him and I know he love me,however he indicated he wants me to fine another life.I can never totally because leave him. He is my life. Has anyone been treated this way? Iam so sad,Yhanks for your input.
Peggy Harris (peggy@agressiveonlime.net)
Leitchfield, Ky USA - Friday, December 08, 2000 at 16:18:40 EST
My fiances dad was diagnosed with pacreatic cancer. He has 1-5 years to live. My fiance is so close to his dad. He's going to take this pretty hard when his father's gone.
Brandy Belcher (Sexythuggyrl69@collegeclub.com)
East Peoria, IL USA - Friday, December 08, 2000 at 11:04:03 EST
Hello and thanks for reading this. I'll try to be concise, but I just wanted to tell my story; hope it may benefit somebody else as well as myself...I am a SURVIVOR of cancer of the larynx--so far, anyway. I feel blessed and yet still bewildered in the aftermath of the disease. Facing the Big C put me through a lot of changes. Some are positive--most notably, a renewed appreciation that it's GOOD to be ALIVE! But of course life in the aftermath is certainly no EASIER than it was before...I'll sum up my own battle as briefly as possible. It was less than a year ago I got the bad news that the warty lesion on my larynx was malignant: Dec.13,'99, a date I'll never forget. It was late Jan. 2K when I began undergoing radiation (first I had to have some oral surgery & recover from that) which was completed in early March; since then I've been cancerfree (I always knock wood when I say that!) So it all seemed to happen at dizzying speed. It was easily the worst ordeal of my life. I was sick and in pain and anxious and depressed; it was virtually impossible to even swallow anything, much less keep it down. And yet I saw fellow patients every day who were much worse off than I. I was lucky to recover as well as I did; lucky I didn't have to have chemo too (let alone surgery after the initial exploratory)...just not lucky enough to escape cancer in the first place. And I've been lucky enough to thus far remain in remission, though one never knows what may happen in the future. I could go on & on, but I'll try to summarize: life after cancer is a challenge as well as living with cancer, but it's a challenge I'm glad to have the opportunity to face. As for the challenge of the battle with cancer, I endured it because I had no other choice except to give up and die; I never thought of myself as being strong, but I found I was as strong as I had to be despite grievous self-doubt. And yet I still struggle with the everyday challenge of trying to make the most of my new lease on life. --Good luck to all whose lives have been touched by cancer. I've never been a religious person, but I believe nonetheless that prayer is a potent force. One final note: my life had been touched by cancer before. A few years back, my wife lost her father to lung cancer after he finally lost his long and grueling battle with it. But that's still difficult to talk about. It's just another example of living with something deeply painful because one must.
S. Vivor (sirvivor2k@hotmail.com)
USA - Friday, December 08, 2000 at 10:56:36 EST
Anyone who has experienced removal of stomach due to cancer please reply. Would love to compare experiences.
Spinach (res00el3@gte.net)
everett, wa USA - Thursday, December 07, 2000 at 15:15:37 EST
I recently had my stomach removed for cancer. I am learning to eat with my new stomach. I would love to talk to someone who has experienced the same. My hope is that we could be a help to each other by sharing our experiences.
Bob (res00el3@gte.net)
Everett, wa USA - Thursday, December 07, 2000 at 15:07:45 EST
I feel so inadequate after having read what other peope are going through. I am so very sorry for everyone. My husband has just been diagnosed with a mesothelioma (lung cancer caused by asbestos). Strangely we dont even recall when he could have even been exposed. We have been told that there is little that can be done for him, this particular type of cancer is most always terminal. I am very frightened. I don't know what to expect will be happening to him and I dont know what I should do or not do when these things happen. Can anyone clue me in as regards the progressions of this desease. I am currently holding a full time job and know that eventually I may need to take family leave, but I don't know when and how will I know. I can't get him to talk to me about what is going on, he goes each day like nothing is wrong. Whenever I am in the car alone I find myself crying and if I talk to anyone I burst into tears. I feel so helpless. He's the one thats sick and yet he hasn't cried yet. I really need to know what is going to happen. Thanks.
Gloria Sharpe (g.sharpe@dietzandwatson.com)
Philadelphia, Pa USA - Thursday, December 07, 2000 at 07:55:33 EST
Iam 55 years old and just had my left leg amputated at the knee and looking for a female about the same age and the same problem I have to keep in touch.
Charles Campbell (C.Campbell@WilmingtonTrustCompany.Com)
Wilmington, De USA - Wednesday, December 06, 2000 at 05:48:24 EST
Hello,I last wrote in september about Tom my fatherinlaw he had the whipple then chemo and radiation had his catscan done in november.The Dr. said the cancer appears to be gone however to knock it into remission he is taking one more round of 5fu chemo 1 time a week for 20 weeks he also is taking another treatment with it also using procrit to up his blood count this is a bloodless alternative and it has worked for Tom and the Dr was surprised as to how well it worked The Dr wanted to transfuse Tom but Tom wouldnt allow it so they used Procrit: taking chemo lowers your resistance and you could eaisly catch something (anything) by taking blood so if your Dr recomends transfusion ask about Procrit it worked for Tom.Tom is hanging in there he is going crazy from sitting at home not able to work but hopefully soon he will be back to his normal activities he has good days and bad days but his energy level is going up and his pains are not bad as before he is finally maintaining weight and eating decent he still has loose bowels from chemo and constipation too all side effects from radiation and chemo plus the nasty taste in his mouth from chemo Well so far so good hopfully he will beat this and live a lot longer. I lost my grandmother 2 days ago to cancer she has fought cancer of differnt kinds for many years 25 or so she was 71 I am sad too lose her but happy that she is no longer in pain !!!! Tomorrow is the funeral and I am not really looking forward to it . It is not easy to deal with losing a loved one but fortunatly I have family to help we support one another and I belive in God and his promises in the bible I know I will see my family agian and this helps MAY GOD BLESS US ALL !!!!
Shawn (sljccj@netzero.net)
indianapolis, in USA - Monday, December 04, 2000 at 23:23:20 EST
I have a close friend (67 yrs old) with adeno carcinoma (tumor on liver)and is considering using thalidomide for treatment. Is there anyone who has information from experience regarding success and side affects? Thank You
Bruce (res007w9@gte.net)
Bellevue, WA USA - Monday, December 04, 2000 at 23:14:35 EST
I was diagnosed with Thyroid Cancer last year while being treated for Chronic hepatitis c. My entire Thyroid was taken out and I had radioactive iodine. While my last test was clear, the hepatitis continues to destroy my liver. I live one day at a time,now, while working a full time job and caregiving a fellow cancer survivor.
David Smith (cansurvivor1@hotmail.com)
Prescott Valley, AZ USA - Monday, December 04, 2000 at 16:17:22 EST
i have a few family members that have cancer differnet types and only oone person who had it survived and that was my aunt and i think that the peoplewo do have it if they survived it or not i think that they are very brave ..alot braver then i would be and i want everybody to know that i belive in people with cancer and want them to know that they do have friends who understands what there gong through even if we haven't met and i would like to say that just becaues im 16 i dont always mean that kids dont know what adults are going through just because were younger thank you and i hope my imput helps someone even if its just a little .(i know it probably don't make sense but it is the truth)
hollie (redflower101784@aol.com)
indianapolis, in USA - Wednesday, November 29, 2000 at 14:35:13 EST
Hi, my name is Jennifer. My husband Scot, 31, is beginning ABVD chemo 11-29-00. He will recieve 6 months, 2 week cycles. Every doctor we ask says we have no idea how this treatment and side effects will be for him, different for everybody. OK, I get that, but I want to hear the norm. There has got to be a decent guesstimate on what he can expect. Someone please be honest with me. I want to be prepared for anything. We will never be caught off guard like we were the day they told us he had cancer. I am not squeamish so don't worry aobut that. Please help me prepare some. Thanks, Jennifer Stepleton,27
Jennifer (robertstepleton@home.com)
Fort Wayne, IN USA - Tuesday, November 28, 2000 at 01:33:15 EST
Hi, I came cross this Cancer-Survior Guestbook a few nights ago. I was trying to do some reschearch on Hodgkin's type B stage 4, my husbands ex-wife has just been told with the past week that she has it. At the same time her mother was in the hospital dying from cancer tumor in her lung. My husband David was told he had cancer in June 1996. The cancer was in the cancer was int he floor of his mouth. They did surgery, never hads to do any treatments and this past June marked 4 yrs cancer free. At the same time 10-96, my mother was told she had cancer, it was a tumor bettween her vagina and rectum area, called cancer of the vuvla. She had surgery in 11-96 and started radiation treatments that lasted 3-4 months. Then in 3-96 she found swollen lymp nodes in her groan area, they went into remove them and then started chemo treatments, once every three weeks. On 9-16-97, my mother was sent home and hospice was asked to step in. My mother passed away 10-29-97. I know that this is a survior guestbook, but I am a survior, not of cancer, but the effects of cancer and what it can do to the other members of the family that actually do not have the cancer. I am a survior as well. Lisa J Schuler
Lisa J Schuler (LJSOhio@aol.com)
Cincinnati, Oh USA - Monday, November 27, 2000 at 23:48:06 EST
Hello, I am a testiclar cancer survivor. I got the disease when i was 21 years old. It has been 2 years and I am still in the clear. It was difficult at times for me because I did not know or talk to anyone who has gone through this personally. I would love to speak with anyone who has questions concerning this specific area, especially if you or someone you know is going throught this. thanks for your time.
trent tripp (ttripp@ccboe.com)
waldorf, md USA - Sunday, November 26, 2000 at 18:07:08 EST
I am currently receiving Adriamyacin & Cytoxin cheomo therapy for breast cancer. I have had periodontal disease. Am now experiencing achiness of the "teeth", hurts to chew and a swelling of a portion of upper mouth. This is the 2nd cycle of drugs. On the 1st cycle I only experirenced the swelling. Are my teeth going to fall out? Please let me know of similar experiences.
Dee Moreau (ddblythe@yahoo.com)
USA - Saturday, November 25, 2000 at 12:59:32 EST
I am a breast cancer of 22 years--Nov.6,1978--Surgeries, chemo for one year, radiation for 5 weeks plus all the mental emotional confusion--but---today I am still "kicking" and helping others to see each day as it comes and live it to the fullest and wisest. At least I hope I have earned an area in the "wise" column---Shari
Shari S. Marrazzo (shari@madras.net)
Metolius, Or USA - Friday, November 24, 2000 at 15:24:41 EST
I RECENTLY HAD MY ENTIRE THYROID REMOVED BECASE OF CANCER. THE LEFT LOBE WS REMOVED FRIST. THEN 2 WEEKS LATER THE RIGHT. I AM GOING IN FOR A SCAN AND RADITATION SOON. I AM A 42 YEAR OLD FEMALE ALTHOUGH I HAVE BEEN TOLD THE CANCER WAS CONTAINED TO THE GLAND THAT WAS REMOVED HOW CAN YOU HELP BUT BE SCARED TO DEATH?
TONI GIELLA (MGIELLA@STNR.COM)
CHICAGO, IL USA - Tuesday, November 21, 2000 at 11:14:32 EST
Just came across this web site. I have niece who is recovering from her third surgery removing canceious tumors that began with first having being dignose with cervical cancer. She has fallen into a deep depression and the doctor has put her on prozac and anxcitiy medication plus pain drugs. How can I help her come out of this depress state in her recovery process. she tell me she is very afriad but does not know exactly what it is that frightens her. She is a christian and believes in her salvation, but this frear in her mind does not let her rest. Any suggestions?
Frank Diaz (f4x@aol.com)
Dallas, Tx USA - Monday, November 20, 2000 at 12:58:18 EST
Just came across this web site. I have niece who is recovering from her third surgery removing canceious tumors that began with first having being dignose with cervical cancer. She has fallen into a deep depression and the doctor has put her on prozac and anxcitiy medication plus pain drugs. How can I help her come out of this depress state in her recovery process. she tell me she is very afriad but does not know exactly what it is that frightens her. She is a christian and believes in her salvation, but this frear in her mind does not let her rest. Any suggestions?
Frank Diaz (f4x@aol.com)
Dallas, Tx USA - Monday, November 20, 2000 at 12:58:18 EST
My dad was diagnosed two months ago with Liver Cancer (neuro-endocrine tumour). He's been given 6 weeks to 6 months. Two weeks ago he was operated on and half of his tumour as well as half the liver was removed. He needs to start eating to build up his strengh but is finding it very difficult because of the constant neausea. Is there anyone who's had these symptoms, if so please tell me how you fought the neausea (medication is not helping at all)? Thank you and God Bless.
Tara Sapra (sparkyr@email.com)
Zurich, Switzerland - Monday, November 20, 2000 at 09:19:28 EST
I have ov cancer for 10 years, I went 9 years with no sign of it untill last year, then I went through treatment again. I went almost one year with no sign of it. Untill last week. Now I may have to go back through treatment agian there not sure. I feel very lucky for how long I have bet cancer, just keep fighting. Someday they may find a cure for this disease. So I really know what you are going though. I last my husband 5 years ago to cancer. That was very hard for me, because i was a survivor I just did not understand why he could not bet it, I'll never know why but someday I may understand it. Thank you and keep up the fight.
Kathy Prosser (Prosserkacky@aol.com)
Chelsea, Me USA - Sunday, November 19, 2000 at 19:21:43 EST
I have watched and followed organizations such as The Make-A-Wish Foundation for many years and although I realize their services are specifically designed for children, I was hoping someone might be able to help me out with a suggestion or referral for my situation.
My 67-year-old father has just been diagnosed with Lung Cancer and this may very well be his last Christmas with us. This is all very new and very overwhelming to our entire family as I'm sure most of you know. I am seeking an organization that I could contact in regards to requesting a Christmas wish for my father. I'm not even sure exactly what the wish would be yet, I just want to try and make this holiday as special as possible for him.
Any advice or suggestions you could give would be greatly appreciated. Thank you.
Rob T. (rterrazas@rachlinarchitects.com)
Long Beach, CA USA - Thursday, November 16, 2000 at 18:41:19 EST
My beloved Joe,has completed 6 wks. of chemo.for PC that mes. to the liver.He plans to go back to Vanderbile hospital next week to see if any changes in his DX. His statments are if no inprovement, he is stopping treatment. Is this rational? Please someone respone. Thanks, God Bless.
Peggy
USA - Thursday, November 16, 2000 at 12:25:34 EST
Hi i myself is not a pacient but my father is.he has carcenoma of pancrias that counts very dangerous deseas.
Two and a half years ago he had very strong pain in his stomoch,for a long time doctors couldn't find the cause but finaly they did.He was told that he would live for few month or maximum a year.My mother didn't tak it well but she did't brake!
My mother has a medical education,she started to search for medicins and natural products in order and goal to heel my dad.She found many madicins and products from alternative medicin.Today my father is alive(he lives with the cancer 2.5 years)his condition is much better than it was he even stoped takin chimoterapy fot 0.5 year.I'd like ,if someone
knows something about this tipe of cancer,to send me the information.We all shold cross hands and beat thous auful deseases.I personaly recomend to try alternativ medicin it realy helps!
Evgeniy Vaisman (evg_v@zahav.net.il)
Katzrin, Israel - Friday, November 10, 2000 at 10:38:36 EST
I have recently been diagnosed with chronic lymphetic leukemia. I am at stage one. (goes 0-6). My Dr. says there is no treatment at this stage of the leukemia. The window of longevity is 10 years. I would love to hear from anyone else who has CLL. I have a very high white cell count and lymphocite count. I feel weak, fatigue easily, sweat when I do much activity. (I am 46 years old) My Dr. says I should not have any symptoms at this stage. I have been tested for other disorders, but they have all come back negative. Is my Dr. correct that I should feel fine in the early stages of leukemia? I want to return to work but do not feel I can get through a full work day. Can anyone relate to this? I would love any correspondence. Thanks and God bless!!
Susan (Sioux855@aol.com)
Palm Bay, FL USA - Wednesday, November 08, 2000 at 22:17:30 EST
I am a 29 year old. Three months ago I was diagnosed with adenocarcenoma of the cervic. I was told that because the cance was high up in the cervix bordering on the uterus, the best treatment for this type of cancer would be to have a hysterectomy. As I was not yet married & have no children my specialist opted for a cone biopsy. The biopsy was performed with sucess & I have now been given the all clear. I would really like to know what adenocarcenoma actually is & if anyone know's is this type of cancer is likley to reoccur. My doctors tell me very little & say to jut forget about it until my next test time in 4 months. I would appreciate any information anyone may have. Thanks!
Renee (reneehampton@yahoo.com)
Sydney, NS Australia - Wednesday, November 08, 2000 at 21:07:15 EST
My Grandmother was given 6 months to live....that was 1 month ago, the doctors are now giving her chemo which they say will only give her 1-2 more months. She is now getting sick from the chemo and I want her to try some herbal therapy's to cure her....if anyone has any info that could help.....PLEASE time is running out.
Rhonda (badgerfsj@awink.com)
Canada - Wednesday, November 08, 2000 at 15:27:33 EST
I have a 17 year son that was diagnosed January 2000 with stage 4 Alveolar Rhabdomyosarcoma. Lee, this is his name is doing great and getting ready to complete his 14 cycles of chemo. We have had no new growth and scans show no evidence of cancer at this time. I encourage all of you to continue to fight and keep your spirits high! Your attitude is half the battle. Unfortnatly, my son lost alot of his eye sight before diagnosis could be made, but he is doing okay and is able to go out with his friends and enjoy the things he likes to do (except drive the car). If there is anyone who has the same type please contact me I'm always looking for survivors of this cancer. We are coming up on 1 year and looking forward to many many more. Take care.
Tracy Baumgardner (Tracy.Baumgardner@CapBlueCross.com)
Enola, PA USA - Tuesday, November 07, 2000 at 14:55:52 EST
My sympathy to all. My husband was dx with adenocarcinoma of the liver with unknown primary this June 2000. He has underwent two rounds of chemo with carboplatin and Gemzar. He was unable to take Taxol or Taxotere d/t allergic reactions. He is only 32yo and we have two children ages 9 and 10. Is there anyone else out there with a similar diagnosis? We are all scared. Please resond. Thanks, Kim
kim gerald (dino@servusa.com)
rockingham, nc USA - Monday, November 06, 2000 at 20:00:16 EST
i had cancer at 17 year from the drug DES, now 47 yr. have mydad has prosate cancer now at 80. at first dr,. thought he did not need treatment. now getting hormone treatment not sure what next. thanks lynne
lynne stanford (lyns42053@aol.com)
amarillo, tx USA - Sunday, November 05, 2000 at 19:46:57 EST
Hello my name is Deborah Pace and my nine year old son Joshua has Brain Cancer called Glioblastoma Multiforme (GBM) Grade IV he was eight back in Sept/1999 when his cancer was found, it has been very hard for me to do this but God will allow me to.I need to see my son grow up to live a good life,what Dreams may come our way,I can only Hope:i have 4 more children names and ages are Ronald 18, David 13,Takeisha 11,and Natasha 7 we have to stay togeter as one,that is all I know how to do.please forgive me for my words some times flow.I pray that each and every one of you and your family's are well and that no matter what you can and will fine a way to do this togeter.Oh how my son's smiles warm my heart,and soul.Am not saying that he some times do still make me mad at him, it happen;s as well as all that I may feel from hour to hour,I never seam to know how I will be feeling next,this to I pray would get better as my child does.I dont ack as if there is not a thing wrong,no not a!
t all but right now my son;s play's and he is back in school on alot of Days now.yesterday will always be with me but tomorrow will come by the hour hold on to hope as my son does in God,love,life,and mom.be go to your self day by day.
Deborah Pace (dahp8@starfishnet.com)
Beaufort, NC USA - Sunday, November 05, 2000 at 14:28:53 EST
My friend has advanced pancreatic cancer whichhas met.to liver.He's been advised he has 3 to 6 m0s to live and sugary is not an option. He's now in his 3th week of chemo. and has swelling in adom.
peggyharris (peggy@agressiveonline)
Leitchfield, KY USA - Saturday, November 04, 2000 at 22:41:54 EST
My 34 year old husband has just been diagnosed with cancer of the pancreas, which has spread to the Lymph glands in his neck & stomach. Dr's have ruled out surgery & he started chemo this week; Cisplatin and Gemsytoban(?). We understand it is very rare for someone so young to have this type of cancer; he doesn't smoke and was fit & healthy. We have an 18 month old son & he's determined to see him grow up. I'd love to hear from anyone who has survived this disease or is undergoing the same treatment.
Karen Brookes (brookeskaren@hotmail.com)
Chelmsford, England - Friday, November 03, 2000 at 09:17:05 EST
Reading about what you're going through breaks my heart. You see, I've been there. 27 years ago my husband was diagnosed with reticulum cell sarcoma and given 6 weeks to 6 months to live. The good news is: he is alive and doing well. In order to encourage other cancer sufferers to not give up but to look to the Great Physician for help, I wrote "The Healing," (sub-title: One Family's Victorious Struggle With Cancer), published 1982 by Tyndale House and just re-issued due to popular demand. Please visit my website: www.brightmorning.com to read more about it. God bless you and strenthen you in your fight.
Gloria Cassity Stargel (info@brightmorning.com)
USA - Thursday, November 02, 2000 at 22:52:15 EST
I NEED SOME INFO ON RADIATION FOR BREAST CANCER I`LL BE GETTING IT IN 10 DAYS AND WANTED TO KNOW SOME OF THE SIDE EFFECTS. OH, BY THE WAY WHY IS IT SO DIFFICULT TO GET IN THE CHAT ROOMS FOR CANCER SURVIVORS ??
IDA :o)
ANA I ORTEGA (IDA7363)
NORTH BERGEN , NJ USA - Thursday, November 02, 2000 at 13:48:28 EST
My son was diagnosed Jan 2000 with stage IV, Alveolar Rhabdomyosarcoma with mets. My heart goes out to all of you and I wish the best for you all. My son is doing great. I want to tell everyone if you have a rare cancer or sarcoma you may want to inquire to the National Institute of Health (NIH) in Bethesda, MD. This center has worked wonderfully with us and has great knowledge in the cancer field. I am looking for survivors of this type of cancer, please don't be afraid to contact me. I would love to hear from you. My prayers are with all of you, God Bless!
Tracy Baumgardner (Tracy.Baumgardner@CapBlueCross.com)
Enola, PA USA - Thursday, November 02, 2000 at 10:56:05 EST
JUST FOUND THIS SITE BY CHANCE .MY DAD HAS JUST BEEN TOLD HE HAS LUNG CANCER IN ADVANCED STAGES, ONLY 4 MONTHS AFTER BEING GIVEN THE ALL CLEAR BY DOCTORS. THEY LOST THE XRAYS 10 MONTHES PREVIOUS. I WAS JUST LOOKING ON THE WEB TO FIND OUT MORE ABOUT CHEMO WHEN I FOUND THIS SITE, IVE NEVER WRITTEN A LETTER IN MY LIFE .JUST A FEW SHORT EMAILS BUT I WOULD LIKE TO SAY GOOD LUCK AND BEST OF HEALTH TO EVERY ONE ON HERE ,I CANT BELIEVE IM WRITTING THIS WITH TEARS IN MY EYES ALL THE BEST
MARK [IN THE UK]
MARK (MARK@KERENWILKINS.FREESERVE.CO.UK)
WICKFORD, ES UK - Tuesday, October 31, 2000 at 20:17:55 EST
This is a wonderful site, and you are all incredible people! My prayers go out to every single one of you. My friend was just diagnosed with adenocarinoma of the small bowel. His doctors say that it is very rare and untreatable. I have looked through every one of these notes here and haven't seen it mentioned. Does anyone know anything about it? I would apreciate any help you can give. Thanks and best wishes to all.
Regina (Regina.Regazzi@bankofamerica.com)
New York, NY USA - Tuesday, October 31, 2000 at 16:49:10 EST
Hello.I myself is not a patient of cancer,but just 2 days ago from now it turned out that my very close uncle had been affected by an adenocarcenoma of the transverse colon.I have heard that it's really one of the most dangerous cancers of all.He is currently admitted in a cancer hospital in pakistan,And on this coming wednesday he is going to have an operation.May God be with him(inshallah).I wanted to ask anyone out there who has been a survivor of this cancer and what his method of survival was.Plz do help me out.And before i end this i would really like to say to all the people out there to not to stop fighting against the cancer,And that they should always continue their faith in GOD.Because no one on earth can save u except the GOD ALMIGHTY.Believe in Him from the deepest part of your heart and u will see how things turn good.Well thats it for now.I gotta go and check out my uncle's condition,Lets hope that nothing wrong happens to him and thus to his small children as well.Plz contact me whenever u have spare time as i badly need help from u.Thanx in Advance.
Waleed Durrani (waleed67@hotmail.com)
Islamabad, Pakistan - Sunday, October 29, 2000 at 04:32:02 EST
As a research neuropsychologist and health psychologist I've identified a set of 40 cognitive symptoms which occur to many women experiencing chemo-brain. These include changes in concentration, spelling certainty, speech, memory, etc. I describe them in my book "Menpause and the Mind" and describe the five categories of women who can experience these symptoms. This includes women who have suddenly lost their period due to chemotherapy. I've named it the WHM ("whim") syndrome for "A mind with whims of it's own". If those who have "chemo brain" log onto Amazon.com and then type in Menopause and the Mind, they will find the 40 symptoms in Chapter 1 (not the first introductory chapter) in Table 1. They can also read about women who have the WHM syndrome and what their experiences are like to see if they match their own experiences. In the book, which came out in hardcover in l999 and soft cover this past spring. I have a screening instrument in the book in a later chapter--the WHMSSI--and I am interested in doing research with it to see if those who have not had chemo for breast cancer do any differently in the number of symptoms they experience when compared with women who have had chemo treatment for breast cancer.
It's too long to go into at the moment, but there are possible science-grounded interventions that might help chemo-brain, for researchers interested in following up on what I have reason to believe is going on in "chemo-brain".
Given the newfound plasticity of the brain that has been discovered in the neuroscience in the l990's, there may be more hope for return of cognitive function than we would have suspected in the past. While replacement estrogen is not the likely answer to reverse the symptoms of chemo brain for those with a history of cancer--there are interventions that may well work which involve not estrogen but factors regulated by estrogen which are non-hormonal that may help chemo-brain.
I am interested in doing research in this area. If you know of anyone--your physicians-- interested in doing this form of work I would be interested in hearing from you and them.
I spent three years evaluating Alzheimer's patients for an experimental treatment (hyperbaric oxygen) for the disease years ago at NYU Medical Center, which is partially why I was tuned in to identifying the subtle often interior symptoms of WHMS (i.e. forgetting the names for one's best friend, one's children, reversing words, making errors such as the ones George Bush has been prone to i.e. saying "cufflinks" instead of "handcuffs", saying "terriers and bariffs" for "tariffs and barriers".
Those with the WHM syndrome--anyone from perimenopausal and menopausal women, or those being treated with estrogen-suppressing medications ( i.e. chemo) can experience this syndrome.
What I have learned is that those experiencing chemo brain who have not been warned about the possible cognitive side-effects--such as the WHM syndrome, wrongly and needlessly fear they are developing brain metastases. So it is important, I believe to get word out about the possibility of these often interior symptoms which make those who have them feel they might also be developing early Alzheimer's disease. EVen just knowing that these symptoms may occur can reduce fears.
I would also welcome the names of researchers who might be doing research on chemo brain right now and where they are located. Also any references would be much welcomed.
I would be glad to do a chat for the IRC Chat Channel if there is interest.
Sincerely,
Claire Warga, Ph.D.
Claire Warga Ph.D. (gl1@is3.nyu.edu)
New York City, NY USA - Wednesday, October 25, 2000 at 18:04:06 EDT
My husband Joe,. has been DX with Pancreatic and liver cancer, He has been advised he has only 3 to 6months to live. My concerns are what do I look for in his health decline. He is presently taking chemo.once weekly and gets very sick. please someone respone. Thanks.
Peggy Harris (Peggy@aggressiveonline.net)
Leitchfield, Ky USA - Tuesday, October 24, 2000 at 15:12:47 EDT
Hi! My dad recently died of melignent melenoma. I know this is a survivors page but I would like to talk to melenoma survivors. I just want you all to know to keep your head up and never give up hope. Please E-mail me. I love to talk about this.
Natalie Oldham (oldhamn@excite.com)
Knoxville, IA USA - Monday, October 23, 2000 at 18:54:32 EDT
CHEMO ANGELS
Hi! My name is Laura. I lost my father to cancer 11 years ago, and ever since then I've felt a need to reach out to cancer patients. Last year I started Chemo Angels, and I would like to tell you a bit about it. We are a volunteer group dedicated to adding a ray of sunshine to the lives of those undergoing treatment for cancer. We believe that men, women and children
who are going through the physical, emotional and mental rigors of chemotherapy and/or radiation therapy deserve some
pampering and special treatment!
There are three ways to participate in Chemo Angels.
- As a cancer patient who is about to begin, or has begun treatment. We will send you a questionaire to fill out, which will give us an idea as to what sort of surprises would brighten your day and lighten your heart. You will be "adopted" by a Chemo Angel who, through small gifts, cards, encouraging notes, etc... will be your angel for the duration of your course of
treatment.
- As a Chemo Angel. We are always looking for volunteers to undertake this intensely satisfying and rewarding commitment. Whether you volunteer once, or sign on for life, you are welcome and needed! This is a commitment of time and finances, however, and we ask that you only sign up if you are able to follow through. Each chemo angel is responsible for buying
and mailing the cards and small gifts for his/her patient.
- As a Messenger Angel. Help us spread the word! If you know anyone who would benefit from our service, please tell them about us or send us their email address and we will send them an invitation! Our website, www.chemoangels.com, is currently under construction; for now we can be contacted by email at ChemoAngels@yahoo.com
Money is never solicited from either Chemo Angels or cancer patients, nor are financial gifts accepted from either. This is strictly a labor of love.
Please feel free to contact me with any other questions you may have. Once again, we appreciate your
interest in Chemo Angels!
Sincerely,
Laura Armstrong
Founder, Chemo Angels
Laura Armstrong (springlap@yahoo.com)
Julian, CA USA - Sunday, October 22, 2000 at 03:45:44 EDT
Can Anyone mail the information on pancreas and liver cancer. My beloved Joe has been DX and advised he only has a few months left. My concerns are his deep angry and rejection of our relationship of 12 yrs. Is this normal?
Peggy Harris (peggy@aggressiveonline.net)
Leitchfield, Ky USA - Saturday, October 21, 2000 at 14:49:52 EDT
I am a 25 yr old daughter of my mother who found out in 1999 that she has stageIII ovarian cancer, and I am desperate to hear from others with the same or know of anyone with the same, to help us out with any information that they might have. Please write back if it is you or someone you may know, it would be greatly appreciated.
KayCee (Krazy-Eight@webtv.net)
havre, mt USA - Saturday, October 21, 2000 at 00:39:07 EDT
our 3 year old son was diagnosed November 1999 with what we thought was Rhabdomyosarcoma.Second biopsy showed that it was Metastatic Undifferentiated Sarcoma that had spread to lungs and lymph nodes. He had 10 months of chemotherapy, 12 weeks of radiation and surgery to remove primary site tumor which was found in the wrist. On September 1st 2000 he had his last chemo treatment and was considered to be in clincal remission. Because the cancer had spread there is a significant chance of relapse. Anyone out there who has child or knows of someone who has had same or similar cancer and what has happened to them. He is considered to be high risk, and was treated as if he had Rhabdomyosarcoma as there is no protocol for undiffernetiated sarcoma. Thank You and God Bless all you survivors and let's hope in 5 years time I am writing to let you all know that he is CURED!!!
Rosaleen and Erik (errojac@gateway.net)
Red Bank, NJ USA - Thursday, October 19, 2000 at 23:42:40 EDT
My Grandmother was just given 6 months to live, her cancer is everywhere. The doctors do not want to give her chemo, they say it will only give her 1 more month....I have heard of a doctor in the Philippines that is amazing, but no one knows how to get in touch with him...I am looking for any help....today is 10.19.00.
Please help us!!!!
Rhonda (badgerfsj@awink.com)
Canada - Thursday, October 19, 2000 at 15:18:54 EDT
Last week my mother, age 67 was diagnosed with small cell adeno carcenoma lung cancer. This is a secondary site, they are unable to find the primary site. What are the current treatments for this type of cancer? Right now she is undergoing radiation for the lump in her lung, but nothing is being done to locate the primary site. I would like to take her someplace where she has a chance of beating this, or at least extending her longevity. Any suggestions would be appreciated. Thanks.
JL Swan (jlswan@spg.ucsd.edu)
Vista, CA USA - Wednesday, October 18, 2000 at 20:19:39 EDT
I am Cancer survivor of two years (yeah still in remission). My diagnosis came when I was 24. Burketts Lymphoma was the type and I was fortunate enough to be informed that, even though it was rare, it had a high cure rate. Whenever I went through the initial emergency therapy, I had to have a blood transfusion afterward. Never knowing what my blood type was, I viewed it as a sign from above when I found that my blood type was B+ or "Be Positive!" I know it can be hard to think like that when you are faced with your mortality. I was lucky enough to have so many great people praying for me. Now I have a new perspective on life. I'm trying to change my career from something I tolerated to a dream that I had back in high school. I am going to take lessons from a best friend of mine who is a CFII (Certified Flight Instructor) to become a Professional Pilot. I love flying and it is so beautiful up there. Look to the sky, that's were I'll be.
Doug Sciotto (d_sciotto@yahoo.com)
Penn Run, PA USA - Wednesday, October 18, 2000 at 19:16:49 EDT
I am an envasive stage 3b cervical cancer surviver. I have three children, and was 24 yrs old..I was given a less then 30% chance of survival..I had radiation, internal radiation,chemo, and several operations..No hysterectomy.My tumor was to advanced..I have been through several doctors until i found the one who valued my life as much as i did..THe month before i was dx, my aunt had just died of breast cancer.She gave a couragous fight..My grandmother died of hochkins..Spelling bad. I was overradiated, and burnt holes in my bowels and my bladder. My right kidney does not function with out stints because of the radiation..I have a colostomy and a urostomy..I was told I was to die, and there was nothing they could do to win.Well they were wrong.Never give up your fight..Love , support,God, and knowledge bring you through..I now spend alot of my time helping young women in there fight..I will continue..No one should go through this alone..I wont let them..I wish all the best luck..If anyone would love to chat or has questions needs support or just to vent i am here for you..I keep in my heart all people, and familys who go through this dreaded disease..But please never give up the fight...One day i know we will WIN.!!!! GOD BLESS ALL. KEEP UP THE FIGHT.
Diana May (madiana436@aol.com)
Wonderlake, IL USA - Wednesday, October 18, 2000 at 12:21:06 EDT
Good news to report. Back in January-2000 I had written here in search of help and answers for my mom who was diagnosed with limited sclc back in November of 1999. I am glad to say the doctors say she is in remission. She has had her second round of her three month check ups and is still clear of cancer so far. I am interested in any other success stories to share, or just to answer questions and correspond with people or families with the same disease. God Bless!
kboneck (kboneck@thesurf.com)
wi USA - Tuesday, October 17, 2000 at 23:18:26 EDT
WOULD LIKE TO JOIN CHATS ON OVARIAN CANCER-BUT AM HAVING TROUBLE CONNECTING TO SITE.
megan obrien (megansobrien@hotmail.com)
sherwood, Arkansas USA - Tuesday, October 17, 2000 at 01:19:32 EDT
My brother was recently diagnosed with Melanoma Cancer Stage IV with 6 metases in the brain from an unknown origin (although there is a small spot in the lung.
He already had the gamma knife and awaits a chem program. He is 45 years old and was healthy. ANy thought or ideas? Any survivors. COntact me and I'll filter it to him , THanks, Lee
Lee Solow (solodoc@fea.net)
Corona Del Mar, CA USA - Sunday, October 15, 2000 at 01:11:42 EDT
I AM A 20 YEAR SURVIVOR OF BREAST CANCER AND I LIVE EVERY DAY AS THOUGH IT IS THE LAST, BECAUSE NO ONE KNOWS WHEN THEIR TIME WILL END.
JOLYN MENDEZ rljenkinsjm@aol.com (or) rljenkinsjm@earthlink.net
JOLYN F. MENDEZ (rljenkinsjm@earthlink.net (or) rljenkinsjm@aol.com)
BARSTOW, CA USA - Saturday, October 14, 2000 at 17:38:28 EDT
Hi there! I originally wrote in this Guestbook back in June of 1998. I think the records are in the archives somewhere.
I am the colon cancer lady with metastasies, who had operations and radiation. They couldn't radiate all, but the one that they couldn't reach disappeared on its own. I was in and out of hospitals for 3 1/2 months. Ended up in the Cross Cancer Institute Hospital, and got a Broviac which was imbedded in the left side of my chest. This is for IV as I have lost most of my bowels, large and small, and have a hard time maintaining fluids.
Unfortunately, in April of 99 I had to got into the hospital again, but this time due to my broviac, seems I had developed some kind of infection, so it had to be removed. I was in hospital for 3 1/2 weeks that time, and apparently almost died again, but not to cancer, uh uh, I'm a cancer survivor. Just the broviac. Well in August of 99 I got another broviac, this time on the right side of my chest and am continuing to do well again. Not only that, but when I was in the hospital they thought they'd have to put a shunt or stint or whatever in the passage of my left chest, but all was clear, so no procedure was necessary.
Now, I'm happy to say, I did something that I never thought I'd be able to do again, and that is about 3 weeks ago I was able, yes me, little 90 lb. me, to look after my two youngest grandkids ages 1 1/2 and almost 3 1/2 for 4 hours as my daughter was stuck and really needed someone. I was so glad that I was finally able to do something helpful for her, and of course, I had great fun with my grands, playing with them, bathing them, hugs and kisses to them and putting to bed. What a great time I had. I was tired, but it was a good tired.
Now, when my youngest grands come to see me, they RUN to me, arms outstretched, laughing and smiling and saying Hi Nana, the 2 most beautiful words I like to hear from them.
So, as you can see, I am still one very lucky lady living in Edmonton, and still enjoying life, maybe even a bit more now than the first time I wrote.
Hope everyone can be as lucky and happy as I am. Take care now and keep good thoughts, they sure help.
Lori Robb (lorrrobb@yahoo.com)
Edmonton, AB Canada - Friday, October 13, 2000 at 05:03:30 EDT
I recently had a Left Nephrectomy for stage I renal cell ca. I am very interested in speaking with others who have experienced this proceedure and all other aspects of recieving a diagnosis such as this> Great site!
Barbara Velen (yoffeetucker@msn.com)
Nyack, NY USA - Thursday, October 12, 2000 at 15:47:56 EDT
Hi - I am a leukemia survivor, actually, I call myself a thriver, because like so many survivors, we are doing alot better than just surviving.
I have a passionate message I have started to spread - in public seminars, colleges, etc. I was recently profiled in Dartmouth's Tuck School of Business alumnin magazine. Me message is threaded through that profile, which follows.
I am sick and tired of too many people who "cringe" at the word cancer. Employers do it, people dont know what to say or how to act around patients and suvivors. We are not damaged goods, but heroes, who, should any organization be suo lucky as to have one of us decide to join, they are fortunate indeed. As I try to resume my career, I am tired of hiding my story when I should be bragging about it. It is hard to explain to my childred and my wife. I am looking for support, suggestions and advice as to this message and how to spread it. People tell me this message is strong and needs to be spread.
Tuck Alumni Magazine profile
“Employers should be waiting in line to hire cancer survivors,” says Kip Cleaver (T’79). But the facts are that cancer patients lose their jobs at five times the rate of people without the disease, and survivors find themselves agonizing over how to deal with their history when re-entering the workplace. It’s a situation Cleaver finds frustrating, but motivating. “The truth is, people who have fought this come out mentally if not physically stronger, more focused, and certainly very clear about their goals in life, and how each part of their life fits into their plan.”
Cleaver is a veteran of the cancer war, having been diagnosed with chronic leukemia in 1996. He is also a casualty of the statistic cited above, having been fired after revealing his diagnosis and his upcoming bone marrow transplant. After surviving medicine’s “most devastating and risky procedure,” he then spent a year living in fear that even a cold could be fatal, while enduring a rare complication that earned him notoriety in a medical journal. With the doctor’s approval, he then searched over a year for another job, uncertain about revealing his health history, without success. “No one should have to go through that,” he asserts.
Now over three years post transplant, which is considered virtually cured, he is no longer the same person he was. “I don’t mean to sound trite,” he says, “but this fight absolutely changed not only my appreciation for my life, but helped me to re-evaluate it.” When you go face your own mortality, says Cleaver, you start to ask yourself Important questions: “What is my mission here? Is there meaning in the fact that I survived when so many others don’t?” After spending an intense year watching brilliant teams of nurses and doctors working together to save lives, he began to see that, “I didn’t want to spend the rest of my time here basically making rich people richer.” And he didn’t want to keep working in the same way.
Collaboration is a key component to Cleaver’s new way of thinking. Facing your own death puts the working world into new perspective. “It doesn’t make it unimportant; it just makes *how* you work that much more important,” he says. “I was once told I was too honest, an oxymoron according to how I was raised.” Cleaver credits his father with instilling that honesty, as well as the toughness that helped him survive. ”Three week canoe trips in the Arctic add to your confidence and your endurance,” he laughs. He also credits his mother’s giving nature: “She has always signed her letters: ‘Take care of each other,’” he says. That precept is now central to his outlook. “It’s like in a bike race, where people take turns in front, blocking the wind for the others. That team goes much faster with less effort. It’s a model for many aspects of life, including the business world.”
It’s definitely a part of his new ventures, which include both running his own tutoring business and his consulting gig with Market4Retail.com, a major player in the business-to-business e-marketplace, offering a comprehensive, “virtual reality” site where retailers and suppliers meet. “Collaboration is not just the heart of our website model, the CEO has a 100 percent team approach, and she is constantly on the prowl for territoriality and process barriers,” says Cleaver. He is grateful that she was willing to bet on him, knowing about his health history. “The environment she creates is a breath of fresh air.”
Cleaver’s future plans include a response not only to his negative experience navigating the work world after his diagnosis, but to the latest positive one at Market4Retail. “I’ve thought about a recruiting firm solely devoted to finding jobs for survivors of any life threatening diseases,” he says. “Again, these survivors are valuable assets to companies, because of their experience and perspective.”
Cleaver remembers well the unique, collaborative nature of Tuck. “That
atmosphere fostered such good friendships that when my classmates heard that after my transplant our house would have to be virtually sterile, they hired a maid service for that year.” And that’s why Cleaver is looking to Tuckies to continue to make a difference.
“You are and will be among the most successful in the world: Please don’t sit on what you’ve got,” he says. “All the studies show that wealth does not correlate with happiness. But I think that sharing it might.” Cleaver likes to point out that even Donald Trump is getting the message. “I saw his proposal that if the wealthiest people in our country gave one-tenth of one percent of their wealth, it would raise tens of billions of dollars. What’s stopping us?” And it doesn’t have to be only those people with billions of dollars: “I’ll write my check tomorrow if Don will write his,” he laughs.
Though laughing, Cleaver is serious about how much more can be done, on a community and global level, than is being done right now. “We can do so much better. This test has made me aware that not only am I incredibly blessed by the people around me, but that I have an obligation to try to make things better for others, on every scale,” he says. And citing Animal House, a big hit while he was at Tuck, Cleaver repeats to his classmates the immortal words of John Belushi: “Who’s with me?”
Kip Cleaver (kip_cleaver@hotmail.com)
Concord, MA USA - Thursday, October 12, 2000 at 12:05:21 EDT
Hi, my father age 60, has just been diagnosed with advanced pancreatic cancer, his doctor is not suggesting surgery. Do we get another oppinion? We live in the Midwest, anyone know of a great doctor to do the Whipple surgery? thanks in advance..........Joy
Joy Dods (MMDODS@PRODIGY.NET)
Sioux Falls, SD USA - Sunday, October 08, 2000 at 23:14:19 EDT
My mother was diagnosed with small cell lung cancer in July.
She just finished her third round of chemo. The doctors want her to start taking radiation treatments at the end of this month while she is still taking chemo. I would like to hear from anyone who has been diagnosed with this type of cancer or from anyone who knows someone in a similar situation. She had breast cancer in 1994 but the doctors say there is no relationship between the cancers.
Lisa (GeraldandLisa@peoplepc.com)
Mount Carmel, TN USA - Saturday, October 07, 2000 at 16:29:36 EDT
Hello. My name is Sean and I am nearly 17 years old. Last spring, I was diagnosed with Ewing's Sarcoma on my tailbone. The bone mass was approximately the size of a golf ball and the soft tissue mass was about half the size of that. My protocol calls for 11 months of intense chemotherapy and a little over 6 weeks of radiation therapy. It has now been a little more than 5 months since I was first diagnosed, and the bone mass is about the size of a quarter adn the soft tissue mass is nearly completely gone. I underwent radiation over the summer, and in two weeks I will be having an MRI, CT scan, and a bone scan to see how the radiation worked. I'm keeping my fingers crossed and I know that I will be OK. The reason that I know I will be fine is because I simply will not except anything less than a full recovery. No matter how sick I get and how many times I lose hope, I still believe that I will be fine because if I do not know that I am going to be fine, who will? I hav!
e learned a lot about the world and a lot about myself over the past 5 months, and I have realized that this world is a scary place. Its hard to look death straight in the face and not become a changed person. I am glad that I have had the opportunity to go through this now, because I know that the rest of my life, no matter how long that may be, is going to be so great and fulfilling. Because now, I truly live every day as if it is my last because the simple fact is, it may be. At first I was afraid to die, but to be honest, and this is something I would not tell my Mom, my Dad, my Brother, my Sister, or anyone else that I love, but I am no longer afraid of what lies beyond this world. I believe that if I was not meant to be here for a long time, then it just wasn't meant to be. I am not a afraid. I just keep telling myself to stay strong and to never give up, because If I give up, then all hope is lost.
Sean Lewis Robins (Ssrvivor@aol.com)
San Diego, CA USA - Friday, October 06, 2000 at 19:56:54 EDT
My sister-in-law has stage IV colon cancer that has spread to her liver and some nodes. Too many spots to resect. She is currently lookin at a trial in Detroit using exolatin and xeloda. She is also considering the Hoxsey treatment. Does anyone have any experience with this treatment? Thanks
Linda Godby (lgodby@msn.com)
columbus, oh USA - Friday, October 06, 2000 at 00:16:08 EDT
Is there anyone out there who has ALL but their blood work is showing to be normal and they are not experiencing any other symptoms. I'd like to hear from you.
Maryann (Glowwell@aol.com)
Pittsburgh, Pa USA - Tuesday, October 03, 2000 at 20:23:38 EDT
I had a small melanoma removed from my arm on June 13, 2000. I had a sentinel node biopsy three weeks later and the node
was clean. What a relief! Although I appear to be cancer free at the moment, I am still adjusting to life as part of a risk group. I would love to talk to folks with similar experience, if anyone knows of a skin cancer forum. I'm a little nervous--am I done with Cancer now, or is this the skirmish of a lifelong battle?
Ted Ficklen (ficklen@umsl.edu)
University City, MO USA - Tuesday, October 03, 2000 at 14:05:05 EDT
Twenty two year breast cancer surviver. I was thirty six when I found a small lump in my left breast. At that time, my Dr. suggested it would go away after my period, and that I was being overly concerned. Eighteen months later I had a lump the size of a walnut. I was a swim instructor, had six little girls and a husband that was away on a fishing boat most of the time. I had only a friend to support me at the time. My husband told me,I was makeing a big deal out of nothing, as I uasual. Well, we know it is a big deal. I am now,healthy,strong,and have such a zest for life. I do not think much about the cancer any more, but I remember the cold pain of my ex-husbands words almost daily.I have a great job working with veterans, they call me wonder women.
Jeannette W. Fisler (theshfiz@bellatlantic)
Buena, NJ USA - Sunday, October 01, 2000 at 23:10:57 EDT
Wonderful website. My mother was diagnosed with Brain Cancer in Mar 2000. She went through radiation and Temodar. She is currently doing well. I need information on what to expect as far as little things. Any information would be great to help us better prepare for surprises as we have already had some. Thank you
Sam Stellhorn (stella@htc.net)
Red Bud, IL USA - Saturday, September 30, 2000 at 23:07:13 EDT
My father was diagnosed with squamous cell carcenoma last week.(9/27/00)He is currently setting up a time for an operation to remove it and to see if it has metasticised(sp?).Please pray for him and our family.If there is anyone out there who has info on this type of cancer(the lump is inside of the bottom lip)please e-mail me with it.I would appreciate any help.
Jayme Caudell (stormyallday@yahoo.com)
Atkins, Ar USA - Saturday, September 30, 2000 at 22:57:26 EDT
Hello to everyone! I was just diagnosed with Hodgkins diease. I haven't started my treatments yet. I'm really scared! to say the least! I am a wife and a mom of twin sons age 9. I want so very much to see my children grow up and be great young men. If u are a survivor of Hodgkins diease please email me. I need the hope to look for. I need that light at the end of the tunnel. Let me know how the chemo affects you, and If u had to do the bone marrow they have told me about. If you have anything u can let me know about this diease please tell me. God bless everyone. And I wish everyone well!
Patti (phood221@aol.com)
Decatur, AL USA - Saturday, September 30, 2000 at 21:37:07 EDT
HI MY MITHER INLAW HAS ADENOCARCENOMA NON-SMALL CELL LUNG CANCER. I WOULD LOVE TO KNOW MORE ABOUT IT.
karen (ksundy@mweb.co.za)
JOHANNESBURG, SOUTH AFRICA - Saturday, September 30, 2000 at 16:47:09 EDT
hello everyone i wanted to update those of you who have emailed me regarding Tom my fatherinlaw who had a tumor in the bile duct removed via the whipple procdure. Tom will be starting his last two weeks of 5fuchemo and radiation so so good his biggest complaint is the nasty taste in his mouth from the chemo he gets tired easy but he said he feels much better then he did and the pains are subsiding the Dr said that this is a good sign and that the treatsments appear to be working thanks for you support and emails I tried to reply to all but i know i missed some of you stay strong and may god bless you!
shawn (sljccj@netzero.net)
indianapolis, in USA - Wednesday, September 27, 2000 at 19:00:58 EDT
Note to Charlene:
I have been trying to contact you but your email comes back to me unknown. Please send me another email address and we would love to coresspond with you
John & Francine (jonfranbailey@telus.net)
Kamloops, BC Canada - Wednesday, September 27, 2000 at 11:17:50 EDT
Would be more than welcome to exchange ongoing health situations.
Dorothy Connor (dorothy.connor@ntlworld.com)
UK - Sunday, September 24, 2000 at 09:23:56 EDT
My name is rebecca.I am studying to be a proffesional photographer.Last year my mother was diagnosed with cancer of the esophegus.Since then I have had this idea for a cancer awareness calander.I would like each month to be dedicated to a different type of cancer.And have edjucational facts on the particular type.I would like to photograph a cancer survivor or fighter for each month.I will donate half of all of the proceeds to cancer research.Cancer survivors and fighters define the words courage and strength, and I will photograph them in away where it shines through.You guys are so insturmental in finding a cure.Anyone interested in volunteering to be photographed and you live in the Florida panhandle or south Alabama area please email me at barneyr5@aol.com.GOD BLESS YOU ALL...
rebecca Barney (barneyr5@aol.com)
fwb, fl USA - Saturday, September 23, 2000 at 18:40:55 EDT
Would love to here from anyone to help us deal and give us some support. My husband just dxd with non small cell lung cancer stage111 probably b. any words of wisdom and encouragement would be appreciated. Thanks
jesse kennedy (kennedy@hit.net)
Ponca City, OK USA - Saturday, September 23, 2000 at 16:34:42 EDT
Hi, I am a survivor of non-hodgkin's lymphoma. I was diagnosed at age 23, and went through chemo! This happened 8 years ago. I was a single mother of a 4 month old at the time. Now, thank God, I am the mother of two beautiful, healthy daughters, and life is definately a celebration! I would like to offer a listening ear to anyone suffering now, and share the joys and pains with other survivors! My thoughts and prayers are with everyone!
Rebecca Sider (rebeccasider@yahoo.com)
Hoopa, Ca USA - Friday, September 22, 2000 at 19:16:21 EDT
Hello everyone and I hope you are well!! I came across this site while looking for a chat board on Multiple Myeloma.
My brother, not yet 35, has this dreaded type of cancer and has been battling it since 1996. He's a real survivor and I greatly admire him for his strength. Not once has he believed that his life may be ending. He was recently rewarded for his faith and strength by completely clear skeletal survey films. It's an amazing, miraculous turn of events and we are praying and thanking Jesus for granting him this lease on life. We are Greek Orthodox in faith and believe strongly in our miracle-giving Saints. We therefore glorify our loving St. Ephraem for having performed this much-asked-for miracle and will continue to praise his Grace wherever we go. If anyone would like to share experiences on Multiple Myeloma or the experience of a miracle, please e-mail me. I would love to hear from you.
Dina Koedrou-Chrysikakis (dinoula@hol.gr)
Ilion, GREECE - Friday, September 22, 2000 at 18:24:29 EDT
I was dignosed with Hodgkins 1 1/2 ago. I doing great now but would like to share my knowledge, and learn more about this diease. I would like to chat and talk to someone in my situation. I admire all of you, my prayers go out to yu and all of your families, if I could any way inspire you with this diease, please email me. God Bless You All.
Sabrina Nicole Copley (Sassybrie@aol.com)
Huntington, WV USA - Friday, September 22, 2000 at 18:08:36 EDT
I have read through you website and been immpressed. My fiance' was just diagnosed with Epithalial Carsonoma! She has had surgery and is recoverin quite nicely, however, the Doctors have not found it's orgin yet and we fear she might lose her overies among other appendages if they can not determine just where the Cancer originated. I am trying to learn as much about this particular Cancer as Possible so that I can be as much of a supporter as I can. Is there any one out there who can offer some advice as well as any website that would be helpful?
Thank you!
Darren
Darren Isom (John@Lewin.org)
Salt Lake City, UT USA - Thursday, September 21, 2000 at 14:02:57 EDT
Just wanted to say that I am a 7-year survivor of Non-Hodgkins Lymphoma and I'm back to normal. I was diagnosed when I was in my late 40s and underwent surgery, chemotherapy (CHOP) and intensive radiation. The NHL was primarily in my parotid gland but I discovered it because of a small bump on my face. There's been a lot of progress on lymphomas and hopefully that progress will translate to other cancers that are spread through the lymphatic system.
Good luck to everyone who is battling against cancer. The researchers are making strides every day!
Charyn Sutton
USA - Tuesday, September 19, 2000 at 16:24:10 EDT
I was diagnosed with Hodgskin's disease when I was only 13, which was 4 years ago. I am now in remission and doing very well. VP for NHS, Pres. for Theatrical Sports, and a variety show coordinator here in the CNMI...for all those who have just been diagnosed...have faith and live life to its fullest...
Frances Louise Bocago (jeddi10@yahoo.com)
Saipan, MP USA - Monday, September 18, 2000 at 21:52:18 EDT
My Fiancee' has been diagnosed with EpithilialCarsonoma and I would like to know more about this type of Cancer and maybe hear some positive (or negitive) personal accounts fighting this disease. Does anyone know of any web sites I can visit to learn more and be more of an influence to support her emotionally?
Darren Isom (John@Lewin.org)
Salt Lake City, Utah USA - Saturday, September 16, 2000 at 13:27:08 EDT
My brother has adrenal gland cancer that has spread throughout his body. I'm trying to find a survivor of this rare cancer. I haven't had any luck so far. Please help - he and my family need some encouragement. Thank you.
Carol Rudo (Glodie1@Prodigy.net)
Riverview, MI USA - Friday, September 15, 2000 at 00:41:28 EDT
Just went thru the dreaded Whipple in June, I feel great and I think the docs done well. I am a medic and have been for 20 years. I had Ampullary Carcinoma--gone I hope
Kip Allen (ksallen@simplot.com)
Soda Springs, Id USA - Wednesday, September 13, 2000 at 13:21:30 EDT
Would like to talk to anyone who has had a hemiglossectomy and radical neck surgery
Karen Rusnak (momrn50@hotmail.com)
Brilliant, OH USA - Thursday, September 07, 2000 at 14:37:10 EDT
My husband who is 45, has been diagnosed with Renal Cell Carcinoma, that has metastisized to his bone. They removed his kidney and 8th rib. He has been given a prognosis of 12mths to live without treatment, 16 months with treatment. He has been in denial until the last week and now has decided he would like to have some form of treatment. We have been reading about interleukin. Anyone with info on this or any other drug that has helped them. We will be going to John Hopkins to meet with a doctor who specialized with mets/RCC and are putting all of our hope into that meeting. Any help would be appreciated as we don't have much hope. Thanks for listening.
kim Morris (kimm2487@ccisp.net)
berlin, md USA - Monday, September 04, 2000 at 20:33:51 EDT
Hi first let me say I dont feel so alone after reading all of these stories. My mom had colorectal cancer when she was 46 years old and as a result she has a colostomy that was 10 years ago. Since then she has had to have 4 more operations because of blockage, she also fell into a deep depression and after thelast surgery she had to have a screen put in because of blood clots. She is now severly overweight and has to walk with a cane because of her blood clots in her leg..Two weeks ago she went in for some tests because she has been sick lately and they did several xrays and an mri and the Doctor says that her cancer that she had ten years ago in her colon has mestastised to her left lung.. I dont really know that much about this and I'm scared and so is she... Just to talk to somebody who knows about this would help. GOD BLESS YOU ALL. Please write
marfree_us@yahoo.com
Michelle (marfree_us@yahoo.com)
harrisonville, mo USA - Monday, September 04, 2000 at 13:39:20 EDT
MY MOM HAS COLON CANCER WITH METS. TO THE LIVER SHE IS GOING ON HER FOURTH ROUND OF CHEMO;5FU,CPT-11 AND FOLINIC ACID. THE
CHEMO HAS STARTED TO MAKE HER ILL. SHE HAS A HARD TIME KEEPING FOOD DOWN. THIS HAS BEEN A REAL BLOW TO OUR FAMILY,SHE HAS
BEEN THE CENTER OF OUR LIVES.SHE WAS A VERY HEALTHY ACTIVE 62 YR OLD,UP UNTIL NOW.WE LOST OUR DAD TO COLON CANCER 10YRS
AGO AT THE AGE OF 52. I HAVE VISITED THIS SITE SEVERAL TIMES. LOOKING FOR SURVIVAL STORIES ON THIS TYPE OF CANCER. THE LIVER
IS INOPERABLE AS THE CANCER HAS SPREAD TO LYMPH NODES IN HER NECK. PLEASE E-MAIL IF YOU HAVE ANY STORIES OF HOPE OR ADVICE.
THANKS AND GOD BLESS. KEEP THE CHIN UP BE POSITIVE.
TRACY CRAIG (MACYMOLLY@HOTMAIL.COM)
CANADA - Sunday, September 03, 2000 at 17:10:48 EDT
I know this may not be the appropriate forum for this post but it is my hope that one day soon I will be able to write back with my mother's story of remission. You see, just days ago we found out that she has advanced ovarian cancer that has metastisized to her liver. An active woman of 63-loves to hike/walk, ride bikes, never smoked, has a couple of social drinks occasionally, eats all the right foods. In her words, "I did everything right". Why did this happen??? As one doctor put it, "It's just bad luck". Speaking of bad luck, she is totally uninsured. She is convinced they will just "leave her to die" because of this. I have to wonder if she is right. She is in a fog right now-partly overwhelmed by fear and partly in denial. I am frightened, angry, sad, overwhelmed but trying to convey strength, calmness, and a positive attitude in her presence. I welcome any correspondence you want to send my way. And please, pray for her....I am afraid my faith in The Higher Power is not at an all-time-high right now.
Kim (kimg3@hotmail.com)
OH USA - Saturday, September 02, 2000 at 21:57:37 EDT
I would like information for my friend who has cancer - neuroendocrine carsonoma. Thanks.
Renee Gage (moparknut@cs.com)
Hemet, CA USA - Saturday, September 02, 2000 at 15:40:09 EDT
I have survived Hodgkins Diease Lymphomia at age 19. I was dignosed with stage 3-b. Went threw several rounds of Chemo and still alive to tell about it. That was thirtheen years ago, Looking for others who have survived for support. I have alot of health problems now, but their not cancerous would like to know how others are that have went threw chemo and survived.
wendy (wendyjil@cswnet.com)
dardanelle, ar USA - Saturday, September 02, 2000 at 00:35:32 EDT
Have been surfing and surfing for a support group centred in Hamilton Ontario - Henderson General's web page comes up blank. Ex husband's wife is suffering cancerous lymph nodes - treatment is at Henderson. My daughter and I are searching for some kind of group support for the spouses of people with cancer. This man needs moral support very badly, and I wondered if anyone out there knows of any group in Hamilton, or anywhere north right on up to Tobermory, who could help him. Many thanks if you can help me.
annie morgan (anniethel@hotmail.com)
Mississauga, On Canada - Friday, September 01, 2000 at 19:32:13 EDT
Hi, my mother who is 68 was diagnosed with adencarcinoma 0f the oesophagus in may of this year. I guess most people can understand it has completely turned our world upside down. As the cancer has started to spread to mum's liver, I was told that the introduction of a stent to open up her oesophagus would be the best way of making her life more comfortable. However, this has not been successful and the hospital is planning to inroduce an additional stent above the original. They are also planning to offer mum chemo combining Carboplatin and Navelbrine - which I understand is still at the devlopment stages. I would be interested in being e-mailed by anyone with any specific knowledge or experience of this type of cancer. Kind regards to everyone contributing and visiting this site.
Chris Blackwell (cblackwell@cwcom.net)
UK - Thursday, August 31, 2000 at 06:12:23 EDT
Hello everyone, I was let's say misdiagnosed in February of 1999 with Hodgkin's Disease. I am about to go into my one year anniversary of remission. When I say I was misdiagnosed it is because I presented every symptom of Hodgkin's Disease to every Dr that I went to and noone could determine what was wrong. I went on with the symptoms of severe itching, (to the point of scratching my own skin off), and severe night sweats for about one year. I would wear a tank top and no jacket in the middle of December because I was so hot all the time. Each time that I presented another symptom to a Dr I was told that there was nothing wrong. I had severe puritis all over my body, and still have some scars to this day. My story is long and complicated but I would love to share my experience with others. If you have had the same symptoms as I had or just feel like you need to talk e-mail me. I have made it a goal in life now to help others going through the same thing that I went through. God Bless, and remember to stay POSITIVE!
Tracey (babyandjezzy@aol.com OR eka2@netreach.net)
Philadelphia, PA USA - Tuesday, August 29, 2000 at 09:44:52 EDT
This is an update on Tom my father-in-law, he had The Whipple procedure 8-99 for a tumor in the bile duct and cancer returned 7-00 (outside of the bile duct this time) he is taking 5fu chemo and radiation for 6 weeks 2 wks on 2wks off. The radiation is appx. 10-15mins a day 5 days a week and he takes his chemo 24 hrs.a day 7 days a week via a pump he wears he is holding up ok but the chemo and rad.takes his energy away he still has low appitite and low weight he has been drinking carnation instant breakfast for vitamins and calories to help supplement his diet. THANKS FOR ALL YOUR E-MAILS AND I HOPE I WAS ABLE TO HELP AND ENCOURAGE ALL OF YOU WHO WROTE US.FELL FREE TO CONTACT US
SHAWN AND CONNIE JACKSON
shawn (sljccj@netzero.net)
indianapolis, in USA - Monday, August 28, 2000 at 22:42:32 EDT
I had radiology for aqueous carcenoma in my nasal area in 1997. Things seem ok now, but I continue to have some blood in the mucus from my nose. I use polysporun as lubricnt four timees a day but my nose each morning has encrusted mucus on the sides. I also have a parched mouth coninuously. Any recommendations about my problems would be appreciated. Thank you.
Bill Phillips (awp2@home.com)
Kellowna, B. Canada - Sunday, August 27, 2000 at 18:51:04 EDT
Recent BC survivor. Underwent 6 rounds of chemo, and 35 radiation treatments. Am now taking Tamoxifen and doing well. Am interested in hearing from anyone who cares to share our experiences, please don't hesitate to write me. Have experienced hot flashes and some neausea from the pills, but am so far doing okay. If anyone has any questions about chemo or radation or perhaps Tamoxofin, I'd be glad to help in any way possible. Feel free to write any time. Good luck to you all.
Kris R (LeftEPitcher@aol.com)
Detroit, MI USA - Sunday, August 27, 2000 at 17:05:06 EDT
Hello to all of you and thanks for your information. My sister was diagnosed with a very aggressvie Stage III breast cancer last year. She went through mastectomy with reconstruction, chemo, and radiation. Last week, Aug 18, it was found to have metastasized to her liver. Help!!!! Her doctor is not giving us much hope. We are currently trying to get into MD Anderson for a second opinion. Would love to hear from anyone who has had similar experience and has some hope to offer. Thank you and God Bless you all!!!
Bonnie Huseman (acf@crcom.net)
Big Spring, TX USA - Sunday, August 27, 2000 at 15:01:14 EDT
In May 1996 I had a Whipple procedure done - it was done to prevent cancer - in January 1995 I had a portion of the duodenum removed because of a tumor - it was benign - in 1996 they found that another tumor had come back - also in 1979 I had an ilestomy done because I had familial polyposis. My family has history of cancer - father and two brothers had cancer.
Would love to hear from those that have had the Whipple and also have an ilestomy - having problems with diet and adding weight - I am on medication to assist me with pancretic juices, etc.
James Gile (ggresume@aol.com)
Mahwah, NJ USA - Sunday, August 27, 2000 at 05:54:52 EDT
I had bile duct cancer and on May 8,2000 had the Whipple Procedure. I am currently on 5 FU chemo. On doctor wants me to have radiation treatments as well. My surgeon say not to have the radiation thratment. Is there anyone who has had bile duct cancer and both treatments after the Whipple surgery? Also I would like to hear from anyone whom has had the Whipple procedure.
Dennis Johnson (ucsantabarbara-1@worldnet.att.net)
Martinez, CA USA - Saturday, August 26, 2000 at 18:49:21 EDT
The more I read, the more I want to know. My fiance was diagnosed with NHL recently. He is 21. Here are some link that may be helpful. http://www.cancerlinksusa.com/
http://www.corixa.com/
Here they are using clinical studies on a cancer vaccine... it is not actually a vaccine. It tricks our immune system into
recognizing cancer cells as invaders. Thus our bodies aggressively attack and kill them!!
http://www.cancerlinksusa.com/cancernews_sm/Aug2000/080900research1.htm
link to info on the cancer vaccines.
http://www.cancerlinksusa.com/cancernews_sm/july2000/070900alternative.htm
dispels the theory on shark cartilage
http://www.cancerlinksusa.com/cancernews_sm/july2000/070600research.htm
cancer fighting foods
http://www.oncologychannel.com/nonhodgkins/
All the sites I have compiled for now....
http://www.lymphoma.org/
http://www.forbiddenmedicine.com/
I don't know about this one. I am sure that everyone will use their best judgement and discuss things with their doctors.
http://cancerlifeinsurance.com/
This page is for cancer survivors that would like to purchase life insurance.
http://altmedicine.about.com/health/altmedicine/library/weekly/aa102599.htm?iam=dpile&terms=Lymphoma
http://www.cfl.org/
http://www.geocities.com/Heartland/Valley/6727/stopNHL/index.html
http://www.cancercenter.com/home/
Please be sure to note the information on the Shark Cartilage. I hope these links help those who are looking for information and feel lost in the web.
Veronica (wolfsfang98@yahoo.com)
NC USA - Saturday, August 26, 2000 at 15:21:57 EDT
I found a great site for lymphoma. http://www.cfl.org/resources_factsheet_facts.cfm
It has wonderful information. Also, the search engine dogpile was able to get me all the information I ever wanted on non-Hopkins and Hopkins Lymphoma or anything else for that matter. They have a toll free number and a free booklet. They are also working with a vaccine. Yes, I said vaccine. 18 of 20 patients are still in remission after 4 yrs of treatment with this vaccine. I almost fell out of my chair when I read this. I pray this vaccine becomes public soon. I have a lot of sites saved that have a lot of information. My heart goes out to anyone having to deal with cancer. God Bless everyone and best wishes. Feel free to email me.
Veronica (wolfsfang98@yahoo.com)
NC USA - Saturday, August 26, 2000 at 12:33:55 EDT
Survived condro sarcoma since 1966 - found in the left knee area. Spent two months @ mayo clinic - left leg amputated.
would do it again in a heartbeat. since being an amputee, i have had time to smell the roses.
Sandra (abintra1@swbell.net)
oklahoma city , ok USA - Monday, August 21, 2000 at 18:12:54 EDT
I have colon cancer with met to liver.
Had a liver resection in May for the liver tumor. Currently going through chemo. Doing Great...Going to beat this. I noticed several people that needed help and had questions. I will be glad to help any way I can.
Karen Wynn (KWKWYNN@aol.com)
East Brewton, Al USA - Monday, August 21, 2000 at 01:47:47 EDT
Need info on side effects of Tomoxafin
Becky Vetterick (veterick@ix.netcom.com)
USA - Sunday, August 20, 2000 at 16:37:50 EDT
Hello from England everyone.
My father has syomach cancer (incurable) and also lkiver and lymph matestases. He has been sent home to his family and wondered if there are any alternative ideasnout there that really work?
Cheers, all the best, steve
Steve Hewitt (guitarman@ukgateway.net)
Sheffield, England - Saturday, August 19, 2000 at 12:20:24 EDT
Hi. We are looking for people that have experienced the Whipple procedure. Would you like to chat about your experiences, or are you about to have the operation and would like to talk to someone about what you can expect?
Hope to hear from you. We can be contacted at JonFran Bailey@telus.net
John & Francine Bailey (JonFranBailey@telus.net)
Kamloops, BC Canada - Friday, August 18, 2000 at 14:09:36 EDT
Husband has tongue cancer which has traveled to throat and lymph nodes. Has gone through 300 hours of chemo and 38 radiation treatments and is now suffering from back pain.
Mary Lopez (mlopez@trinity.edu)
San Antonio, TX USA - Thursday, August 17, 2000 at 11:30:02 EDT
My 34 year-old brother-in-law was recently diagnosed with Ewing's Sarcoma. As this disease rarely strikes individuals in his age group - we are very eager to talk with any other families who may now be, or who have in the past dealt with this illness in an adult. Thank you.
Amy Lynne Levinson (amylynne@ak.net)
Wasilla, AK USA - Wednesday, August 16, 2000 at 22:19:00 EDT
hi, I am a breast cancer surviver, like to talk to others.
tania shands (gshands@mail.i1.net)
kennett, mo USA - Wednesday, August 16, 2000 at 21:08:43 EDT
I am looking for any information on pancreatic cancer. How patients feel after the Whipple procedure, side effects,what to expect. My mother has pancreatic cancer and wants to know about clinical trials, life after the Whipple procedure.
Cindy Para (Parac@libertytravel.com)
auburn, ny USA - Wednesday, August 16, 2000 at 13:57:19 EDT
My mom was a cancer survior for five years. she had breast cancer. we lost her last tuesday from a anerrisom. but she was always saying and collecting money for the cancer society. she was always telling us to take a manogram. thank you karen parent
karen parent (sking1@earthlink.net)
sumter, s, USA - Tuesday, August 15, 2000 at 14:52:32 EDT
I have just seen a guest book with much illness,I have battled mine since army days and vietnam.Over there,I did not know Jesus Christ as Saviour and Lord,God heard my only hope and pleading,but them more illness came on.I wish to say:My Heart goes out to all the sick,the little children,middle age,elder,(All)Jesus does heal,in His own way and own time,Prayers are the key along with faith!without faith,we are helpless and wondering to and fro!I pray with all my heart that this moment,Aug.15-2000 year of our Lord,that you may be comforted and the illness cast out of you ailing bodies,and made whole with His true Light.
God bless all of you in this trying time,it seems hopeless at times,but ask for prayers,Where there are two or more gathered in my name,ask and it shall be done.Jesus said it,I belive it.Pray now wherever you are,Jesus intercedes for us to God the Father on our behalf.Believe,Faith,invite Jesus in,NOW!God bless All mentioned in this guest book.Amen. bob
robert spain'sr (bob_cat60@yahoo.com also bobcat60@mail.ctg.net)
Petersburg, va. USA - Tuesday, August 15, 2000 at 00:00:25 EDT
Hi all. I was diagnosed with testicular cancer on Sunday August 6th. I went in for removal on tuesday and was realeased from the hospital on wensday. I was told if the cancer is a pure siminoma cancer I would have a few weeks of radiation therapy and then most likley be done with it. But if it is a mixed cancer cells tumor they removed from me then i am looking at surgery again to remove the lymph nodes and then about a year or more of chemotherapy. Today is Saturday and I was told to expect a phone call early next week to find out where to go from here. The wait begins ( I think it's the worst part of the whole thing ) and the tension builds.
Allen Stovall (electronjunkie@yahoo.com)
Salina, KS USA - Saturday, August 12, 2000 at 23:00:07 EDT
Great site!! I am a 11 year brain tumor survivor.(astro cytoma) I just wanted to let people know that regardless of what is happening or how your feeling, remember things could be worse!! The way I see it GOD is always there for us and would not burden us with something we couldn"t handle. It is what we make of are difficulties that matters. What we have, we HAVE! Stay positive, believe in GOD, and remember things can ALWAYS be worse! Doctors removed as much of the tumor as they could and I have frequently gone for more tests. I still have problems and new problems keep croping up every once and awhile. I enjoy life and rarely pass up on anything anymore! GOOD-LUCK, and GOD BLESS to all!!
"SURVIVOR!!" (cphipsy@yahoo.com)
Ontario, Canada - Saturday, August 12, 2000 at 18:35:20 EDT
My 10 year old son has Hodgkins Lymphoma. Rare for a child. Still trying to stage, is at least stage 2 but possibly stage 3. Will find out after surgery on Thursday, August 15, 2000. If there are any children close to his age, and have been treated or is currently being treated for Hodgkins, please e-mail me. I am feeling that my child is the only one out there with this. Many people have told of adults with Hodgkins, but no one here locally knows of a child his age having Hodgkins.
Dennese (stokes001@aol.com)
Phenix City, AL USA - Friday, August 11, 2000 at 21:21:48 EDT
Have recently had colon tumor removed. Cancer has migrated to liver.
DiDi T. (didi@geomail.net)
Brevard, NC USA - Thursday, August 10, 2000 at 19:34:13 EDT
We just been told my father has Lung Ca which Metastised to his liver. They are sending us to Md Anderson. If anyone knows of a survivor are if they are a survior. Has anyone been to Md Anderson? If any one can give anykind of advice or have been through the same thing please E-Mail me. My prayers are with everyone going through this horrible disease.
kim (wkguichard@cs.com)
la USA - Wednesday, August 09, 2000 at 21:58:46 EDT
looking for support chat group for breast cancer
unable to find any in australia
janet matejcek (janetm@ledanet.com.au)
cairns, qs australia - Sunday, August 06, 2000 at 11:45:03 EDT
My Mother has found out recently she has small cell lung cancer. she has started chemo and its taking its toll on her.
Everything I have read about small cell is very negative and I would like to know does any one truly get over this type of cancer or does it always return.
Gillian from Scotland
Please mail me at. gillian@gmclintock.freeserve.co.uk
Gillian McLintock (gillian@gmclintock.freeserve.co.uk)
Glasgow, Scotland - Sunday, August 06, 2000 at 11:08:28 EDT
My 72 year old mother was diagnosed with pancreatic cancer in april, 2000. We are looking for alternative herbal or gene treatments. If anyone can provide us with any information we would be most appreciative. You simply cant get this information from traditional M.D. Thank you all for your help.
Paul Ablon (psablon@aol.com)
Santa Monica, ca USA - Saturday, August 05, 2000 at 21:41:45 EDT
I am a one year breast cancer survivor. I teach elementary school and there is a ten year old child who is battling a more severe type of cancer. I know both she and I would appreciate email. She doesn't have a computer but I could print messages for her.Thanks for caring!!!
Leta (phillipsj@mediaone.net)
New Bedford, Ma USA - Friday, August 04, 2000 at 21:44:09 EDT
Hi I found this site today and found it really interesting. My grandma has non hodgkinson lymphoma high grade and i am desperately trying to find things out for her. Does anyone know about alternative therapies,good books to read etc
emma Barwell (ebarwell@hotmail.com)
Coventry, England - Friday, August 04, 2000 at 07:27:34 EDT
My family calls me Francie. I am about to celebrate my first anniverary. I had oral cancer of the tongue which metastisized into my lymph nodes in my neck.I had surgery in June, 1999 to remove the tumor on my tongue, some teeth before radiation therapy, and removal of the front lymph nodes. That went great. A clean removal of all tissues. After healing for 3 weeks I move onto radiation, which I thought I would never survive the treatment to kill any remaining cancer cells! But finally in August, 1999. I was finished with treatment. Ooooohhh Yaaaa !!!!! I survived the surgery, radiation, a stomach tube to eat, now I was going to start eating again in August. It was brouth,soup and soup with pasta, but I was eating on my own again. Not in the best of moods from this test, I was so glad to be with my loving family and had alot of friends from work writting to me, giving, loving support to recover. October, 1999, my MRI showed no signs of any cancer. It was gone. I have had 2 f!
ollow ups and no sign of cancer in new places. It's hard to eat at times, and I feel embrassed to eat out in public. I never know if I can tolerate the seasoning of the food, or if it will make me gag, or get ill. I never Know !! One week,I can try new foods (mainly soft and wet in nature) the next week I can only eat one new food. Very frustrating!! I have finally regained my sense of humor and returned to work healthy in March,2000. My co workers thought I was crazy..... I had lost 50 lbs thru my amazing "radiation" diet! Not recommended. I an now happy to say I have gained 10 lbs. and feel stronger. I can be very supportive, but as you see I can get on a topic forever and never, never, never let it go and have to be told to stop. It's OK , I'm glad to still be 'talking" with my friends and family. Would like to talk to others with a head and neck cancer (Oral) But mainly looking for people that can understand what I went thru. I still have trouble dealing with recovery!
. I can be positive most of the time, but have my pitty parties too! Would like to reduce the anger and confusion of my former illness. You see I did not smoke nor drink. My father had lung and larynax cancer, with 2 surgeries. He died in '71 from tumors which invaded his body in serveral locations. I have friends recovering from breast and ovarian cancers and they were my life line durting my treatment. So if you can find time, I know I still get busy with my 5 yr. old, I would love to hear from you. God bless all!! ;-)
Fran Kuna (fkuna@earthlink.net)
Rusk, TX USA - Thursday, August 03, 2000 at 00:10:52 EDT
Hi my father was just told he has liver ca. His tumor is over 9cm.The ca is believed to be primary in the colon, we will find out Friday. I know we will have a hard road ahead of us. I would like to talk to anyone who had a similiar case. I have alot of hope.
kim (wkguichard@cs.com)
la USA - Wednesday, August 02, 2000 at 17:32:40 EDT
my fatherinlaw had the whipple 1 year ago for a bile duct tumor now the cancer returned outside the bile duct now comes the chemo and radation we will update as time gose on he survived the whipple procedure which left many problems with pain etc. WHAT SHOULD HE EXPECT WITH CHEMO AND RADIATION AT THE SAME TIME??? any insight is welcome thanks
shawn &connie
shawn (sljccj@netzero.net)
indpls, in USA - Tuesday, August 01, 2000 at 23:04:47 EDT
Great site! It's wonderful to see so many people helping each other. I have a client who has secondary liver cancer and who has been told to go home and die. We are looking at herbs, diet and other complementary therapies to help him get well again. Any news/ideas from survivors or people experiencing the same type of cancer would be very much appreciated and welcomed. Thanks and stay positive!
robin woods (prwoods@optushome.com.au)
Sydney, Australia - Tuesday, August 01, 2000 at 22:11:02 EDT
I was diagnosed with Non Hodgkin's Lymphoma in May. I just completed my third
round of chemo (CHOP), with three more scheduled. I have experienced pleural effusion
from the beginning and now have fluid tapped every 3 to 8 days. I am interested in
hearing from others that have had this problem. Thanks to anyone that can give me
insight.
Jerry (ksnorth@alaska.net)
USA - Sunday, July 30, 2000 at 19:03:06 EDT
Found your website tonight when looking for information for a friend. How nice. I am a almost two year cancer survivor.July of 1998 was diagnosed with vulvar cancer had a small tumor removed and inginal femoral lymphectomy, but have been cancer free since all the surgery. Have a little lymphedema to conend with but much better than the alternative. Keep a positive additude, enjoy each and every day and love each day that you get. If I can help anyone email me.
Marcia Carlson (Carlson5@elknet.net)
Delavan, Wi USA - Thursday, July 27, 2000 at 21:14:02 EDT
I was diagnosed with primary liver cancer (hepatocellular carcinoma) in February 1991. I had major surgery and chemo and have been cancer free for almost 10 years. I would love to talk to any other long term liver cancer survivors.
Jen (jenniferapowers@aol.com)
Manassas, VA USA - Friday, July 28, 2000 at 22:24:41 EDT
My friend was just diagnosed with Uterine Sarcoma Stage 4. Can anyone share with me successful treatment that has been used either converntional or alternative therapy. I would love to hear other success stories with the same form of cancer so I can give hope to my friend. Thank you
Rebecca (prayer613@juno.com)
Brooklyn, NY USA - Wednesday, July 26, 2000 at 20:10:20 EDT
Hello.
I am a reporter for the Columbia Tribune, writing a story about experimental research on multiple myeloma treatment using Holmuin-166 radiation. The radioactive Holmium isotope is created at the University of Missouri-Columbia and used for treatment at four facilities - one in Seattle, one in Texas, one in Indiana and one at Sloan-Kettering. I would be interested in talking to people who have tried this procedure and how it has affected them.
The study is confidential, of course, and names of patients are not released. Nor do I wish to intrude on anyone's privacy. However, anyone who is willing to be interviewed can call me at (573) 815-1715 or e-mail me at bkaller@tribmail.com. Thank you.
Brian Kaller
B. Kaller (bkaller@tribmail.com)
Columbia, mo USA - Tuesday, July 25, 2000 at 16:46:57 EDT
a close friend of mine is a cancer survivor of 6 years ---- she is currently self employeed and her cobra is running out ----- she has been looking for health insurance but with no luck ---- they will cover everything but cancer --- can anyone help us ----
michael (mshutze@aol.com)
buckhead, ga USA - Tuesday, July 25, 2000 at 12:15:06 EDT
I was just diagnosed with breast cancer on July 19th. I am waiting for a biopsy report for a second lump that was biopsied on Friday. The waiting is really unbearable. I am trying to be positive as I know mind over matter is really important. I am 52 and my second child leaves for college in just 3 weeks. Would love to hear from anyone.
Carol (cal351@aol.com)
Manassas, Va USA - Monday, July 24, 2000 at 12:21:26 EDT
I am a 57 year old breast cancer survivor. Six and a half years ago I had a lumpectomy, chemo (CMF) and radiation. What a life altering experience! If I can help anyone I would be happy to hear from you.
Mary Ann Reitzel (marrei@bright.net)
Van Wert, OH USA - Saturday, July 22, 2000 at 22:40:20 EDT
I am 21 and in full remission from Hodgkin's. I am taking my experience and using it to help others--recently participated in Relay for Life, and I volunteer at Children's Hospital. I always love to share my story and contribute what I can to the fight. Love and Prayers are the best cure!
Megan Ruff (meganruff@hotmail.com)
Seattle, WA USA - Friday, July 21, 2000 at 19:14:12 EDT
I am suffering from cancer. Need to know how others survived and lived.
Samuel A. Ladion, Ed.D. (hglad@aiias.edu)
Buho, Silang, Cavite, Philippines - Wednesday, July 19, 2000 at 08:50:32 EDT
I am 34 years old, and last December was diagnosed with testicular cancer. I had surgery the day following my diagnosis and completed radiation treatment last February.
I found this chat channel while sufing the net. I have often wanted to talk with people about my experience because it helps me to feel more secure.I am going in for my first check, CT and bloodwork, and I am a little nervous about this.
Don Rossi
USA - Tuesday, July 18, 2000 at 16:41:44 EDT
Im 33 years old, with stage 3 or 4 Hodgkins Disease. I have 3 kids ages 3, 9, and 11 Ive been dignoised sense Jan 1999, Ive had several cycles of chemo, a stem cell transplant, radiation, I just found out Its in my cervics. Ive never thought of myself as dieing, but Im beginning to worry. What will my kids do with out me? Anyway I will take anything right now, Moral support, advise, prayer, or just a friend. Also if I can help someone else. All my prayers to everyone, with love Tammy
Tammy (Tammy422@hotmail.com)
Springfield, Mo USA - Monday, July 17, 2000 at 19:50:26 EDT
Recently treated for Stage 1 Melanoma. Would love to hear about treatment process. The docs say th4e surgery will be enough. What do I need to look for?
Maureen Sowa (msowa@kear.net)
Danbury, NH USA - Monday, July 17, 2000 at 10:09:17 EDT
I had two moles removed because they "looked funny" to my family doctor. One was funny enough to be a Stage 1 in situ melanoma. The doctor has told me all that needs to be done is a broader and deeper removal of the area because it was caught in situ. Has anyone had an experience with Stage 1/ Should I see another opinion? Namaste to all
Maureen Sowa (msowa@bristol.mass.edu)
Fall River, MA USA - Thursday, July 13, 2000 at 08:16:02 EDT
I am an almost 13 year survivor of colorectal cancer. The 7th of Nov. will be l3 years. I have just found this site and would like to be a part of the help to suvivors or cancer patients. I feel like this is in part why God let me survive. I praise him every day for being with me. If I can offer support to anyone out there, please email me.
fran sandidge (cansurviv@yahoo.com)
bloomingdale, in USA - Wednesday, July 12, 2000 at 21:26:20 EDT
i'm a 46 year old female withperipheral nerve sheath tumor.about 7 years 3 major operations and plenty of chemo.nothing seams to kill it the dr's in boston say it willnever go away it just keeps growing so we have to find something to stabalize it.i like the new angiogenises medicines their comming out with if any one knows anything about this sarcoma please write its very rare god bless everyone i guess we have to keep fighting till theirs a cure,but i hate chemo,i get so sick.
ginny kane (vkane1@twcny.rr.com)
north syracuse, ny USA - Tuesday, July 11, 2000 at 22:08:09 EDT
i was diagnosed with colon cancer in early june 00. i underwent surgery on june 13 and am now starting chemo with lukevorin and 5fu. i am 47 this month and i hope to live a long time and be able to help any and all cancer survivors that i can. GOD BE WITH US......
steven davis (ea1sd@aol.com)
eau claire , wi USA - Tuesday, July 11, 2000 at 19:24:23 EDT
This is my new e-mail, MaryS14@hotmail.com you can e-mail me for support. I am a breast cancer survivor, will be 5 years
in Oct 25, 2000.
MaryS (MaryS14@hotmail.com)
Converse, TX USA - Tuesday, July 11, 2000 at 16:42:17 EDT
My uncle is interested in chatting with anyone out there trying the new chemo drug OXALIPLATIN (a trial drug for colon cancer and other cancers). Or anyone out there with any information about it. Thank you!!!
Sharon Gill (asgill@bright.net)
Chillicothe, OH USA - Saturday, July 08, 2000 at 10:42:44 EDT
At the age of 35, I took a "detour" in life and was treated for Stage III Hodgkin's Disease. Back on the "main road" now. Can I help anyone find their way back, too???
Sharon Gill (asgill@bright.net)
Chillicothe, Oh USA - Saturday, July 08, 2000 at 10:39:13 EDT
COLORECTAL CANCER WITH METS TO LIVER. RECENT LIVER RESECTION. JUST STARTED CHEM JULY 7TH. 5FU, LEOCOVOREN. CPT-11
KAREN (KWKWYNN@AOL.COM)
BREWTON, AL USA - Saturday, July 08, 2000 at 09:41:55 EDT
I am glad to see there are so many cancer survivors out there. I was 14 yrs. old, when I was diagnosed with Hodgkin's Disease (June 91'). The tumor was located in my chest and was found in the 2nd stage. The chemo got rid of the tumor, but I still had to take radiation to make sure it wouldn't come back. The saddest part of cancer was meeting other kids who had it and didn't survive. When I got cancer I never asked "Why me?" I think this is because I saw too many other kids suffering from cancer. Yet, when I survived cancer and my friends didn't, then I asked "Why me?" "Why did I survive and they didn't?"
Seeing others not make it is probably the hardest thing as a cancer survivor. Another hard thing is dealing with the physical problems brought on because of the treatments. Then dealing with people who don't understand how the treatments can have some life long effects. Just curious to know how other survivors deal with these challenges. It would be nice to talk to someone who understands for a change.
Andrea Guidry (andreaguidry@hotmail.com)
Lafayette, LA USA - Saturday, July 08, 2000 at 01:39:35 EDT
My fatherinlaw had the whipple procedure aug.1999 to remove a tumor in the bile duct now about 1year later he is suffering from severe pains in back and stomach that keep him from sleeping the doctors suspect the cancer may have returned we hope they are wrong!! We would love to here from whipple survivors and compare notes on the healing progress and side effects thank you also for this wonderful resource of info. Shawn indpls in.
shawn (sljccj@netzero.net)
indpls, in USA - Friday, July 07, 2000 at 23:37:34 EDT
My dad is 64 yrs old and entering the final stages of metastic colon cancer. The cancer has invaded his liver. The doctors say it is too advanced to treat and only give him weeks to 1 month to live. Has anyone out there ever known someone who survived this type of cancer. If so, please e-mail me at app@netusa1.net or sfry@netusa1.net. I pray that a cure for cancer is found quickly.
Sarah Appleton (app@netusa1.net)
Peru, IN USA - Thursday, July 06, 2000 at 10:45:30 EDT
I'am a survior of cervical cancer for 26 years,thank god.my father died 7 years ago from cancer & i just found out on thursday that my mom has colon cancer.my heart go's out to each & everyone of you,for this is a nasty desease to have& i wish all of you the very fastest recovery.always keep a postive outlook because it really does help.if anyone needs someone to listen then please e-mail me, i have a pretty good ear. god bless all of you & your loved ones.
judy. p (moooojudy@aol.com)
port richey, fl USA - Sunday, July 02, 2000 at 21:19:51 EDT
cancer survivor 2 1/2 plus years with broviac and ileostomy and small bowel syndrome would like to discuss with other in same boat.
Thanks and Have Happy Thoughts
Lori Robb (lorrrobb@concentric.net)
Edmonton, AB Canada - Saturday, June 27, 1998 at 15:18:36 EDT
Hi, I'm from the #cancer channel on ChatNet...just wanted to say how wonderful your page looks and the information and links are great too! I am an 8 year survivor of breast cancer and have found that the support systems offered thru these IRC chat channels such as #cancer survivors, #cancer and #oncochat....are invaluable!! I would also like to invite all cancer survivors to visit with us on the ChatNet #cancer channel or visit our page at http://w3.ime.net/~jgrenier/chatnet2.htm
Keep up the good work!
Cheri a.k.a. Gabby (kada@communique.net)
New Orleans, LA USA - Saturday, June 27, 1998 at 15:18:36 EDT
Husband diagnosed with inoperable small cell carcenoma of the lower right lung with a lymph node involvement in 2/98. He has undergone chemo and radiation and in July will undergo radiation to the brain. He is able to take it one day at a time but I struggle with fear, anger, anxiety on a daily basis. Would love to talk to a family member going thru similar experience to find out what helps them get thru this awful disease.
Dee Owens (Mavis67@aol.com)
Elk Grove, CA USA - Friday, June 26, 1998 at 19:43:57 EDT
Breast cancer in '94
Nanette Gibbs
USA - Thursday, June 25, 1998 at 11:41:24 EDT
My name is Paul M Cohen and I am a survivor of two bouts with colon cancer. In 1991, at the age of 60, I had a tumor removed from the lower side of my colon and I underwent one year of chemotherapy. On my two-year checkup in 1993, a second tumor was discovered on the other side of my colon.
This tumor was also removed and went through a second one year session of chemotherapy. According to my doctors, the second tumor was a second primary.
I am now about 5 1/2 years free of cancer, although, in October 1996, a non malignant mass was removed from my abdomen.
My first chemotherapy session consisted of the 5-FU and Levamisol. For my second session, Lukevorin was added.
I consider myself living evidence that colon cancer can be licked. Although I returned to work during my first session with chemo, I was, after about six months, reluctantly forced into an early disability retirement. Before I could convince anyone, after I completed my first session with chemo, that I could return to work, the second tumor was discovered. That ended my working career.
I feel that I have some lingering effects of the chemo, namely short-term memory problems, chronic fatigue, and short colon syndrome. These conditions may slow me down, some, but do not stop me from enjoying life.
Above all, I am a Cancer Survivor.
Paul M Cohen (paulc@wdn.com)
Reston, VA USA - Wednesday, June 24, 1998 at 14:23:15 EDT
want to know more about cancer patents,their lifestyle.....etc
juhysunny (juhysunny@hotmail.com)
malaca, malaysia - Monday, June 22, 1998 at 00:03:47 EDT
Thankyou to all of the people that have e-mailed me..
I am having to go back in to have a hemotoma removed from my right breast. The good news is that my lymph nodes were all clear! no cancer spread! I am a survivor. I have only to deal with the loss of my breast. Thankyou all for your support, and if anyone wants to e-mail me. I am here to help. (28yrs old mother of 4 girls, military spouse)
Suzanne (victor@iland.net)
Whiteman afb, Mo USA - Friday, June 19, 1998 at 23:41:08 EDT
very informative and helped ema nd family a whole lot. thanks for the opportunity to be a guest.
Darlene Ramsey (darlener@bellsouth.net)
Shreveport, la USA - Thursday, June 18, 1998 at 18:51:52 EDT
Hi There!
Recently got internet from my oldest daughter & her family for my 59th birthday.
I found out Nov.95 I had colon cancer. Hospitalized from Nov. 13/95 to Feb. 28/96 - 4 hospitals in 3 1/2 months, and home maybe 10 days during that period. I ended up in the Cross Cancer Institute Feb. 5/96, and everything has been going uphill since then.
I had 3 ops from Nov. 17 to Nov. 26/95, and finally rentered life (became aware of my surroundings again) Dec. 4/95.
I have an ileostomy with a short bowel syndrome. At the Cross they discovered that if I didn't have constant IV I would die within days, as I dehydrate so fast. I did have radiation while I was there, and they also inserted a broviac in my upper left chest on Feb. 22/96. Since coming home from hospital, I am on the HPT (Home Parental Therapy). Boy did I learn a lot. I do all my own IV's, etc. to maintain my life. I have a fear of needles, but have to be on Sandostatin injections, so bought an autoject needle case so that I don't have to see the tip of the needle enter my skin (I have had a fear of needles all my life), so now don't have to worry about passing out when I see needles.
I went back to Cross the end of Feb. this year. They have removed terminal from my diagnosis, as I don't know how to give up.
My kids are paying for my monthly hookup to internet, so I wake up everyday to a birthday present and it's fantastic.
Thanks for this page. It's great. I hope my story hopes others.
Very LUCKY, HAPPY, and enjoying life more and more every day.
I hope everyone can be as lucky and happy as me.
Lori Robb (lorrrobb@concentric.net)
Edmonton, Alta Canada - Friday, June 12, 1998 at 19:03:44 EDT
Hi, I don't have cancer, but my mom was diagnosed with breast cancer and I
am trying to find out all I can. We are both very scared and confused. She was
told today that she had "negative receptors" (even though the cancer has not
spread) and that it can be a "fast growing" cancer so they want her to go through
Chemo and Radiation. She doesn't want to do either. Any insight that anyone
can shed on this would be greatly appreciated. I'm glad I stumbled onto this
web site. May God bless you all!!
Kelli (kcardoso@anatec.com)
Houston, TX USA - Thursday, June 11, 1998 at 17:10:18 EDT
hello my name is brett wilson, i am a cancer counselor at duke university
med ceneter. i was supposed to start a long term follow up program here as a
counslor, but found out fund run out in feb, so being a survivor of two childhood
cancers (leukemia and non- hodgkins lymph) at the ages of 2 and 9, i turned
to god and have decided to turn my attention to creating a counseling center
in memeory of my three cousins who past from breast ca and my friend jack who
past from a bone marrow transplant. Either here in durham or somewhere! i am
not asking for money i want patient imput. Tell me what you felt you did not
get when going through treatment emoitonally or physically. i need this infor
to pass on to some people who are trying to get funding from the community.
I ahve dedicated my life to doing this. i have been denied so many things but
my family members and friends even though gone would have wanted this and i
do. if you can help me please fell free e mail me and i will reco! rd someway
the reposnses i get pass on my message to all the suriviors you can. i promise
this will be the most comprehensive and technically advanced counseling center
for cancer patients in the us with your imput
thnks brett wilson
919-688-3605 home
brett wilson (wilso103@mc.duke.edu)
durham, nc USA - Wednesday, June 03, 1998 at 12:52:52 EDT
Your guest book is wonderful! I would like to talk to ovarian cancer survivors. I was diagnosed July 1997, had surgery in August '97. It was in both ovaries and one peri aortic lymph node. A stage 3c. I'm 42, and of course, want 40 more years! My ca125 was down to 8 after the first two cycles of chemo, and is now down to 4. I've also had radiation, and am now "done" with treatment. Now I feel like I'm floundering, not "doing anything," and really feel more afraid than ever!
Melinda (elbert_hubbard@msn.com)
Torrance, Ca USA - Monday, June 01, 1998 at 17:48:27 EDT
My cousin (who had surgery 10 days ago) has been told he has an astro cytoma
stage 3 to 4 and has 6 months to 5 yeras. I understand he will be starting a
course of radiotherapy tomorrow. Meanwhile if anyone has any suggestions (alternative
therapies etc) I would be very grateful if you would contact me. I am particularly
interested to contact SBerry but have been unable to get in touch via e-mail.
If anyone knows how I can contact him please let me know.
Many thanks for everyone's help.
Jonathan (jonathan@verdi.demon.co.uk)
London, UK - Saturday, May 30, 1998 at 18:22:27 EDT
Left message on Group Wise. Don't know if it'll reach here or not. Had to do with Navelbine, recurrent Stage 3B adenocarcinoma. Time frame 12,96 to current. Prior to Navelbine begun in Jan.'98, had Taxol, Carboplatin and Vespedid (sis), six,. 21 day regimine followed by 8 weeks, two simulations of radiation. Recurrent appeared in November of 97. Held off until after Christmas even though I knew what was what; wife and family. Had 12 Navelbine injections. Veins getting a bit testy. Going for an implant valve beneath the skin. Anyone got any idea how many Navelbine treatments are standard? Are more oncologist now using Navelbine not only as a treatment, but as a preventative measure too? Comments, Thoughts, Knowledge!!!!!
Thanks for the time. Hope I can find my way back here for answers. If not send them my way via E-mail.
Jack Dowdy (jddowdy@city.virginia-beach.va.us)
Virginia Beach, Va USA - Wednesday, May 27, 1998 at 15:15:32 EDT
I am a soon to be survivor..
in three days I am having my right breast removed..
I am 28 yrs old..
Pray for me
Suzanne Koors (victor@iland.net)
Whiteman AFB, Mo USA - Wednesday, May 27, 1998 at 00:31:01 EDT
I am the daughter of a cancer survivor. She frequents your chat rooms daily, and tells me of all of the wonderful people she has met. Thank you for being there when I can't be in PA with her. She needed to talk the other day, but not to me, it was something I couldn't understand, but you were there. Thanks.
Elizabeth
TX USA - Tuesday, May 26, 1998 at 20:00:22 EDT
I am the daughter of a cancer survivor. She frequents your chat rooms daily, and tells me of all of the wonderful people she has met. Thank you for being there when I can't be in PA with her. She needed to talk the other day, but not to me, it was something I couldn't understand, but you were there. Thanks.
Elizabeth (lmg@tyler)
TX USA - Tuesday, May 26, 1998 at 19:59:58 EDT
I am a 13 year old survivor of ALL (Acute Lymphoblastic Leukemia). I have been undergoing chemo since Nov., 1996.
I will be done with chemo in Feb., 1999, by the grace of God above. I would like to visit with other survivors. Please e-mail me at:
ester_smith@hotmail.com
Ester (ester_smith@hotmail.com)
Roscommon, MI USA - Tuesday, May 26, 1998 at 13:11:36 EDT
i'm a survivor of thyroid cancer.
Candice Beever-England (englandd@revealed.net)
Orion, il USA - Monday, May 25, 1998 at 18:23:05 EDT
This is great. I have Melanoma of my sinus. In Aug97, they removed the bone from my right and used a muscle from my abd. to fill in the space. I would love to hear from any one else who has melanoma in weird place.
reachus@gateway.net
Phyllis (reachus@gateway.net)
Mecahnicsville, Va USA - Saturday, May 23, 1998 at 11:29:42 EDT
I like your web site and your Irc Channel. We have been going through a lot
lately. And while we know we are not alone in this, it's nice to be reminded sometimes.
Best wishes to everyone. Also feel free to click on the banner to learn more about
me and my wife. Thanks
Allen Tunget (wembly@theramp.net)
IL USA - Wednesday, May 20, 1998 at 20:37:36 EDT
I REALLY ENJOYED YOUR WEBSITE.I HAVE HAD MANY DEATHS IN MY FAMILY BECAUSE OF CANCER AND THIS MADE ME REALIZE I WASNT THE ONLY ONE
CHRIS MAGUIRE (NDM9@AOL.COM)
CAPE COD, MA USA - Wednesday, May 20, 1998 at 13:38:23 EDT
Please have a look at my site about cancer
http://perso.wanadoo.fr/durif.varces/
DURIF Pierre (andre.durif@wanadoo.fr)
GRENOBLE, IS FRANCE - Sunday, May 17, 1998 at 18:09:45 EDT
This page is fantastic. I am a 11 year survivor of non-hodgkins lymphoma. When I was going through treatment I always felt so alone, I never really was able to talk to other people about my illness. So I think, this must be a true blessing for anyone going through those challenges today. It would offer the support needed that only someone facing similar challenges could understand. God bless you all!
Linda (lmaltbie@mosquitonet.com)
North Pole, AK USA - Saturday, May 16, 1998 at 01:30:19 EDT
I am writing for my 30 year old daughter, Sandi, who was diagnosed with a melanoma Brain tumor on March 18 of this year. Since that date she has undergone brain surgery 3/23, with followup radiation. Last week 5/1, catscan report came back showing a spot on her lung and possibly one in her stomach. Biopsy for lung was done on 5/6 we will receive results on 5/11. We have done alot of research on cancer, as I am sure you all have done. Sandi has started on alternative medicines to help in the control of her cancer. If any one of you have used alternative methods with good results we would love to hear how you are doing and what treatments you went through. Speaking as a Mom who only wants the best for her daughter, I know with the help of God we are going to BEAT this!!
Marjie Cartwright (cartwml@sdcoe.k12.ca.us)
Escondido, CA USA - Friday, May 08, 1998 at 10:47:53 EDT
I am a nephew of the late Chris Clark of
Hamilton Ontario who lost his battle over
a year ago. I was just looking to share
his story of hope and courage as well as
find some ways to come to terms with the
loss myself.
Brian Bradley (einstein14@hotmail.com)
Azilda, ON Canada - Thursday, May 07, 1998 at 21:33:36 EDT
Hello, and thanks for a wonderful experience...what a great
page...and place to be. The theme music is PERFECT too.
What I am looking for is some information on where someone
might be able to donate human hair. My husband recently
read somewhere that someone had let their hair grow, in order
to donate it to some cancer research place. He has beautiful
white hair, and has let it grow also for this purpose, and
we cannot locate the place that had seen originally. Any
information of this sort would be greatly appreciated. My e-mail
address is lridl@usit.net.
Thank you in advance for any assistance you might have...and
once again, thanks for the great page.
Linda (lridl@usit.net)
Roanoke, Va USA - Thursday, May 07, 1998 at 15:44:07 EDT
The Homepage is BRILLIANT! The people on #Cancer Survivors are the nicest people and I hope to qualify in that sense too, to being part of the family. Positive thinking and genuine moral support is what you will find here and some good laughs because the humour here is real and very contagious! :)
gpf (workable@iafrica.com)
Cape Town, South Africa - Thursday, May 07, 1998 at 06:03:27 EDT
To Terri:
I did a study for speech class on Hospice. You should see
if there is a Hospice located where you live. They help the
bereaved as well as the patient. God Bless
Edna
USA - Sunday, May 03, 1998 at 04:58:48 EDT
I'm seeking assistance/info to help my Mom work thru the loss of my Dad.
Terri (terridon@aiusa.com)
Baldwinsville, NY USA - Saturday, May 02, 1998 at 11:58:57 EDT
My wife had cancer of uterus and survived thanks to superior power,chimo radiation and of course good doctors and lots of positive vibes.I found your site and channel by accident.Many thanks.My wife,s closest friend diagnosed with breast cancer...any info would be appreciated. God bless all.:-)
G.Kuehne (bonding@cil.qc.ca)
Vendee, QC Canada - Thursday, April 30, 1998 at 12:33:43 EDT
I am a 32 year old mother of four. My 5 year old son Glenn has just finished chemo for the second time around. Thankfully he is in remission. I would love to speak to any other mums who have been there. thanks.
Janeen (petern@vic.ozland.net.au)
mildura, vi australia - Thursday, April 30, 1998 at 01:28:46 EDT
Hi All, I'm the new kid on the block,just had a lumpectomy last week and as i am typing i am waiting for the pathology report call from my surgeon. I am a 49 year old single gradma and Postmaster here in NH.....however i'm not "Postal" yet! :) I'm sure glad i found this site and i'm going to enjoy getting to know you all ........"Enjoy life" :-) Lucy
Lucy (rperron@conknet.com)
NH USA - Monday, April 27, 1998 at 14:05:05 EDT
I am a 1991 breast cancer survivor who has just learned my cancer is back in the same breast and located in the incision/scar area of my lumpectomy. I would like to talk with those who have had similar experience and reconstruction. Also, I have lymphedema in my arm. Anyone else?
Bonnie Eddy (jbe314@bright.net)
Napoleon, OH USA - Monday, April 27, 1998 at 05:51:38 EDT
I am a cancer survivor of wilma tumor.
I found out I had cancer at 3 year old .
I am now 36 years old.
Good luck and God bless you all>
Joseph M Perusic III (perusicj3@nhmccd.campus.mci.net)
spring, tx USA - Saturday, April 25, 1998 at 11:54:50 EDT
Hi, I'm so glad that I found this channel on irc. Cancer is such a taboo subject here that when I was a patient, I did not have anyone to talk to about it. I had cancer when I was twelve and God has kept me alive for 6 years. I hope this serves as an encouragement that cancer is not dead end to life. Believe in the power of prayer! God loves you all
candlite (jnissi@hotmail.com)
Singapore, Singapore - Thursday, April 23, 1998 at 13:58:46 EDT
I found out I had cancer when I was 17. Now, at age 19 I have found a new hope and a glimmer in my life that my not otherwise have been there.
Jill Kovacs (kovacs@wksu.org)
Kent, OH USA - Monday, April 20, 1998 at 22:22:40 EDT
MY SON JUST COMPLETED 2 1/2 YEARS OF CHEMOTHERAPY FOR LEUKEMIA. HE IS ALMOST 16 NOW. I WOULD LOVE TO CHAT WITH SURVIVORS OF LEUKEMIA. N_SCHWARTZ@YAHOO.COM THANK
NSJUDE (N_SCHWARTZ@YAHOO.COM)
BATON ROUGE, LA USA - Friday, April 17, 1998 at 19:18:27 EDT
My sister (30yrs old) has just been diagnosed with spinal melanoma. Could someone please shed any light on success they have had. Thank you so much!
Rick Miller (Rchilr@aol.com)
greensboro, nc USA - Thursday, April 16, 1998 at 20:53:53 EDT
My Dad is battling transitional cell carcinoma on the liver. He was diagnosed 1 year ago. Would like to make contact with any survivors of this C. Would appreciate any info possible. Thanks/
Carol L. (cleblanc@box1.com)
Houston, TX USA - Thursday, April 16, 1998 at 14:59:10 EDT
June 98 will celebrate 7 yr remission from acute luekima. Went through 1 round of chemo & 90 days of an experimental drug (now FDA approved) been in remission since. Would like to hear from others who have travelled that rough road.
Charlene "Sam" Wilson (Wilson4@televar.com)
Omak, WA USA - Saturday, April 11, 1998 at 01:39:21 EDT
I myself do not have cancer but my mother is a survivor of Zollinger-Ellison Syndrome. I have found the people here very supportive of each other, and very friendly to talk to!
Kevin Bennett (hawgface@smig.net)
austin, mn USA - Monday, April 06, 1998 at 01:02:03 EDT
53 year old recently divorced. bladder
cancer-radical cystoproctatectomy with
urostomy. Poor prognosis. Would enjoy
chatiing with others. Thanks.
Dan Hayslett
waco, tx USA - Sunday, April 05, 1998 at 14:49:25 EDT
I do not have cancer, however have a 5 year old niece with neuroblastoma stage 3. would like to talk with anyone who is familiar with this cancer, or someone who has survived this. also, have mother with possible 3rd recurrence of breast cancer. was diagnosed in 1990, recurred in 1995 on breast they removed and now blood work is showing level rising, which could mean cancer again. anyone who has experienced any of this nightmare, please email me. I am trying so hard to make sense of all this, especially where our 5 year old is concerned.
Thank you and god bless each one of you. may you all live long and healthful lives.
donn (nitch@softcom.net)
USA - Friday, April 03, 1998 at 10:32:12 EST
My 15 year old son just completed 2 1/2 years of treatment for Leukemia (ALL). He/We are doing great. I would love to talk to survivors that were diagnosed at about the same age (13). God Bless all
nelly (n_schwartz@yahooa.com)
Baton Rouge, La USA - Thursday, April 02, 1998 at 21:22:53 EST
Nickname: AtlGa-Boy
I think your irc channel is great! It has been a real help to me in my time of need. It really helps being able to talk with people who can relate & share what you're going through. I've made many new friends and everybody here is so supportive and friendly. Thanks to all the channel originators!
Brian Marsh (brianmarsh@mindspring.com)
Lithonia, Ga USA - Tuesday, March 31, 1998 at 16:52:54 EST
I would like to talk to someone with cancer for my project please
stampy
- Sunday, March 29, 1998 at 19:54:42 EST
Hi. I am new to the web. I have been in remission for almost 1 year, of Hodgkin's Disease. I had combination chemo for 8 months. I will check out your chat line. Thanks for the help.Contact me at 926668@ican.net.
Kim Edwards (926668@ican.net)
Sudbury, Canada - Sunday, March 22, 1998 at 22:53:37 EST
http://www.tidespoint.com/market/bookstore/williamkelley.htm
One Answer to Cancer (dlynch@delweb.com)
St. John's , NF Canada - Saturday, March 21, 1998 at 19:23:40 EST
I am an oncology social worker at a new out-patient cancer center. I am so glad to have found this site - I will encourage all my patients to visit often!
Christy Patterson (cpatters@stdom.com)
Jackson, MS USA - Friday, March 20, 1998 at 15:11:51 EST
Thank you for another wonderful place to share cancer concerns !! I had squamios cell cancer to the left nostril of my nose . I also lost my mom to brain cancer !! I love the support I recieve on cancer-survivors !! a very warm and friendly place !! thanks ^^JR^^ forr telling me about y'all !!
Val Adams (Muff) (relay@kaplantel.net)
Kaplan, LA USA - Monday, March 16, 1998 at 20:31:04 EST
Hi. I had prostate cancer surgery before christmas. Iam 58 and would like to comunicate with other men who are survivors. There are a number of issues that some one who lived with the removal of the prostate could share with me. Thanks for the area to share on this web site.
Bill Edwards (william.h.edwards@mci2000.com)
fort smith, ar USA - Sunday, March 15, 1998 at 08:46:47 EST
Hi. I had prostate cancer surgery before christmas. Iam 58 and would like to comunicate with other men who are survivors. There are a number of issues that some one who lived with the removal of the prostate could share with me. Thanks for the area to share on this web site.
Bill Edwards (william.h.edwards@mci2000.com)
fort smith, ar USA - Sunday, March 15, 1998 at 08:46:34 EST
I am a surviving cancer/lupus/hepatitis patient. Just lookin for ways and people to chat with. specially with a re-emersion a new acoustic neuroma.
Ron Tucker (rome@bellsouth.net)
Conyers, GA USA - Saturday, March 14, 1998 at 22:41:02 EST
9 yr. breast cancer & 3 yr survivor of maligant tumor in the roof of my mouth. They are unrelated cancers, I am doing very well. I am new at using a computor and don't really know what I am doing but I try.
Joyce (BEFinck)
ne USA - Friday, March 13, 1998 at 11:24:36 EST
I've been surfing the net for several months researching sites for survivors of cancer and other health problems. I had non small carcinoma of the right lung. They removed my lung in Dec. 1995. I was able to return to work 4 months later and resume most curricular activies. I still feel that there are emotions that people who have not been through some of these traumas would not understand. I would like to share my experiences and interact with others that have been down this path.
Rita Buckner (rybuckne@aec.apgea.army.mil)
Baltimore, MD USA - Tuesday, March 10, 1998 at 11:02:33 EST
Im a 53 year old single male (working yech!!)
I was diagnosed with a small cancerous tumor
on a lung 3 years ago while having an Xray due
to a job accident. The lung was subsequently removed.
Gracias a dios...I'm clean today, but am a much different
person. I find this group of people very supportive.
Would like to share thoughts with anyone in similar
situation.
Norm Ross (nross@island.net)
Port Hardy, BC Can - Monday, March 09, 1998 at 02:38:34 EST
I am a cancer survivor of Hodgkins Lyphoma today was my last treatment and no cancer ,this oasis of care will travel many miles , may God bless those still fighting - take one day at a time.
Chaz DeBoer (ctdeboer@enter.net)
Wind Gap, PA USA - Thursday, February 26, 1998 at 18:37:15 EST
My husband I are both cancer survivors. I am a little past four year diagnosis of Breast Cancer and my husband is in his second year past diagnosis of prostate cancer. I have found it to be extremely trying for both of us to have to deal with cancer. I would very much like to visit with couples that are both dealing with cancer.
Sheryl (tsfish@nvc.net)
Warner, SD USA - Sunday, February 22, 1998 at 20:57:15 EST
Wonderful web site! I am a member of an American "cancer cluster" family. We have experienced over 27 cancers involving lung, breast, tongue, brain, colon, and the lymphatic system. Visit our site at http://www.ahamade.com/CancerSurvivors/ We offer cancer resources, publications, hotlines, links and a medical glossary. Subjects include general and specific cancers, treatments [surgery,chemo,radiation,medicines] communication [family,employers,medical comm, children] nutrition, finances, humor, stress, clinical trials, sex, hotlines, what's new, other sites, glossary and authors notes. Feel free to make copies of any of our site that interest you and share the information with any you believe it will help.
Judy (JudyBear@MSN.com)
USA - Sunday, February 22, 1998 at 14:45:02 EST
Hi my name is Lynda. I am 28 years old and a survivor of ovarian cancer for over four years now. What a great page. I love the music!!! I am a registered nurse by day and by night I am a writer. At this time I am compiling a book with stories of inspirational cancer survivors. So if you want to help others survive and share your story. Contact me at lmwrn70@htc.net I am having some troubles with my E-mail so if you can't send your story now. Please keep trying. I would love to hear from you. Good health to all and may God bless.
lynda weber (lmwrn70@htc.net)
red bud, il USA - Friday, February 20, 1998 at 23:38:44 EST
Hi my name is Lynda. I am 28 years old and a survivor of ovarian cancer for over four years now. What a great page. I love the music!!! I am a registered nurse by day and by night I am a writer. At this time I am compiling a book with stories of inspirational cancer survivors. So if you want to help others survive and share your story. Contact me at lmwrn70@htc.net I am having some troubles with my E-mail so if you can't send your story now. Please keep trying. I would love to hear from you. Good health to all and may God bless.
lynda weber (lmwrn70@htc.net)
red bud, il USA - Friday, February 20, 1998 at 23:34:26 EST
Hello I am a breast cancer survivor since Oct 95. I am a register nurse.
I like to recieve ee-mail and I'm willing to assist others with similar
cases or just need someone to write to feel free to do so, and remember
we learn from each other. Take care from MaryS
MaryS (Solymar@texas.net)
Converse, Tx USA - Friday, February 20, 1998 at 04:48:49 EST
Hello I'm a 25 year old survivor of hodgkins lymphomia. I went throughy chemotheraphy and radiation almost 4years ago. I will never do it again. Great page may God help those who need it the most
gary K. Miller
Lynchburg , Va USA - Wednesday, February 18, 1998 at 18:44:53 EST
24 year survivor of wilm tumor. looking to start a group!
please feel free to call 713-543-6770 or write !
Joseph Perusic (perusicj3@nhmccd.campu.mci.net)
spring, tx USA - Sunday, February 15, 1998 at 22:45:38 EST
Good work Paul, like all your pages. Well done!
Gerry M. Serianni (gerryms@voicenet.com)
Lafayette Hill, Pa USA - Sunday, February 08, 1998 at 21:13:31 EST
The song is so appropriate. How uplifting. This disease
takes so many lives. I'm proud to say I'm a survivor.
beenthere
USA - Friday, February 06, 1998 at 23:26:01 EST
Cancer and survivor...not something one say 10 years ago. I was diagnosed 7 years with bone cancer and subsequently lost my leg, but I still faith that research will find a cure. Congrats fellow survivors! Great web site...a must for all to view.
Krista Wilkins (av191@chebucto.ns.ca)
Halifax, NS Canada - Thursday, February 05, 1998 at 18:20:19 EST
Hi, to all. I am a survivior and sufferer of Non-Hodgkins
Lymphomia. First diagnosed 1988 and into remission until
Dec 1996. This site looks great as I have just dicovered it.
I am a member of a support group called Canya. You may like
to look us up on www.ozemail.com.au/~joehayes/index.html.
Rod Whitnall (rwhitna@tig.com.au)
Sydney, NS Australia - Saturday, January 24, 1998 at 00:05:27 EST
I am a student at Ball State Uneversity, My mother passed away two years ago from breast cancer. She would have been proud of all of you. Keep doing great things. God Bless.
Tim Hill (tehill@bsuvc.bsu.edu)
muncie, in USA - Tuesday, January 20, 1998 at 00:05:18 EST
Great Initiative, as a survivor I know there is a need for this
maybe we will have something overhere sometime
Roelof From (Roeloffrom@compuserve.com)
Noordwijkerhout, Netherlands - Monday, January 12, 1998 at 15:39:54 EST
I'm an almost five year breast cancer survivor. Would love to become a part of this wonderful website.
Evelyn Katerba (katerba@hotmail.com)
Cranbury, NJ USA - Friday, January 09, 1998 at 10:43:03 EST
I am also a cancer survivorand would be interested in a little info on the vol
volunteering that you talk about as I have
mostly time on my hand during the day. :-]
Clint Templeton (eeeyore@netcom.com)
oklahoma city, ok USA - Wednesday, January 07, 1998 at 01:30:57 EST
Help! I am looking for survivors of hemangiosarcoma. My sister is a 5+ year survivor and is searching for other survivors. Any help would be greatly appreciated. I think your website is great!
Lisa Glick (bglick@dynasty.net)
Henderson, KY USA - Sunday, December 28, 1997 at 12:23:09 EST
I haven't got into the chat line or much of anything else yet. I'm a beginner on the computer, but have had breast cancer for 4 years. Right now it is not active.
Sandy Hurlburt (hurlybur@ ptd.net)
Mansfield, PA USA - Saturday, December 06, 1997 at 16:12:07 EST
I'm so glad to see so many people having the opportunity
to share their stories and pain with. I was diagnosed in 1993 with breast cancer. All counts that could be were against me. I was told that without a bone marrow transplant I had a 50/50 chance at surviving. I took the positive side of 50%. so, here I am by the grace of God
4 years and 8 months; cancer free. Please visit my webpage at http://www.geocities.com/hotsprings/7448
The focus is on beating cancer and not accepting it automatically as a death sentence as so many do. Keep a
positive mental attitude and the faith! My best wishes to all.
Janie
Janie (shebalucky@aol.com)
USA - Wednesday, December 03, 1997 at 06:26:39 EST
This is a great page.
Bob Edgar (pshnwnd@msn.com)
Sacramento, CA USA - Saturday, November 29, 1997 at 18:09:57 EST
Greetings from the OncoChat IRC channel!
The new page looks great!!
Marvin Miller (mwmiller@netgate.net)
San Jose, CA USA - Thursday, November 27, 1997 at 01:07:16 EST
help! i am a breast cancer serviver(?), going in on monday
for a historectomy,more breast reconstruction,and im having my gallblader removed all on the same day under one anistisia what do you think ???????????????????
Heart2Heart (hrt2hrt@juno.com)
Palmdale, Ca USA - Monday, November 24, 1997 at 21:23:37 EST
I would like for MaryS to get in contact with me ASAP. Please have her write me at this address or at least get into the chat line with her.
Thanks.
Rodney Almaraz (rodneyalmaraz@poboxes.com)
USA - Saturday, November 22, 1997 at 13:51:20 EST
HI! I'm 26 y.o. survivor of OvCa/Immature Teratoma since age 13 (2/85); s/p TAH/BSO since age 26 (2/97) and lost my mentor and soul-friend to br ca last Thanksgiving Day. Would love to chat w/anyone w/similar history/stories. Thanks for creating such a needed and charished webpage!!
Stephanie Barrett (stephanie_barrett@bshsi.com)
Fredericksburg, VA USA - Friday, November 21, 1997 at 18:35:28 EST
HI! This is Christy Crawford. I'm a 25year old survivor of a cancerous brain tumor diagnosed in the spring of 1982.
I'd really like to get to know other long term survivors of childhood cancer. I know you're out there. I know I'm not the only one who's made it this far. Please write to me!
This was my first visit to the Cancer Survivors Chat Channel.
I'm really unfamiliar with computers and the web and all, but I feel really comfortable here.
This is a great place!
I hope that I can get to know a lot of other survivors and make a lot of friends through this site.
THIS IS GREAT!
Christy Crawford (crawfoc@elmo.nmc/edu)
Traverse City, MI USA - Thursday, November 13, 1997 at 15:08:58 EST
Today was my first visit to the channel.
I had a nice talk with Pat P. It felt so
good to talk with people who are not on
the outside looking in. This is a great
place to be.
Joseph C. Suozzo (js0511@ix.netcom.com)
Derry, NH USA - Wednesday, November 12, 1997 at 23:21:56 EST
PM
this is a very beautiful web page to come and visit.
i do enjoy the group so very much. thank you for letting me become part of the family.
greendoor
claudine bennett (locators@tscnet.com)
poulsbo, wa USA - Wednesday, October 29, 1997 at 21:24:07 EST
I need to talk to someone that has had a laryngectomy as soon as possible. Please email me!
Bill D. Hathcock (bdh@dancris.com)
Phoenix, AZ USA - Tuesday, October 28, 1997 at 23:39:06 EST
It is great to see so many survivors. But does anyone know of a place where people who have lost there lovers to cancer are? I am specifially looking for someone that lost a lesbian lover to cancer recently with no kids involved. I really need to talk with someone in similar postion. If this is not the right place for me to put this I appologize but am desperate
Ann M. Stewart (drich1@ix.netcom.com)
Auroro, CO USA - Tuesday, October 28, 1997 at 22:55:37 EST
Just read about Piecewmn. My condolonces. I remember a night of chat after some wine with Patty:) I try tospread the word. Keep up the good word. C.
Christine Brittain (bbrittai@nbnet.nb.ca)
Saint John, NB Canada - Wednesday, October 22, 1997 at 18:28:03 EDT
What a really wonderful group of friends. Thank you all for being there when I needed you. And this page is the best. My prayers go out to you all. HUGZ!
Lauri (Palo) (berryent@agate.net)
Bangor, ME USA - Sunday, October 19, 1997 at 15:13:44 EDT
Good idea on the revision list, pmc. Now we know where to look for changes. Thanks again for all the hard work on the homepage.
Charlene (seims@ix.netcom.com)
USA - Sunday, September 28, 1997 at 01:58:11 EDT
Wonderful job on the homepage pm!!! Hello there to all my cancer survivor cyberfriends :) Don't know what I would do without all of you...love and prayers and many big hugs... love, lilah
Sharon (lilah) (sharron@mindspring.com)
Chattanooga , TN USA - Friday, September 26, 1997 at 12:32:27 EDT
i love this channel..and all the ppl in it..the squid
Laurence Toews (elsquid@mindspring.com)
Louisville, GA USA - Wednesday, September 24, 1997 at 22:27:39 EDT
This is the greatest homepage I have ever seen...thanks to PMCohen
Come visit our channel and meet the greatest bunch of people.
They are loving,caring and supportive..I could not make it through without them!!!
Jaye Coplen (jayec@tez.net)
Virginia Beach, VA USA - Monday, September 22, 1997 at 23:58:16 EDT
Always enjoy the friendly conversation in the #cancer-survivors chat channel. It's always a source of inspiration! I've made some wonderful friends there! Jim ^^JR^^
Jim Reiling (jimnrita@juno.com)
Colona, IL USA - Tuesday, September 16, 1997 at 23:18:29 EDT
You have done a wonderful job to this page!!!
Keep it up and I promise my bio
is on its way!!!!
Rebecca (aconley@netarrant.net)
Hurst, Tx USA - Tuesday, September 16, 1997 at 01:30:07 EDT
PMCohen you have done a beautiful job on the home page! Thank you very much!
charlene (seims@ix.netcom.com)
seattle, wa USA - Wednesday, September 10, 1997 at 23:46:34 EDT
#Cancer-Survivors guestbook, now open for business!
Paul Cohen (pmcohen@voicenet.com)
King of Prussia, PA USA - Tuesday, September 09, 1997 at 22:16:01 EDT
